In more than 16 years of living with my husband Todd’s ALS, I’ve fought a lot of battles, and I’ve won a few. When Todd was prescribed at-home physical therapy, he was also eligible for home health aides to assist with showering. I pressed the agency to give…
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It may be possible to diagnose amyotrophic lateral sclerosis (ALS) in part by measuring the amounts of proteins in the tears of a person thought to have the progressive neurological disease. That’s according to a new study from Germany that found that quantifying levels of chitinases, a family of…
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Lily Sander will never forget what it was like to meet other people with neuromuscular diseases the first time she attended Muscular Dystrophy Association (MDA) Summer Camp. Living with Charcot-Marie-Tooth disease, Sander had met only one or two other people with neuromuscular diseases in her city. She was…
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Specialized multidisciplinary care was associated with longer survival in people with amyotrophic lateral sclerosis (ALS), a study found. The benefit was particularly notable among people with limb-onset, or spinal-onset, ALS, whose symptoms typically begin in the limbs. Median survival from symptom onset without invasive ventilation was 44 months with…
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An artificial intelligence (AI) tool called Capsule Networks can distinguish people with amyotrophic lateral sclerosis (ALS) from unaffected individuals, with predictive performance comparable to testing for major known ALS genes, according to a study. The large international research collaboration, which used data from more than 47,000 people across 13…
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Delivering gentle electrical stimulation to the spinal cord can reduce the buildup of toxic TDP-43 protein clumps in a mouse model of amyotrophic lateral sclerosis (ALS), according to a new study. The specific type of stimulation used in the study is known as multisite direct current stimulation (DCS). The…
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A novel treatment for amyotrophic lateral sclerosis (ALS) caused by mutations in a specific gene called CHCHD10 showed promise for slowing disease progression in a clinical trial that tested the therapy in a single individual, as reported in a new study. “I didn’t think I would see this kind of…
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Becoming educated and informed about ALS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your ALS journey.
There is no cure for ALS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
