@adit
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Aditya jha posted an update 2 years, 4 months ago
Ms. Dagmar the doctor advised my dad to get rilutor 50mg and aavron 3 months and 6 months respectively but he is just getting worse he also doesn’t seem interested in doing physiotherapy
It’s like his body is present but not his mind can any one let me know what so that he seem intrested in physiotherapy
He was diagnosed earlier this…[Read more] -
Aditya jha became a registered member 2 years, 5 months ago
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Hello Aditya,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns, or…[Read more]
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Hello Aditya, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]
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Hello Aditya, I am sorry that your father has ALS and is not doing well. The medications his doctor prescribed seem appropriate and reasonable. But know that both medications work slowly, and take time. He also needs time to emotionally process having ALS – – most every patient feels negative and low for quite some time. Please read some of the…[Read more]