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	<title>ALS News Today Forums | Tom Pritchard | Activity</title>
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				<title>Tom Pritchard replied to the discussion ALS Life Expectancy vs. Quality Of Life in the forum Living With ALS</title>
				<link>https://alsnewstoday.com/forums/forums/topic/als-life-expectancy-vs-quality-of-life/#post-18456</link>
				<pubDate>Tue, 13 Apr 2021 00:30:21 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://alsnewstoday.com/forums/forums/topic/als-life-expectancy-vs-quality-of-life/page/2/#post-18456"><span class="bb-reply-lable">Reply to</span> ALS Life Expectancy vs. Quality Of Life</a></p> <div class="bb-content-inr-wrap"><p>I remember a psychological suggestion, some years ago, that positive thinking (self fulfilling prophecy) helps an individual attain a positive result.  Subconsciously we make choices that helps us get to what we want to achieve and avoid things which which would distract us and make us miss our target. Depressed or addicted people tend to&hellip;<span class="activity-read-more" id="activity-read-more-11117"><a href="https://alsnewstoday.com/forums/forums/topic/als-life-expectancy-vs-quality-of-life/#post-18456" rel="nofollow"> Read more</a></span></p>
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				<title>Tom Pritchard replied to the discussion ALS Life Expectancy vs. Quality Of Life in the forum Living With ALS</title>
				<link>https://alsnewstoday.com/forums/forums/topic/als-life-expectancy-vs-quality-of-life/#post-18324</link>
				<pubDate>Fri, 09 Apr 2021 00:54:25 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://alsnewstoday.com/forums/forums/topic/als-life-expectancy-vs-quality-of-life/#post-18324"><span class="bb-reply-lable">Reply to</span> ALS Life Expectancy vs. Quality Of Life</a></p> <div class="bb-content-inr-wrap"><p>I lost two cousins to ALS, I have the same symptoms as the first one was afflicted with.  His sister was diagnosed with familial ALS.  Her twin sister died from Cancer before the brother did.</p>
<p>Terminal diseases, in general, do not allow a victim to maintain a quality of life.  My first job after grad school (Health Care Administration) was as&hellip;<span class="activity-read-more" id="activity-read-more-11031"><a href="https://alsnewstoday.com/forums/forums/topic/als-life-expectancy-vs-quality-of-life/#post-18324" rel="nofollow"> Read more</a></span></p>
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				<title>Tom Pritchard posted an update: I consulted another Neurologist in Albany, NY.  He gave me [&#133;]</title>
				<link>https://alsnewstoday.com/forums/activity/p/10947/</link>
				<pubDate>Tue, 06 Apr 2021 01:34:32 -0500</pubDate>

									<content:encoded><![CDATA[<p>I consulted another Neurologist in Albany, NY.  He gave me a nerve test on my right side.  The first one was only done on my left side.  He agreed to enlist me to try Radicava but I read a piece from September of 2017 which presented many concerns: expense and the low percentage of patients benefiting from the regimen.  I am becoming&hellip;<span class="activity-read-more" id="activity-read-more-10947"><a href="https://alsnewstoday.com/forums/activity/p/10947/" rel="nofollow"> Read more</a></span></p>
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				<title>Tom Pritchard posted a new activity comment</title>
				<link>https://alsnewstoday.com/forums/activity/p/10830/#acomment-10844</link>
				<pubDate>Mon, 29 Mar 2021 14:43:47 -0500</pubDate>

									<content:encoded><![CDATA[<p>Thank you Amanda.  I am not sure what happened to my contribution.  So I created a document and did copy and paste it and that worked.  I am curious about potential cures, as would any member of this group who is a victim.  Northwestern University in Chicago has developed a possible cure NU9 and Wave Life Sciences in Cambridge, MA has&hellip;<span class="activity-read-more" id="activity-read-more-10844"><a href="https://alsnewstoday.com/forums/activity/p/10830/#acomment-10844" rel="nofollow"> Read more</a></span></p>
				<strong>In reply to</strong> -
					<a href="https://alsnewstoday.com/forums/members/tomaprit/" data-bb-hp-profile="3637" rel="nofollow">Tom Pritchard</a> became a registered member					]]></content:encoded>
				
				
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				<title>Tom Pritchard replied to the discussion Living with ALS in the forum Living With ALS</title>
				<link>https://alsnewstoday.com/forums/forums/topic/living-with-als/#post-18191</link>
				<pubDate>Sun, 28 Mar 2021 16:27:19 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://alsnewstoday.com/forums/forums/topic/living-with-als/#post-18191"><span class="bb-reply-lable">Reply to</span> Living with ALS</a></p> <div class="bb-content-inr-wrap"><p>Thank you Bill.  I retyped it into a document and I am reposting it now:</p>
<p>I am a 69-year-old Caucasian male.  Fourteen years ago I was told I had a heart attack however the solution was a posterior stent.  Four years later, I was asymptomatic but I got an anterior stent installed because of diagnostic test results. I was the youngest of&hellip;<span class="activity-read-more" id="activity-read-more-10834"><a href="https://alsnewstoday.com/forums/forums/topic/living-with-als/#post-18191" rel="nofollow"> Read more</a></span></p>
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				<title>Tom Pritchard replied to the discussion Living with ALS in the forum Living With ALS</title>
				<link>https://alsnewstoday.com/forums/forums/topic/living-with-als/#post-18187</link>
				<pubDate>Sun, 28 Mar 2021 14:33:09 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://alsnewstoday.com/forums/forums/topic/living-with-als/#post-18187"><span class="bb-reply-lable">Reply to</span> Living with ALS</a></p> <div class="bb-content-inr-wrap"><p>I am 69, living in my 70th year. I retired on my 55th birthday, 14 years and 8 months ago after I had a stent put in my heat. Four years later I got a second stent. My father and oldest brother had multiple cardiac bypasses my oldest brother has had several stents after his bypass. My mother was on her second pace-maker when she passed away&hellip;<span class="activity-read-more" id="activity-read-more-10831"><a href="https://alsnewstoday.com/forums/forums/topic/living-with-als/#post-18187" rel="nofollow"> Read more</a></span></p>
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				<title>Tom Pritchard became a registered member</title>
				<link>https://alsnewstoday.com/forums/activity/p/10830/</link>
				<pubDate>Sun, 28 Mar 2021 12:47:42 -0500</pubDate>

				
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