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Thank you, Dagmar!

Jennifer, the updated link is:

ALS Patients Can Get Medicare Cover for Home Healthcare

Hi, the link to Rick Lobus’s article is broken – an “oops!” message saying article can’t be found comes up.Would you be able to repost it?
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<h1 class=”page-title”>”ALS Patients Can Get Medicare Cover For Home Healthcare”</h1>
Thank you,

Jennifer

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Bill – – yes, it’s too bad that Speech therapists in the clinics don’t offer voice techniques earlier and instead focus on tech and AI communication solutions. Patients should be more assertive and ask for specific voice techniques and not be sidelined into giving up so soon.

I’m sorry you are dealing with tongue atrophy – – in your case, the…[Read more]

Amanda and Dagmar, thank you for all that you do to help and support pALS and their caregivers!

Well my hat’s off to both you and Amanda for the job you do! I always enjoy perusing the posts and replies here in this forum, and the excellent moderation you both provide is a big part of it.
Thank you!

Hi, Scotty,

Is your BiL getting guidance on assisted technologies for communication that might help him if he loses his ability to type? I’m thinking re: eye gaze technology. I don’t have experience with it; just aware of it, so don’t know if it would be effective for him or not.

Best wishes to you, your BiL and your family.

Thank you Dagmar. We have so much in common. I appreciate your writing!  I started slurring words 6 years ago, and have tried everything to keep my voice.   I have been pretty successful so far. I do know it’s getting harder but I am happy to still be here!  Lisa

Thanks Dagmar,

I’ve had two visits with speech therapy plus lots of clinic visits. I received no advice on improving speech. Mostly telling about technology. My problem is tongue atrophy plus heavy mucus at times. Tongue much worse when tired.I had recently added a good iPad text to speech app to learn.

Oh Dagmar, this article is perfect! It is clear all to often that many of our members do not know what are responsibilities are or what we do each day! What started off as a part-time job, an hour or less a day each week, has turned into something that I live for each day! I spend much more time logging on, emailing, researching and reaching out…[Read more]