Tom Hehir

Mike, I don’t recall ever hearing Dr. Bedlack say the reversals he was studying were all on plant-based diets. Nor, do I remember them mentioning it when they had interviews. Perhaps you were confused… because, he did say a common supplement they were taking was Theracumin.

Terry Wahl stopped her MS symptoms via her drastic change in diet.…[Read more]

David – the lumbar puncture was painless?? Seriously??? Wow! That is so awesome. How are you feeling now?
Amanda

David – the lumbar puncture was painless?? Seriously??? Wow! That is so awesome. How are you feeling now?
Amanda

David – the lumbar puncture was painless?? Seriously??? Wow! That is so awesome. How are you feeling now?
Amanda

David – the lumbar puncture was painless?? Seriously??? Wow! That is so awesome. How are you feeling now?
Amanda

80% of falls happen in the bathroom. Like many people my age, I’d awake in the middle of the night to use the toilet. But with ALS it became a wobbly walk that was treacherous even with our strategically placed night lights. Here’s how I avoid a nighttime fall and, get 8 hours of uninterrupted sleep.

I drink adequate amounts of liquids th…[Read more]

Hi Jan,

I also have bulbar ALS and take Gabapentin for pain.

Regardless of opinions of how ALSA operates, the flow chart that Mark shared is I believe something helpful for non-ALS specialists/GPNs as well as patients. This chart lays out symptom identification in an easy-to-understand format.

Thank you for sharing this with us Mark.

Regardless of opinions of how ALSA operates, the flow chart that Mark shared is I believe something helpful for non-ALS specialists/GPNs as well as patients. This chart lays out symptom identification in an easy-to-understand format.

Thank you for sharing this with us Mark.

It’s admirable that you care so much about your brother-in-law and want to help him as much as possible.   ALS can indeed be a very isolating experience. Does your brother-in-law have any family members or friends that text him or come to visit him?  I agree with Dagmar that you could encourage him to join this forum in order to communicate wi…[Read more]

Scotty, your brother-in-law is lucky to have you. Your kindness and compassion for him shine through.

You didn’t mention how long he has had ALS, but I suspect by your comments, not very long – – in that he has not yet made any connections within the ALS community.

All of us pALS here in the forum experience the same fears of our future (and…[Read more]

A member asked:

How do ALS patients deal with constipation? I’ve had a feeding tube for six months and began having trouble with constipation. I do not take anything orally and make sure that  I stay hydrated using the feeding tube. Are there any suggestions out there?

Carolyn, I think that would be a great post and others would like to learn about it too!
Amanda

I always enjoy my visits to the ALS Clinic (and have written much about them in my column and blog).

During the first few years of my ALS, I was going every three months. But as my symptoms slowed and I was self-managing OK, they dropped to every 4 months. Now, 11 yrs. later, my neurologist has me scheduled at 6 months – – with the option to call…[Read more]

I was following a healthy vegetarian diet (allowing eggs & milk) for 10 years prior to my diagnosis. My neurologist told me I needed to eat more protein – – and I wasn’t interested in consuming a ton more “plant protein” (soy, peas, etc) – – so, I went right back to including chicken, fish, and beef in my diet.

I feel fine. Having been eating…[Read more]