Forum Replies Created

  • victor-b-nakkache

    Member
    August 3, 2021 at 2:47 pm in reply to: Delta

    No, I am not worried about, I have much more important problems(moderatically progressive ALS) and fully vaccinated ,by the way I am/was a physician,so I have a different perspective.

  • victor-b-nakkache

    Member
    July 20, 2021 at 3:30 pm in reply to: Oh my COVID vaccine

    I can not believe some of you make such a big deal about the vaccine.
    As a prior physician I firmly believe in vaccines with all the pros and cons that everything we do in our lifes.
    Furthermore any of you that have a fairly fast progression of ALS,(like me)probably would agree that ALS is much more serious than worrying about the vaccine side effects.(in fact I care much more about any potential benefits from meds for this cruel disease than any side effects).
    Asa m matter of fact if most of ALS patients would think like me I am convinced that ALS cure would be find much faster.

  • victor-b-nakkache

    Member
    April 1, 2021 at 11:05 am in reply to: ALS Life Expectancy vs. Quality Of Life

    I fully agree . Quality of life is much more important.
    I am saying that both as a rapidly progressing patient and prior   Physician.

  • victor-b-nakkache

    Member
    October 13, 2020 at 3:26 pm in reply to: Professionals and Empathy

    I was a recently retired neurosurgeon in very good health and despite not been a neurologist I already new too much about ALS(maybe not so good),so my first guess when I got the initial symptoms was ALS which was confirmed about 2 months later by two very known neurologists.

    I even saw two more besides going fo r cervical spine surgery (yes ironically),which did not help but I was willing to take a chance and the risks.

     

    To summarize in general I feel that most specialized neurologists have little heart and care about the future treatment,not the present.That’s why they get so involved in research,NOT Treatment,I wish they would be more proactive (like most neurosurgeons)