News Study in Twins Links Age-Related Changes in DNA Methylation with ALS

News Scientists Recreate Human Peripheral Nerve Cells’ Interactions on a Chip

Columns, Joyful Sorrow - a Column by Kristin Neva Faced with Incurable Disease, Fighting Is Winning

News Prostate Gland Enlargement Does Not Increase ALS Risk, Study Reports

News Macedonian Gaucher Activist Publicizes Plight of Rare Disease Patients

Columns, Notes From the ALS Front - a Column by Rick Jobus Viewing Life and ALS Through a Lou Gehrig Lens

News Add-on Masitinib Slows Progression of ALS, Final Phase 2/3 Trial Results Show

News ALS Posture Impairments May Be Marker for Disease Severity, Study Suggests

News Small-Molecule Compounds ID’d That May Lessen Protein Buildup in Cells Under Stress, an ALS Hallmark

News World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients

Columns, Notes From the ALS Front - a Column by Rick Jobus Navigating the Alternate Dimension of Home Health Services

Columns, Living Well with ALS - a column by Dagmar Munn Even Summer Fun Needs Recovery Time

News Klotho Protein Protects Brains of ALS Mice, Study Suggests

News By Capturing Patients’ Feelings of Dyspnea, DALS-15 Scale May Ably Spot Those Needing Help with Breathing

News Helping Motor Neurons in Spinal Cord Break Down Toxic Proteins as Well as Other Cells Do May Treat ALS, Study Finds

News High Body Mass Index and Weight Gain with Aging Linked to Lower Risk of ALS in Norwegian Population Study

Columns, Joyful Sorrow - a Column by Kristin Neva Sometimes in Parenting, We Decide to Prepare, Not Protect

News Nanoparticles May Help Enhance Therapeutic Potential of Curcumin in Neurodegenerative Diseases, Review Suggests

Columns, Notes From the ALS Front - a Column by Rick Jobus ‘Ode to Joy’: How a 911 Call Recalibrated Me

News Copper-ATSM Prevented Motor Neuron Loss, Reduced Brain Inflammation in Mouse Model of SALS, Study Shows

News Phase 2 Trial Testing H.P. Acthar Gel for ALS Enrolls Half of Patients, Still Recruiting

News NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala

News $2.88M Awarded to Research on How ALS Affects Organs Beyond the Central Nervous System

News Multidisciplinary Care Linked to Increased Survival, Spanish Study Shows

News Eurordis Unveils Integrated-care Initiative for Rare Disease Patients

News Vitamin D Supplements Cannot Prevent Motor Function Decline in ALS Patients, Study Suggests

News Increased Glucose Levels Might Protect Nerve Cells in ALS, Study in Fruit Flies Shows

Columns, Living Well with ALS - a column by Dagmar Munn Changing My Perspective on a Rare Disease

News ACT Support Program Empowers Caregivers to Cope With Distress, Study Says

News Alabama Power Foundation Funds Research into New Therapies for ALS

News ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

News $8 Million Award Will Help Researchers Develop Early Warning Systems for ALS, Other Disorders

News Scientists Use Patient Cells, Chip Technology to Re-create Blood-Brain Barrier Defects

News Restoring Levels of Membralin Protein May Extend Survival in ALS, Mouse Study Suggests

Columns, Living Well with ALS - a column by Dagmar Munn How to Create an Efficient ALS Mindset

News AB Science’s New Masitinib Study Validated by EMA, With Expected Start Later This Year, Company Says

News Ice Bucket Challenge Dramatically Affected Fight Against ALS, Independent Study Reports

News MediciNova Launches Phase 2b/3 Trial of Ibudilast for ALS

News ‘I Am ALS’ Campaign for Better Resources Gains Obama Foundation Support

Columns, Notes From the ALS Front - a Column by Rick Jobus The Boomerang Effect of Raising Awareness

News Electronic App to Monitor Dietary Intake May Benefit ALS Patients, Trial Data Suggest

Columns, Living Well with ALS - a column by Dagmar Munn Conquering the Gap Between ALS Diagnosis and Acceptance

News SOD1 Enzyme Clumps May Expose Cells to DNA Damage in Some ALS Patients, Study Suggests

News Cytokinetics Renews Partnership With ALS Association

News Smartphones May Help Remotely Evaluate Key Clinical Data of ALS, Study Suggests

News Histamine-Related Genes May Become Biomarkers and Therapeutic Targets for ALS, Mouse Study Suggests

Columns, Notes From the ALS Front - a Column by Rick Jobus Join Me in Advancing ALS Awareness Beyond May

News Certain Cholesterol-Lowering Statins May Decrease Risk of ALS, Large Medicare-based Study Suggests

Columns, Living Well with ALS - a column by Dagmar Munn Reframing Our Approach with a New Kind of ALS Diagnosis

News Inaugural ‘Arrest and Extinguish ALS’ Fundraiser Kicks Off in Massachusetts

News Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries

News Transplant of Human Neural Stem Cells into ALS Patients Found Safe in Phase 1 Trial

Columns, Notes From the ALS Front - a Column by Rick Jobus How You Can Get Medicare to Cover Home Healthcare

News Metabolic Changes Do Not Identify Who Will Develop ALS, Study Finds

Columns, Living Well with ALS - a column by Dagmar Munn Working Around My Workarounds

News ALS Type 8 May Cause Cognitive and Behavioral Changes, Leading to Depression, Study Suggests

News Using Antibiotics May Increase Risk of Developing ALS, Swedish Study Suggests

News Phase 3 Trial Results of Tirasemtiv Show Potential of Similar Therapies for ALS, Researchers Say

News Oxford BioDynamics to Use New Technology as Partner in REFINE-ALS Biomarker Study

Columns, Notes From the ALS Front - a Column by Rick Jobus Revisiting Medicare’s Coverage of Home Healthcare

News Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

News Mitsubishi Tanabe Launches Online Tool to Help Patients, Caregivers Find ALS Infusion Services

Columns, Living Well with ALS - a column by Dagmar Munn I’m Learning to Heed My ‘Aha’ Moments While Living with ALS

News ALS Therapy Development Institute Launches #AskMeAboutALS Effort for ALS Awareness Month

News Investigational ALS Treatment NPT520-34 Begins Phase 1 Trial in Healthy Volunteers

News #AANAM — Research Examines Clinical, Genetic Features of ALS Type 4

News #AANAM – Genetic Testing Useful for ALS Diagnosis, with Few Patient Concerns for Impact on Well-being, Studies Report

News #AANAM – Reldesemtiv Reduces Lung Function Decline and ALS Progression, Phase 2 Trial Shows

News #AANAM – Art Therapy Can Improve Psychological Well-Being In ALS Patients, Study Reports

News #AANAM – Vitamin D Activator is Muscle Biomarker in ALS, May Indicate Clinical Progression, Study Contends

News #AANAM — Leukemia Therapy May Also Treat ALS, Mouse Study Suggests

News #AANAM — Radicava May Limit Functional Decline in ALS Patients, Review Study Suggests

News ALS Association Offering New Scholarship Program for Students Affected by ALS

News Investigational Therapy Tofersen Can Reduce Toxic SOD1 Protein Levels in Familial ALS Patients, Study Shows

News Investigational Treatment Masitinib May Help Slow ALS Progression, Preclinical Data Show

News PALS Uplifts the Spirits of Rare-Disease Patients by Offering Free Flights

Columns, Notes From the ALS Front - a Column by Rick Jobus A Look at the ABCs of ALS During ALS Awareness Month

News Mesenchymal Stem Cells from ALS Patients Can Modulate Immune Cells’ Activity, Study Finds

News Changing TDP-43’s Structure Can Halt Neurodegeneration in ALS and FTD, Study Finds

Columns, Living Well with ALS - a column by Dagmar Munn How My AFOs Helped Me Learn to Live with ALS

News Studying Epigenetic Changes Could Lead to New ALS Treatments and Biomarkers, Researchers Suggest

News New Prognosis Model Predicts Risk of Respiratory Insufficiency or Death in ALS Patients, Study Says

News Bicyclists Making 270-mile Trek to Raise Funds for ALS Therapy Development Institute

News Nonprofit Works to Raise Rare Disease Awareness in India, Connect with U.S. Groups

Columns, Notes From the ALS Front - a Column by Rick Jobus Breaking Even with ALS

News FightMND Grant to Fund Phase 2 Study of Investigational Therapy for ALS

News Poor Sleep Common in Newly Diagnosed ALS Patients, Study Shows

News Project ALS and Columbia University Unite in $6.3M Push for ‘Meaningful’ Treatments

News FDA Reviewing New Drug Application for ALS Therapy Riluzole Oral Strips

Columns, Notes From the ALS Front - a Column by Rick Jobus Murphy’s Law and ALS: Plan for Things to Go Wrong and Pray that They Don’t

News FDA Approves Pivotal Phase 2b/3 Trial for Ibudilast in ALS Patients

Columns, Living Well with ALS - a column by Dagmar Munn Staying Current on ALS Research and Learning from the Experts

News Enhanced Autophagy Can Alleviate Issues in ALS-linked Proteins, Study Says

News How Common ALS Mutation Damages Cells and Leads to Toxic Protein Being Produced Detailed in Study

News ALS Patients with Parkinsonian Symptoms Have Differences in Brain Activity, Study Finds

News ALS Mutation Affects Key Pathway, But Asthma Treatment Seen to Offer Protection in Early Study

News Specific Molecular Patterns Could be a Strong Marker for ALS Progression and Prognosis, Study Contends

Columns, Living Well with ALS - a column by Dagmar Munn How I Stop Feeling Overwhelmed by ALS

News MDA Awards More Than $2M to New ALS Research Projects

News ALSO US Project Gives Artistic Platform to Young People Touched by ALS