Updates

August 20, 2020August 25, 2020
Learn More About ALS and Feeding Tubes [Sponsored Article]
September 21, 2020September 21, 2020
Novus Acquires Anelixis, Plans to Move AT-1501 Into Phase 2 Trial for ALS

Novus Therapeutics has acquired Anelixis Therapeutics and its portfolio, including the antibody AT-1501, a potential treatment for amyotrophic lateral sclerosis (ALS) that the company is planning ... Read more
September 21, 2020September 21, 2020
Former NFL Player, Microsoft Team Up to Make Technology More Accessible

Microsoft opened its 2014 Super Bowl ad with the question: “What is technology?” As Steve Gleason, an ex-New Orleans Saints safety later diagnosed with amyotrophic lateral ... Read more
September 17, 2020September 14, 2020
The Burden of Knowing the Future

Lulu Wang’s film “The Farewell” is based on an actual lie. The 2019 comedic drama looks at a family’s decision to keep their matriarch ... Read more
September 17, 2020September 21, 2020
Investigational Treatment IPL344 Safely Slows ALS Progression in Small Phase 1/2a Trial

IPL344, Immunity Pharma‘s investigational therapy for amyotrophic lateral sclerosis (ALS), has a positive safety and tolerability profile and slows disease progression by about 50%, according ... Read more
September 16, 2020September 16, 2020
Dosing Begins in Phase 2a Study of ALZT-OP1a for Mild-to-Moderate ALS

The first patient has been dosed in a Phase 2a clinical trial evaluating the safety and effectiveness of ALZT-OP1a, a dry-powder inhaled formulation of ... Read more

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May 4, 2018May 4, 2018

Hypermetabolism in ALS Linked to Greater Functional Decline and Shorter Survival, Study Says

News

Patients with amyotrophic lateral sclerosis (ALS) show high prevalence of hypermetabolism, which leads to more rapid physical decline and earlier death, new study reports. The research, “Hypermetabolism in ALS is associated with greater functional decline and shorter survival,” appeared ... Read more

Updates

Learn More About ALS and Feeding Tubes [Sponsored Article]

Novus Acquires Anelixis, Plans to Move AT-1501 Into Phase 2 Trial for ALS

The Burden of Knowing the Future

Investigational Treatment IPL344 Safely Slows ALS Progression in Small Phase 1/2a Trial

Dosing Begins in Phase 2a Study of ALZT-OP1a for Mild-to-Moderate ALS

Things to Do While Waiting for a Cure

Helixmith Planning Phase 2 Trial of Engensis, Potential Gene Therapy for ALS

PrimeC Shows Potential to Slow ALS Progression, Interim Data Reveal

Study Describes New Compounds With Potential to Treat ALS

Gaining Perspective Through Journaling

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ALS Community Invited to Join Petition Calling on FDA to Approve AMX0035

Learning to Pivot When Living With ALS

Cause of WWII-era ALS Cluster on Guam May Be Younger Cycad Seeds

First Patient Enrolled in Phase 1 Gene Therapy Study in Ireland

AMX0035 Safe, Effective in Slowing ALS Functional Decline, Trial Data Shows

Phase 3 Study of Oral Edaravone for ALS Resumes Patient Enrollment

Same But Different Photo Contest Celebrates People With Rare Diseases

Going With My Gut

ILB, Potential ALS Therapy in Phase 2 Trial,Named Orphan Drug in Europe

Prosetin Granted Orphan Drug Designation for ALS

Pharnext’s PXT864 Shows Promising Neuroprotective Effects in ALS, Early Study Shows

Finding Sweetness in the Eye of the Storm

Health Insurance, Cost of ALS Care Add to Disease Burden in US, Survey Finds

Getting Back to the Basics of Mindfulness

New Telehealth App Connects Those With Motor Neuron Disease to Carers in UK

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

UK Program Aims to Help Children of Families Touched by ALS

NurOwn Promotes Immunoregulation, Lessens Inflammation, Preclinical Study Shows

Taking Care of Unfinished Business

Clinical Research ‘Dashboard’ Brings Latest on ALS Trials to Patients

Learning to Cherish a Room With a View

Jane Calmes ALS Scholarship Awards Given to 94 Students Across US

3 New Ways to Stay Energized

Inhibition of RAGE Protein Lessens ALS Symptoms in Mice, Study Finds

Hypermetabolism in ALS Linked to Greater Functional Decline and Shorter Survival, Study Says

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Novus Acquires Anelixis, Plans to Move AT-1501 Into Phase 2 Trial for ALS

Former NFL Player, Microsoft Team Up to Make Technology More Accessible

The Burden of Knowing the Future

Investigational Treatment IPL344 Safely Slows ALS Progression in Small Phase 1/2a Trial

Dosing Begins in Phase 2a Study of ALZT-OP1a for Mild-to-Moderate ALS

Things to Do While Waiting for a Cure

Helixmith Planning Phase 2 Trial of Engensis, Potential Gene Therapy for ALS

PrimeC Shows Potential to Slow ALS Progression, Interim Data Reveal

Study Describes New Compounds With Potential to Treat ALS

Gaining Perspective Through Journaling

Subscribe to our mailing list

ALS Community Invited to Join Petition Calling on FDA to Approve AMX0035

Learning to Pivot When Living With ALS

Cause of WWII-era ALS Cluster on Guam May Be Younger Cycad Seeds

First Patient Enrolled in Phase 1 Gene Therapy Study in Ireland

AMX0035 Safe, Effective in Slowing ALS Functional Decline, Trial Data Shows

Phase 3 Study of Oral Edaravone for ALS Resumes Patient Enrollment

Same But Different Photo Contest Celebrates People With Rare Diseases

Going With My Gut

ILB, Potential ALS Therapy in Phase 2 Trial,Named Orphan Drug in Europe

Prosetin Granted Orphan Drug Designation for ALS

Pharnext’s PXT864 Shows Promising Neuroprotective Effects in ALS, Early Study Shows

Finding Sweetness in the Eye of the Storm

Health Insurance, Cost of ALS Care Add to Disease Burden in US, Survey Finds

Getting Back to the Basics of Mindfulness

New Telehealth App Connects Those With Motor Neuron Disease to Carers in UK

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

UK Program Aims to Help Children of Families Touched by ALS

NurOwn Promotes Immunoregulation, Lessens Inflammation, Preclinical Study Shows

Taking Care of Unfinished Business

Clinical Research ‘Dashboard’ Brings Latest on ALS Trials to Patients

Learning to Cherish a Room With a View

Jane Calmes ALS Scholarship Awards Given to 94 Students Across US

3 New Ways to Stay Energized

Inhibition of RAGE Protein Lessens ALS Symptoms in Mice, Study Finds

Pin It on Pinterest