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  • Walter posted a new activity comment 1 month ago

    Thank you very much Amanda.

  • The doctors advised me that I should not attempt to swallow food or liquid by mouth anymore because of the risk of choking and aspiration pneumonia. They did a swallow test at the hospital in March when I had surgery to place the peg feeding tube in my stomach, and they said just about everything I swallowed was going into my airway and into my lungs.

  • Walter changed their profile picture 1 month ago

  • Walter changed their profile picture 1 month ago

  • I have to rely on my peg feeding  tube completely now for all my nutrition since I am unable to swallow food or water without choking or aspiration. Not only the swallowing process is a problem, but my mouth and tongue do not work very well. I have very little control of my mouth or lips. If I try to place food or water in my mouth it comes right…[Read more]

  • Thank you for the information Elizabeth. I definitely need to look into getting a cough assist machine and suction device. They sound like they would be very helpful in the control of my mucus and breathing problems.

  • Thank you Walter for the information. No, I don’t have a cough assist machine. I have heard of Mucinex, but have not tried it. I will try to add more water to my feeding tube. I add some water before and after each feeding to flush the feeding tube. Thank you.

  • Thank you Elizabeth. I live in West Central Illinois near Quincy.

  • Thank you Dagmar. I will check into the link you provided.

  • Hello: My diagnosis has not been confirmed yet, but my neurologist said he was sure I have ALS. I need one more test called the Nerve Test to confirm it. My symptoms started about 2 years ago with difficulty swallowing and slurred speech. I delayed going to a doctor thinking it was acid reflux possibly and would get better. I also had gradual…[Read more]

  • Walter posted a new activity comment 1 month ago

    Hello Dagmar: My diagnosis has not been confirmed yet, but my neurologist said he was sure I have ALS. I need one more test called the Nerve Test to confirm it. My symptoms started about 2 years ago with difficulty swallowing and slurred speech. I delayed going to a doctor thinking it was acid reflux possibly and would get better. I also had…[Read more]

  • Walter became a registered member 1 month ago

    • Hello Walter,

      Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns, or…[Read more]

    • Hello Dagmar: My diagnosis has not been confirmed yet, but my neurologist said he was sure I have ALS. I need one more test called the Nerve Test to confirm it. My symptoms started about 2 years ago with difficulty swallowing and slurred speech. I delayed going to a doctor thinking it was acid reflux possibly and would get better. I also had…[Read more]

    • Hello Walter, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]

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