Among people living with amyotrophic lateral sclerosis (ALS), requests to be referred for medical assistance in dying, known as MAiD, may have more to do with individual preferences about life-sustaining interventions than disease severity. That’s according to a new Canadian study showing that people with ALS using noninvasive…
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When my late husband, Jeff, was diagnosed with ALS in the fall of 2018, there were many unknowns. We didn’t know how fast or slow his progression would be. We didn’t know the course that ALS would take in his body, or when we would need interventions like a…
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A few months after my husband Todd’s ALS diagnosis, we traveled with our children from our home in southeast Wisconsin to meet up with Todd’s sister and brother-in-law at a rented condo overlooking Lake Delton in Wisconsin Dells. We had recently returned from Mayo Clinic in Minnesota, where Todd…
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Enrollment of adults with mild-to-moderate amyotrophic lateral sclerosis (ALS) has been completed in a clinical trial testing PHENOGENE-1A as an add-on treatment for the neurodegenerative disease. Enrollment of about 105 participants in the Phase 2b trial (NCT07142291) wrapped up in late August, and they were randomly assigned to…
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Nearly 500 people gathered in Orlando, Florida, and more than 1,900 joined them online to discuss advances in amyotrophic lateral sclerosis (ALS) research and care and community goals for the future at the third annual ALS Nexus Conference. Clinicians, researchers, patients, caregivers, advocates, industry partners, and others in the…
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When I was diagnosed with ALS, my first thought wasn’t about me. It was about my children. I’m a mother of six; one of my children has passed away, and today my family and I are building a new life in New York after moving from Puerto Rico. I wondered how I would…
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People with amyotrophic lateral sclerosis (ALS) who are exposed to high levels of certain pollutants in the years before disease onset have worse survival outcomes, a new study shows. The findings add to building evidence that pollution and environmental toxins can affect the course of ALS. Researchers are calling…
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Becoming educated and informed about ALS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your ALS journey.
There is no cure for ALS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
