Tina Johnson

Hi,

I had my team start the application process end of December. Still nothing. I ask every so often for any updates and get the answer they haven’t heard anything. It’s so frustrating.  All I do is hope and pray everyday.

Tina

Hi John,

Would you be able to let me know what the supplements you take? Either on here or email?

My email is [email protected]

Thank you!

Thank You, John

Sounds awesome what it has done for you.

I am 40 and walking with a cane, I can’t lift up my left arm very high anymore and now it’s starting in my right. I am also doing PT and exercising at home as much as possible.

I talked to my Neurologist and they put me on top of the list for Tofersen. I am just praying I am able to get…[Read more]

Hi Amanda,

I’m also interested in the tofersen treatment. Can I ask you what state you live in? Also where are you being treated at?

Tina