@waynetruchan
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Wayne Truchan replied to the topic Stem Cell therapy for ALS in the forum Using our Forums 1 year, 6 months ago
My 24 year old son (was 23 at the time of diagnosis) was diagnosed with ALS in March 2021 and I have him on the list at Mayo. If anybody out there can offer any feedback on stem cell I would appreciate it. We had genetic testing done and nothing was found so his ALS is sporadic I guess. As far as that goes, any positive recommendations at all…[Read more]
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Wayne Truchan replied to the topic Update us on the research and trials you are in!! in the forum Research Topics 1 year, 6 months ago
What is the NHS? Is that a European health institute? My 23 year old son was recently diagnosed with ALS and am looking for any help I can get for him.
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Wayne Truchan became a registered member 1 year, 6 months ago
Hello Wayne,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
Hello Wayne, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]