As I prepared to shower my husband, Todd, who is paralyzed due to ALS, I asked his smart speaker to play “Hurt” by Johnny Cash, and after that finished, I asked it to play similar songs. As I shaved Todd’s head, a song I’d never heard before came…
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Outsee has been selected for a Discovery Award from the Longitude Prize on ALS to support the use of the company’s artificial intelligence (AI)-based platform and large-scale patient genomic data to identify new therapeutic targets for amyotrophic lateral sclerosis (ALS). The Longitude Prize on ALS is a £7.5…
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Statins, medications designed to lower cholesterol, do not meaningfully alter the risk of death or disease progression in people with amyotrophic lateral sclerosis (ALS), according to a study. The researchers said the findings show that ALS itself should not influence doctors’ decisions about prescribing statins. Instead, statins should be…
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Differences in the inflammatory activity of certain immune cells may explain why amyotrophic lateral sclerosis (ALS) progresses faster in some people than others, according to a study. The findings suggest that it may be possible to slow ALS progression by targeting specific inflammatory disease markers. “The intensity of spinal…
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Neurizon Therapeutics has received ethics approval for an Australia-based Phase 1 clinical trial that will test an oral liquid formulation of NUZ-001, which the company is developing for amyotrophic lateral sclerosis (ALS), in healthy volunteers. A tablet version of NUZ-001 is being tested in a Phase 2/3 clinical…
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Today is my late husband’s 66th birthday. ALS took Jeff from our family just five days after he turned 60, and only 19 months after his diagnosis. Hearing the words, “This is ALS,” in the fall of 2018 was shocking and unbelievable. The early weeks and months after his…
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An international team of scientists has developed an RNA-based experimental medicine that has the potential to reduce clumping of the TDP-43 protein, a key molecular feature of amyotrophic lateral sclerosis (ALS). The researchers determined, in precise molecular detail, how the RNA-based therapy interacts with the TDP-43 protein and showed…
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Becoming educated and informed about ALS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your ALS journey.
There is no cure for ALS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
