News New Prognosis Model Predicts Risk of Respiratory Insufficiency or Death in ALS Patients, Study Says

News Bicyclists Making 270-mile Trek to Raise Funds for ALS Therapy Development Institute

News Nonprofit Works to Raise Rare Disease Awareness in India, Connect with U.S. Groups

Columns, Notes From the ALS Front - a Column by Rick Jobus Breaking Even with ALS

News FightMND Grant to Fund Phase 2 Study of Investigational Therapy for ALS

News Poor Sleep Common in Newly Diagnosed ALS Patients, Study Shows

News Project ALS and Columbia University Unite in $6.3M Push for ‘Meaningful’ Treatments

News FDA Reviewing New Drug Application for ALS Therapy Riluzole Oral Strips

Columns, Notes From the ALS Front - a Column by Rick Jobus Murphy’s Law and ALS: Plan for Things to Go Wrong and Pray that They Don’t

News FDA Approves Pivotal Phase 2b/3 Trial for Ibudilast in ALS Patients

Columns, Living Well with ALS - a column by Dagmar Munn Staying Current on ALS Research and Learning from the Experts

News Enhanced Autophagy Can Alleviate Issues in ALS-linked Proteins, Study Says

News How Common ALS Mutation Damages Cells and Leads to Toxic Protein Being Produced Detailed in Study

News ALS Patients with Parkinsonian Symptoms Have Differences in Brain Activity, Study Finds

News ALS Mutation Affects Key Pathway, But Asthma Treatment Seen to Offer Protection in Early Study

News Specific Molecular Patterns Could be a Strong Marker for ALS Progression and Prognosis, Study Contends

Columns, Living Well with ALS - a column by Dagmar Munn How I Stop Feeling Overwhelmed by ALS

News MDA Awards More Than $2M to New ALS Research Projects

News ALSO US Project Gives Artistic Platform to Young People Touched by ALS

News Transplanted Human Bone Marrow Cells Hold Promise as ALS Therapy, Mouse Study Shows

News FightMND Awards Grant to Lauren Sciences to Develop Promising ALS Therapy

Columns, Notes From the ALS Front - a Column by Rick Jobus Perhaps the ‘Dark Ages’ Can Enlighten Us to Think ‘Why Not?’

News Ventilation Support May Explain Why African American ALS Patients Live Longer

Columns, Living Well with ALS - a column by Dagmar Munn Introducing the ALS News Today Forums, Our Hub for Open Dialogue

News Improving Oxygen Supply to the Spinal Cord May Help Prevent ALS Progression, Mouse Study Suggests

News MDA Conference Bringing Neuromuscular Disease Experts to Orlando to Share ‘New Era’ in Treatment, Research

News Certain Blood Markers Linked to Different Stages of ALS, Study Suggests

News MTPA, Massachusetts General Launching Study on Biomarkers of Radicava Response

News ALS Prevalence Higher Among Medicare Population, Study Finds

Columns, Notes From the ALS Front - a Column by Rick Jobus How a Friend’s Strength Taught Me to Cope With ALS

News Zebrafish May Be Useful Experimental Model to Study ALS Associated with Angiogenin Mutations, Study Shows

Columns, Living Well with ALS - a column by Dagmar Munn I’m Not Surprised by ALS’ Link to Depression

News Long-term Exposure to Mercury Linked to ALS in Older Patients, Case Report Suggests

News MRI Can Detect Difficult-to-Assess Muscle Damage in ALS, Small Study Reports

News Patient-derived Cell Model for Use in ALS Research Wins International 3Rs Prize

News Amylyx Completes Patient Recruitment for Phase 2 Study Testing AMX0035 for ALS

Columns, Notes From the ALS Front - a Column by Rick Jobus The Mind’s Ability Knows No Bounds

News Bacteria and Fungi Found in Central Nervous System of ALS Patients, Study Reports

Columns, Living Well with ALS - a column by Dagmar Munn Stepping Out of My ‘ALS Silo’

News, Therapies Nerve-protecting Cells Hold Potential in Development of ALS Therapies

News Young Researcher Awarded for Work on Processes Driving Development of ALS and Frontotemporal Dementia

News Caregiver Burden Tied to Patients’ Level of Apathy in Study

News Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn

News ALS MRI Marker May Facilitate Diagnosis and Monitoring, Study Finds

Columns, Notes From the ALS Front - a Column by Rick Jobus Rediscovering My Fountain of Youth

News Occupational Exposure to Silica May Increase Risk of ALS, Study Suggests

Columns, Living Well with ALS - a column by Dagmar Munn Be Willing to Do Just One Squat

News Stem Cell Therapy Can Improve Survival, Motor Function of Mice with SOD1 Mutation, Study Shows

News Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist

News Markers of Oxidative Stress, Other Factors May Predict Disability in ALS

News User-friendly Tool May Help Patients and Their Doctors to Evaluate ALS Genetic Risk

News Newly Identified GLT8D1 Genetic Variants Linked to Familial ALS, Study Reveals

Columns, Notes From the ALS Front - a Column by Rick Jobus My Pity Party Is Cancelled Indefinitely

News Depression Before ALS Diagnosis Linked to Higher Risk of Cognitive Impairments

Columns, Living Well with ALS - a column by Dagmar Munn Weather Lessons for Living Well with ALS

News NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research

News Rescuing Impaired Skeletal Muscle Function May Help Relieve Some ALS Symptoms

News #AAN2019 – Pro Soccer Players More Likely to Develop ALS, Preliminary Study Says

News Exposure to Environmental Pollution Reduces Survival Rates of ALS Patients, Study Reports

News New Strategy May Prevent Toxic Protein Aggregates Linked to Neurodegenerative Disorders, Study Suggests

Columns, Notes From the ALS Front - a Column by Rick Jobus When ALS Cuts In on the Dance

News ALS-linked Mutations Promote Accumulation of Brain Waste, Fruit Fly Study Shows

Columns, Living Well with ALS - a column by Dagmar Munn Adventures with My Mobility Scooter

News Study Adds to Evidence that Smoking Increases Risk for ALS

News WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April

News Nerve Injury May Trigger Onset, Progression of ALS Symptoms, Rat Study Suggests

News ALS Patients, Caregivers Want to Know More About Genetic Testing, Survey Shows

News Researchers Develop Predictive Platform for Personalized Care of ALS Patients

News Variations of TP73 Gene Contribute to ALS Disease Mechanism, Study Suggests

News Vienna to Host RARE2019 Meeting on Rare Diseases

Columns, Living Well with ALS - a column by Dagmar Munn Are You Fighting Battles or Just Encountering Speed Bumps?

News Vps4 Protein Found to Protect Nerve Cells from Degeneration, Study Shows

News Experimental Gene Therapy Successfully Silences Key ALS Gene C9orf72, Preclinical Studies Show

News Elevated Levels of ‘Bad Cholesterol’ May Be Risk Factor for ALS, Study Reports

Columns, Notes From the ALS Front - a Column by Rick Jobus Desperate Times Lead to Other Measures

News ALS Association’s #VoiceYourLove Campaign Gets Help from TRON, Others

Columns, Living Well with ALS - a column by Dagmar Munn New Projects Help Me to Find Purpose

News Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

News Recumbent Stepper Safe, Feasible Exercise for ALS Patients, Study Suggests

News GPM Investments Campaign Raises More Than $244K for ALS, Other Neuromuscular Diseases

News Antibody Decreases TDP-43 Protein Accumulation Easing ALS Symptoms, Mouse Study Suggests

News New Diagnostic Index Enables Earlier ALS Diagnosis, Study Reports

News Medical Marijuana ‘Can Help Everyone,’ Says Director at Maryland Cannabis Facility

Columns, Notes From the ALS Front - a Column by Rick Jobus A Tribute to My ALS Village People

News Gene Therapy Targeting SARM1 May Inhibit Neuron Degeneration in ALS, Mouse Study Shows

News Orion Launching Extension Study for ALS Patients Enrolled in Phase 3 REFALS Trial

News Protective Role of microRNA May Hold Therapeutic Potential for ALS, Study Shows

News ICD-10 Codes, ‘Really Important’ to Rare Disease Patients, Soon Up for Fresh Consideration

News Loss of Enzyme May Contribute to Motor Neuron Death in ALS, Study Shows

News FDA Revising ‘Draft Guidance’ on Developing Treatments for Rare Diseases

News MAP4K4 Enzyme a Potential Therapeutic Target in ALS, Study Suggests

Columns, Notes From the ALS Front - a Column by Rick Jobus My Answers to Basic ALS Questions

News Researchers Move Closer to Giving Voice to Those Who Cannot Speak

Columns, Living Well with ALS - a column by Dagmar Munn Schoolin’ Google in ALS

News Immune Response at the Root of Motor Neurons’ Death in ALS, Mouse Study Shows

News SIRION Biotech, Denali Therapeutics to Develop New AAV Vectors to Help Treat ALS

News MIROCALS Webinar Will Discuss Novel Approach to ALS Trial Development

News Rare Case of FUS, Tau Coexistence in Sporadic ALS Suggests Potential Biological Interaction

Columns, Notes From the ALS Front - a Column by Rick Jobus In Terms of Care Support, It Takes an ‘ALS Village’

News Ibudilast-Rilutek Therapy Combo Closer to U.S. Patent for ALS and Other Neurodegenerative Diseases