June 21, 2018June 21, 2018
Online Forums Source of Empathy and Support for ALS and Other Patients, Study Says
News
Online health forums offers patients with chronic diseases a way to share experiences and develop connections with others in ... Read more
June 20, 2018June 19, 2018
Keeping the Faith
Columns, Notes From the ALS Front - a Column by Rick Jobus
ALS has been a blessing to me. You read that right — a blessing. Oh, it has been many ... Read more
June 20, 2018June 20, 2018
AcuraStem Awarded $3.7M to Develop Gene-related Therapy for ALS, Frontotemporal Dementia
News
The National Institute of Neurological Disorders and Stroke (NINDS) awarded $3.7 million to AcuraStem to support the development of a ... Read more
June 19, 2018June 19, 2018
ALS May Have Negative Affect on Muscles Necessary for Chewing, Study Finds
News
Patients with amyotrophic lateral sclerosis (ALS) show alterations in the activity of their masticatory (jaw) muscles, impairing their ability ... Read more
June 18, 2018June 18, 2018
Kentucky Study Looking to Treat Genetic Form of ALS with Clusters in Appalachia
News
A university-led clinical trial will assess the therapeutic effect of Celestone (betamethasone) injections in amyotrophic lateral sclerosis (ALS) ... Read more
June 15, 2018June 15, 2018
Flex Pharma Stops Phase 2 Trial of FLX-787 to Ease Muscle Cramps in ALS Patients
News
Flex Pharma announced that it is stopping Phase 2 clinical trials of its investigational compound to ease muscle cramps, FLX-787, in ... Read more
June 14, 2018June 14, 2018
Prediction Model May Help Personalize Survival Prognosis in ALS Patients, Researchers Say
News
Researchers have developed a personalized, non-invasive model that uses a set of characteristics, easily obtained at diagnosis, to predict ... Read more
June 13, 2018June 13, 2018
Higher Risk of Pressure Sores in ALS Patients; Women, Young More Vulnerable, Study Finds
News
Patients with amyotrophic lateral sclerosis (ALS) are at increased risk for having pressure sores (PrS), according to a recent study. ... Read more
June 12, 2018June 12, 2018
Changes in Brain Structure, Blood Flow Linked to Varying Cognitive Deficits in ALS
News
Cognitive deficits associated with amyotrophic lateral sclerosis (ALS) are linked to a particular pattern of abnormal changes and altered ... Read more
June 11, 2018June 11, 2018
Phase 1/2a Trial Recruiting ALS Patients to Test AstroRx, Potential New Stem Cell Therapy
News
The biotech company Kadimastem is recruiting for a Phase 1/2a clinical trial to test the safety and effectiveness of its ... Read more
June 8, 2018June 8, 2018
Specific RNA Alterations Key in ALS, Study Suggests
News
Specific alterations in RNA processing are molecular hallmarks of familial and sporadic forms of amyotrophic lateral sclerosis (ALS), a ... Read more
June 7, 2018June 7, 2018
Infusing Treg Immune Cells Has Potential to Slow ALS, Small Study Suggests
News
Results from a Phase 1 clinical trial reveal that giving patients infusions of a specialized immune cell may ... Read more

June 21, 2018June 21, 2018

Online Forums Source of Empathy and Support for ALS and Other Patients, Study Says

News

Online health forums offers patients with chronic diseases a way to share experiences and develop connections with others in a similar situation — gaining access to a community that ... Read more

June 20, 2018June 19, 2018

Keeping the Faith

Columns, Notes From the ALS Front - a Column by Rick Jobus

ALS has been a blessing to me. You read that right — a blessing. Oh, it has been many other things: ordeal, handicap, curse, millstone, scene-stealer, tormentor, humiliator, predator, ... Read more

June 20, 2018June 20, 2018

AcuraStem Awarded $3.7M to Develop Gene-related Therapy for ALS, Frontotemporal Dementia

News

The National Institute of Neurological Disorders and Stroke (NINDS) awarded $3.7 million to AcuraStem to support the development of a small molecule drug to treat C9orf72 gene-related amyotrophic lateral sclerosis (ALS) ... Read more

June 19, 2018June 19, 2018

ALS May Have Negative Affect on Muscles Necessary for Chewing, Study Finds

News

Patients with amyotrophic lateral sclerosis (ALS) show alterations in the activity of their masticatory (jaw) muscles, impairing their ability to chew, according to the results of a small study. ... Read more

June 18, 2018June 18, 2018

Kentucky Study Looking to Treat Genetic Form of ALS with Clusters in Appalachia

News

A university-led clinical trial will assess the therapeutic effect of Celestone (betamethasone) injections in amyotrophic lateral sclerosis (ALS) patients with mutations in the FUS gene — a particular genetic type ... Read more

June 15, 2018June 15, 2018

Flex Pharma Stops Phase 2 Trial of FLX-787 to Ease Muscle Cramps in ALS Patients

News

Flex Pharma announced that it is stopping Phase 2 clinical trials of its investigational compound to ease muscle cramps, FLX-787, in patients with amyotrophic lateral sclerosis (ALS) and Charcot-Marie-Tooth disease (CMT). The ... Read more

June 14, 2018June 14, 2018

Prediction Model May Help Personalize Survival Prognosis in ALS Patients, Researchers Say

News

Researchers have developed a personalized, non-invasive model that uses a set of characteristics, easily obtained at diagnosis, to predict survival in patients with amyotrophic lateral sclerosis (ALS). The study ... Read more

June 13, 2018June 13, 2018

Higher Risk of Pressure Sores in ALS Patients; Women, Young More Vulnerable, Study Finds

News

Patients with amyotrophic lateral sclerosis (ALS) are at increased risk for having pressure sores (PrS), according to a recent study. This risk is especially high for women and young patients, ... Read more

June 12, 2018June 12, 2018

Changes in Brain Structure, Blood Flow Linked to Varying Cognitive Deficits in ALS

News

Cognitive deficits associated with amyotrophic lateral sclerosis (ALS) are linked to a particular pattern of abnormal changes and altered blood flow in specific brain regions, a study shows. The ... Read more

June 11, 2018June 11, 2018

Phase 1/2a Trial Recruiting ALS Patients to Test AstroRx, Potential New Stem Cell Therapy

News

The biotech company Kadimastem is recruiting for a Phase 1/2a clinical trial to test the safety and effectiveness of its leading cell therapy, called AstroRx, in patients with amyotrophic lateral sclerosis ... Read more

June 8, 2018June 8, 2018

Specific RNA Alterations Key in ALS, Study Suggests

News

Specific alterations in RNA processing are molecular hallmarks of familial and sporadic forms of amyotrophic lateral sclerosis (ALS), a new study suggests. This research might lead to more discoveries about ... Read more

June 7, 2018June 7, 2018

Infusing Treg Immune Cells Has Potential to Slow ALS, Small Study Suggests

News

Results from a Phase 1 clinical trial reveal that giving patients infusions of a specialized immune cell may be a viable option to safely slow the progression of amyotrophic ... Read more