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Bravo to you and your yoga instructor, Marianne!

Yoga, meditation and rebounding…. now, you’re beginning to sound like me 🙂

(hint: on the rebounder I do “soggy walking” – – keeping my feet on the surface. This helps my legs practice the L-R-L-R motion, and my brain is happy thinking I’m really walking)

In Non-Covid times, I attend a group yoga class twice weekly.  The instructor is now offering 1:1 sessions for same price.  Blessing in disquise for me.  I have been able to tell her about my ALS and limitations.  She has tailored sessions for me and offered meditative readings that are helpful.  She is a true professional and my angel!  And Dagma…[Read more]

I take Neudexta 2 a day. Helps speech and salivation. Seems to level emotions, thus allowing to talk without fear to not been understood.

i stopped for one week to verify if was really Neudexta helping or a change in symptoms…..huge difference!

is expensive but works.

ps: at the Neudexta web site i was able to find a coupon that lowered…[Read more]

This is a great column! One to share with non-ALS friends.

These are a few things I realize I took for granted (and miss). I look forward to doing them again in 4-weeks!

Being in the middle of a crowd, hugging friends, eating dinner in a restaurant, a day without hand gel, attend a meeting of my fiber club and mosey around the shopping mall.

I also use meditation, specifically the “Calm” app. I will investigate Mindfulness Meditation and also the Hallow app that John recommended. Thanks so much for these recommendations!

I’ll admit that, I am “COVID-out”!!

Yes, I’m still addicted to wanting the latest news ( a good case of FOMO!) and still practicing all the self-precautions. But, whoo-wee… it’s enough! And tonight was the announcement we’re to keep at it til April 30th.

My positive things? – – – I am doubling down on mental/physical self-care:  making sure I…[Read more]

Suzanne, you are so lucky to still have a pool open to use! 🙂

Since I normally “work” (writing my column & blogs) from home, the shelter-in-place mandate didn’t change much for me. Except I miss the occasional outings to the grocery store and restaurants. Now, I have to create time to add exercises to make up for these “incidental movement…[Read more]

Thank you Kasper for sharing your experience with Nuedexta. I’m glad you’ve found it helpful.

John, thank you for suggesting meditation!

Learning how to, and practicing, calming the mind is so important during this challenging time. I also enjoy using the app “Calm,” also do the meditations from Jon Kabat-Zinn PhD. , founder of Mindfulness Meditation. (Google his name).

It’d be interested in finding out how many of our members besides…[Read more]

I take it in the afternoon around 3 pm.  I only wish I did it sooner.