ALS News Today Forums | Tresa | Activity https://alsnewstoday.com/forums/members/tresa/activity/ Activity feed for Tresa. Sun, 05 Apr 2026 14:14:26 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 98a1b2999a61a31339acb77987ee9033 Tresa replied to the discussion genetic screening/unique situation in the forum Caregivers and Family ​ https://alsnewstoday.com/forums/forums/topic/genetic-screening-unique-situation/#post-25522 Fri, 17 May 2024 22:04:09 -0500 Reply to genetic screening/unique situation

Juliez,

There are lots of resources, and just learning how to access them. We too have Familial ALS C9orf72 gene. We have five family members with ALS. My husband did the genetic testing and we paid out of pocket of $1600.00 with AETNA. My daughter and I did her genetic counseiling before she gets tested. UTSW Genetic Counsel Team is ordering…

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