July 16, 2018July 16, 2018
Boosting Protein with Role in Getting Nutrients to Cells Prevented Muscle Wasting in ALS Mice, Study Finds
News
Restoring or artificially raising levels of a protein found in the spinal cord, mitofusin 2, worked to prevent nerve ... Read more
July 11, 2018July 11, 2018
Right to Try vs. Right to Say No: An Open Letter to Lawmakers
Columns, Notes From the ALS Front - a Column by Rick Jobus
Dear Congress, The recently enacted federal Right to Try Law (RTT) is really a “Right to Ask” law. And, for ... Read more
July 11, 2018July 11, 2018
Ibudilast Added to Rilutek Improves Function in ALS Patients, Phase 2 Trial Shows
News
Treatment of amyotrophic lateral sclerosis (ALS) with investigational compound ibudilast (MN-166) as an add-on to Rilutek (riluzole) ... Read more
July 10, 2018July 10, 2018
Phase 3 Trial of Oral Levosimendan as Respiratory Treatment for ALS Recruiting in US, Europe and Australia
News
A new Phase 3 trial evaluating levosimendan (also known as ODM-109), an oral treatment by Orion for breathing problems in amyotrophic ... Read more
July 9, 2018July 9, 2018
2 miRNAs Controlling Genes Involved in ALS, and Possible Way of Regulating Them, Identified in Study
News
Sporadic and familial forms of amyotrophic lateral sclerosis (ALS) are associated the two microRNA molecules that are downregulated — ... Read more
July 6, 2018July 6, 2018
FDA Approves Xeomin for Excessive Drooling, Common in ALS Patients
News
Xeomin (incobotulinumtoxinA) has been approved by the U.S. Food and Drug Administration for the treatment of chronic sialorrhea, or excessive drooling, a ... Read more
July 5, 2018July 5, 2018
NurOwn Now Being Produced at 2nd U.S. Manufacturing Site, Brainstorm Announces
News
BrainStorm Cell Therapeutics has partnered with the Connell and O’Reilly Families Cell Manipulation Core Facility at Dana-Farber Cancer Institute ... Read more
July 3, 2018June 29, 2018
Minding Your Health While Living with ALS
Columns, Living Well with ALS - a column by Dagmar Munn
For most of my adult life, keeping track of my health was easy peasy — at least, it was ... Read more
July 3, 2018July 3, 2018
Skyhawk and Celgene Partner to Develop Innovative Treatments for ALS, Other Diseases
News
Skyhawk Therapeutics and Celgene have agreed to collaborate for five years to discover, develop, and commercialize innovative small molecule ... Read more
July 2, 2018June 28, 2018
Mighty Mind Strategies for Managing Pain
Columns, The Mighty Mind - a Column by Rachel Doboga
Over the past year, I have become an expert in pain — something I never wanted to be. However, ... Read more
July 2, 2018July 2, 2018
Global Project MinE Aims to Identify Rare Gene Variants in ALS
News
Rare gene mutations in amyotrophic lateral sclerosis (ALS) will be increasingly identified with large-scale, international studies, findings from Project ... Read more
June 29, 2018June 29, 2018
Brainstorm Decides Not to Offer Investigational ALS Therapy NurOwn Under Right to Try Law
News
NurOwn, an amyotrophic lateral sclerosis (ALS) treatment candidate, will not be made available under the new Right to Try Act at this time ... Read more

July 16, 2018July 16, 2018

Boosting Protein with Role in Getting Nutrients to Cells Prevented Muscle Wasting in ALS Mice, Study Finds

News

Restoring or artificially raising levels of a protein found in the spinal cord, mitofusin 2, worked to prevent nerve degeneration, muscle atrophy, and paralysis in a mouse model of ... Read more

July 11, 2018July 11, 2018

Right to Try vs. Right to Say No: An Open Letter to Lawmakers

Columns, Notes From the ALS Front - a Column by Rick Jobus

Dear Congress, The recently enacted federal Right to Try Law (RTT) is really a “Right to Ask” law. And, for the pharmaceutical companies, it’s a “Right to Say No.” Which ... Read more

July 11, 2018July 11, 2018

Ibudilast Added to Rilutek Improves Function in ALS Patients, Phase 2 Trial Shows

News

Treatment of amyotrophic lateral sclerosis (ALS) with investigational compound ibudilast (MN-166) as an add-on to Rilutek (riluzole) improves patients’ functional activity, quality of life, and muscle strength, data from MediciNova’s ... Read more

July 10, 2018July 10, 2018

Phase 3 Trial of Oral Levosimendan as Respiratory Treatment for ALS Recruiting in US, Europe and Australia

News

A new Phase 3 trial evaluating levosimendan (also known as ODM-109), an oral treatment by Orion for breathing problems in amyotrophic lateral sclerosis (ALS), has recruited its first patients, the Finnish ... Read more

July 9, 2018July 9, 2018

2 miRNAs Controlling Genes Involved in ALS, and Possible Way of Regulating Them, Identified in Study

News

Sporadic and familial forms of amyotrophic lateral sclerosis (ALS) are associated the two microRNA molecules that are downregulated — meaning these molecules, involved in the protein production of certain ... Read more

July 6, 2018July 6, 2018

FDA Approves Xeomin for Excessive Drooling, Common in ALS Patients

News

Xeomin (incobotulinumtoxinA) has been approved by the U.S. Food and Drug Administration for the treatment of chronic sialorrhea, or excessive drooling, a common condition in amyotrophic lateral sclerosis (ALS) patients. Merz Neurosciences, ... Read more

July 5, 2018July 5, 2018

NurOwn Now Being Produced at 2nd U.S. Manufacturing Site, Brainstorm Announces

News

BrainStorm Cell Therapeutics has partnered with the Connell and O’Reilly Families Cell Manipulation Core Facility at Dana-Farber Cancer Institute for the manufacturing of NurOwn, a therapy candidate for amyotrophic ... Read more

July 3, 2018June 29, 2018

Minding Your Health While Living with ALS

Columns, Living Well with ALS - a column by Dagmar Munn

For most of my adult life, keeping track of my health was easy peasy — at least, it was before I had ALS. I always followed the recommended guidelines ... Read more

July 3, 2018July 3, 2018

Skyhawk and Celgene Partner to Develop Innovative Treatments for ALS, Other Diseases

News

Skyhawk Therapeutics and Celgene have agreed to collaborate for five years to discover, develop, and commercialize innovative small molecule treatment options for neurological diseases with high unmet medical needs, ... Read more

July 2, 2018June 28, 2018

Mighty Mind Strategies for Managing Pain

Columns, The Mighty Mind - a Column by Rachel Doboga

Over the past year, I have become an expert in pain — something I never wanted to be. However, daily severe muscle spasms, cramping, one surgery, and an emergency room ... Read more

July 2, 2018July 2, 2018

Global Project MinE Aims to Identify Rare Gene Variants in ALS

News

Rare gene mutations in amyotrophic lateral sclerosis (ALS) will be increasingly identified with large-scale, international studies, findings from Project MinE suggest. The study, “Project MinE: study design and pilot analyses ... Read more

June 29, 2018June 29, 2018

Brainstorm Decides Not to Offer Investigational ALS Therapy NurOwn Under Right to Try Law

News

NurOwn, an amyotrophic lateral sclerosis (ALS) treatment candidate, will not be made available under the new Right to Try Act at this time due to a lack of funding alternatives for patients, BrainStorm Cell Therapeutics announced ... Read more