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Hallo Jean-Pierre

Na das sind ja keine tollen Aussichten.  Bis zu vier Komorbiditäten zu haben.

My brother, diagnosed earlier this year with bulbar ALS, had a stem cell transplant for multiple myeloma maybe four years ago? I.E, complete eradication of the immune system followed by receiving an autologous bone marrow transplant.

Might this have precipitated the onset of ALS? Or did it slow down the progression?

Rhetorical question.

I have ALS and have experienced stem cell therapy. I went to Giostrar in Mexico which I found to be incredibly professional. They are staffed with doctors anaesthesiologist nurses etc. They are attached to their own lab where they cultivate the cells just prior to injecting them into their patients. I started off with a three week treatment where…[Read more]

> They may be withheld by customs.
TUDCA is not a regulated drug, it’s a supplement.
Yet you might have to pay VAT in addition to the Amazon public price.

> Hab von Anfang an, die Diagnose in frage gestellt.

People with Parkinson disease have also severe constipation, and C9orf72 is also found in some people with Parkinson.

All these diseases (ALS, Alzheimer, Parkinson, FTD, Huntington, etc are not clear cut as in textbooks, each case is somewhere in a spectrum of diseases. One scientific article…[Read more]

GI Funktion Magen Darm… Ja da habe ich brutal Probleme immer steinharter Stuhlgang, da geht nix ohne Laxoperal oder Anorganischer Schwefel nur dann geht was.

Ich glaub langsam auch an eine andere form von ALS. Hab von Anfang an, die Diagnose in frage gestellt.

I went through the whole gamut: vitamin defficiency as I’d become vegan; nerve damage from surgery & numerous traumatic injuries; arthritis in my neck; damage caused by ‘bare-foot’ running.

What occurs to me now is that no GP or neurologist asked until I had a confirmed diagnosis if family members died from ALS or early-onset dementia. I did keep…[Read more]

> Was ist GI Funktion???
Gastro-Intestinal
(Magen-Darmtrakt)

Was ist GI Funktion???

<p style=”text-align: left;”>I had long consult at the neuro-muscular clinic and Cleveland Clinic yesterday.</p>
The first thing the resident said was “wow, you have a chart.” I said yes it is a mess and we talked extensively about it.

Then, he gave the most organized and complete Neuro exam I have ever had.

Surprise! It confirmed everything I…[Read more]

It seems that Nuticost brand is not available in EU. I have access to Amazon.com (US site) and could buy it there but I’m afraid that it’s not allowed to get them imported into The Netherlands (EU). They may be withheld by customs..

I did find some alternative TUDCA brands though but none of them seems too legit (Brawn nutrition, Hepatica / DG…[Read more]

In German’s Amazon there are two brands of TUDCA.
In Netherland’s Amazon there is one brand: “TUDCA Liver Support”

Thanks Mark & Carol!

I have ordered Theracurmin, will soon receive that and will start. I am seeing actually good effects of just turmeric + pepper in warm water – three times a day. I am sure Theracurmin will be even better.

For any acid reflux / digestion issues, I am taking all natural Trifala churan (powder) – one tea spoon after dinner,…[Read more]

I would like to take Nutricost TUDCA and Theracurmin HP as in the trials, but having difficulties purchasing them in Europe. Does anyone know of any alternatives that are available in EU / Netherlands? Or ways to purchase and ship these from US in bulk? Where do you get your supplements from?