Updates

September 23, 2020September 23, 2020
Using Liquid Medications with Feeding Tubes [Sponsored Article]
October 19, 2020October 19, 2020
AMX0035 Significantly Extends ALS Patients’ Lives, Long-term Data Show

Treatment with AMX0035, Amylyx’s experimental oral therapy, significantly extends the lives of amyotrophic lateral sclerosis (ALS) patients with rapidly progressing disease, according to ... Read more
October 16, 2020October 16, 2020
Activities and Events Underway for AAC Awareness Month

October is International Augmentative and Alternative Communication (AAC) Awareness Month, set aside annually to inform the public about how amyotrophic lateral sclerosis (ALS) patients ... Read more
October 15, 2020October 15, 2020
Our Bittersweet Family Life

We had an unseasonably warm fall day while Todd’s sister was visiting from out of state last week. I asked Todd if he’d want ... Read more
October 15, 2020October 15, 2020
€1 Million Contest Seeks to Improve Functionality in ALS

With a €1 million (about $1.1 million) prize being offered, researchers are invited to join a challenge that seeks to give people with motor ... Read more
October 14, 2020October 12, 2020
What’s Next After Your Ship Comes In?

“What do we do now?” That line from the 1972 movie “The Candidate” came to mind recently. The movie stars Robert Redford as a ... Read more

Subscribe to our mailing list

Get regular updates delivered to your email box.

Thanks! Please check your email for a confirmation email.

May 4, 2018May 4, 2018

Hypermetabolism in ALS Linked to Greater Functional Decline and Shorter Survival, Study Says

News

Patients with amyotrophic lateral sclerosis (ALS) show high prevalence of hypermetabolism, which leads to more rapid physical decline and earlier death, new study reports. The research, “Hypermetabolism in ALS is associated with greater functional decline and shorter survival,” appeared ... Read more

AMX0035 Significantly Extends ALS Patients’ Lives, Long-term Data Show

Activities and Events Underway for AAC Awareness Month

Our Bittersweet Family Life

€1 Million Contest Seeks to Improve Functionality in ALS

What’s Next After Your Ship Comes In?

Nerve Injury Progressing in Top-down Manner Evident in Bulbar ALS

Phase 2 Study of Pegcetacoplan in Recently Diagnosed Patients Opens

BrainStorm Details Phase 3 Trial Design of NurOwn for Rapidly Progressing ALS

Libra Therapeutics Launches With Pipeline of 3 ALS Treatment Candidates

Creativity Is a Life-giving Activity

Scribe, Biogen Partner to Develop Gene Therapy for ALS, Other Neurological Diseases

Subscribe to our mailing list

Applause Springs Forth From a Crash Landing

MDA Issues $1.6M in Grants to Boost ALS Research

Evaluating What’s Working in My Life, and What’s Not

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

Target ALS, Spartan Team Up on ‘The Toughest Challenge’ for ALS Research

Saphyr Technology First to Measure DNA Expansions in Key ALS Gene

Finding Strength to Keep Going

Creatine Kinase Protein Levels Linked to Better Survival in ALS Patients

A Surprise Course in Life Support 101

Large Genetic Analysis Newly Links 5 Genes to Sporadic ALS

Why Ruth Bader Ginsburg Is My ALS Role Model

Impaired RNA Quality Control May Underlie Neurodegeneration in People with C9orf72 Mutations

MND Association Campaigning in UK for More Accessible Homes for ALS, MND Patients

University of Sheffield Partners With Aclipse to Advance ALS Treatment M102 to Clinical Trial

Finding My People

Japan Grants Patent to Brainstorm Covering Technique for NurOwn

FightMND Grant Awards Further Work Into ALS, Other Motor Neuron Diseases

When We Do Something, Something Happens

$1.9M NIH Grant Supports Study of Ways to Preserve Swallowing, Breathing

Novus Acquires Anelixis, Plans to Move AT-1501 Into Phase 2 Trial for ALS

Former NFL Player, Microsoft Team Up to Make Technology More Accessible

The Burden of Knowing the Future

Investigational Treatment IPL344 Safely Slows ALS Progression in Small Phase 1/2a Trial

Dosing Begins in Phase 2a Study of ALZT-OP1a for Mild-to-Moderate ALS

Things to Do While Waiting for a Cure

Helixmith Planning Phase 2 Trial of Engensis, Potential Gene Therapy for ALS

PrimeC Shows Potential to Slow ALS Progression, Interim Data Reveal

Study Describes New Compounds With Potential to Treat ALS

Pin It on Pinterest