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|Year of Birth||
I was a Special Ed teacher for 18 years . I was going to keep working but in October of 1999 I was going to an October Fest dance and walking down the driveway I hit a hole and my right ankle went to the right . So that ‘s when the doctors said it started. Before that I did everything, my husband had open heart surgery 4 years ago. We were ballroom dancers.
So I am in studies at the ALS center in Miami. So they took blood and in April they told me I had 9C orf familial ( yes my dad had it in the 80’s)
So they put me on rilosole, and because of COVID had zoom meeting,
|How did you hear about us?||
|How long have you or the person that you are caring for had ALS?||
Almost 2 years