@trespalmas
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Judy Weger replied to the topic Update us on the research and trials you are in!! in the forum Research Topics 1 month, 2 weeks ago
where do you live and what kind of als do you have
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Judy Weger and
David Crellin are now friends 2 months ago -
Judy Weger replied to the topic ALS Forum Member "In the News" – – Joe & David Crellin raising awareness for ALS in the forum ALS Awareness and Advocacy 2 months ago
this is Judy Weger where do you live how long have you had 9c orf 72
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Judy Weger replied to the topic Update us on the research and trials you are in!! in the forum Research Topics 2 months ago
where do you live
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Judy Weger replied to the topic Update us on the research and trials you are in!! in the forum Research Topics 2 months ago
do you have familial 9c orf72?
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Judy Weger replied to the topic Update us on the research and trials you are in!! in the forum Research Topics 2 months ago
where did yours start
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Judy Weger replied to the topic Update us on the research and trials you are in!! in the forum Research Topics 2 months ago
I’m not in any trials, metformin is suppose to help my kind of als but did not engage with the trial too far to drive from Miami so looked up what it was made of and found out it is Goat’s Rue, a plant so ordered the herb and it helped so then I looked into the als drug amx0035 found out it was made of two drugs one cost $500 and ounce and the…[Read more]
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Judy Weger posted an update 2 months ago
I have familial 9corf 72 als
then I found out about Tudca started taking that and it stopped m the als symptoms and its good for your liver
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Judy Weger posted a new activity comment 4 months ago
I would like to tell you about alternative supplements I have c9orf so they said medformin would help they are doing a study at university of Florida but to far to drive no one would prescribe to me so I looked it up and it is made out of Goat’s Rue a plant so I ordered that and am doing my own study and feel great also I take Tudca
and use…[Read more] -
Judy Weger became a registered member 4 months ago
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Hello Judy,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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I would like to tell you about alternative supplements I have c9orf so they said medformin would help they are doing a study at university of Florida but to far to drive no one would prescribe to me so I looked it up and it is made out of Goat’s Rue a plant so I ordered that and am doing my own study and feel great also I take Tudca
and use…[Read more]
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Hello Judy, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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