Updates

September 23, 2020September 23, 2020
Using Liquid Medications with Feeding Tubes [Sponsored Article]
October 21, 2020October 19, 2020
Life Amid a Torrent of Fire and Rain

“Won’t you look down upon me, Jesus?/ You gotta help me make a stand./ You just got to see me through another day./ My ... Read more
October 21, 2020October 21, 2020
$2M NIH Grant Supports Work Into Cell Structures Linked to ALS Protein Clumps

A $2 million grant from the National Institutes of Health (NIH) is funding work to better understand how molecular structures called protein-RNA condensates form ... Read more
October 20, 2020October 16, 2020
How to Find Balance in an Unbalanced Life

It’s always gratifying to know what I write is helpful to others living with ALS. Recently, I wrote about how I periodically take ... Read more
October 20, 2020October 20, 2020
Study Identifies Environmental Risk Factors for Developing ALS

Head trauma, electrical burns, and hobbies involving the toxic metal lead appear to be risk factors for developing amyotrophic lateral sclerosis (ALS), a U.S.-based ... Read more
October 19, 2020October 19, 2020
AMX0035 Significantly Extends ALS Patients’ Lives, Long-term Data Show

Treatment with AMX0035, Amylyx’s experimental oral therapy, significantly extends the lives of amyotrophic lateral sclerosis (ALS) patients with rapidly progressing disease, according to ... Read more

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May 4, 2018May 4, 2018

Hypermetabolism in ALS Linked to Greater Functional Decline and Shorter Survival, Study Says

News

Patients with amyotrophic lateral sclerosis (ALS) show high prevalence of hypermetabolism, which leads to more rapid physical decline and earlier death, new study reports. The research, “Hypermetabolism in ALS is associated with greater functional decline and shorter survival,” appeared ... Read more

Life Amid a Torrent of Fire and Rain

$2M NIH Grant Supports Work Into Cell Structures Linked to ALS Protein Clumps

How to Find Balance in an Unbalanced Life

Study Identifies Environmental Risk Factors for Developing ALS

AMX0035 Significantly Extends ALS Patients’ Lives, Long-term Data Show

Activities and Events Underway for AAC Awareness Month

Our Bittersweet Family Life

€1 Million Contest Seeks to Improve Functionality in ALS

What’s Next After Your Ship Comes In?

Nerve Injury Progressing in Top-down Manner Evident in Bulbar ALS

Phase 2 Study of Pegcetacoplan in Recently Diagnosed Patients Opens

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BrainStorm Details Phase 3 Trial Design of NurOwn for Rapidly Progressing ALS

Libra Therapeutics Launches With Pipeline of 3 ALS Treatment Candidates

Creativity Is a Life-giving Activity

Scribe, Biogen Partner to Develop Gene Therapy for ALS, Other Neurological Diseases

Applause Springs Forth From a Crash Landing

MDA Issues $1.6M in Grants to Boost ALS Research

Evaluating What’s Working in My Life, and What’s Not

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

Target ALS, Spartan Team Up on ‘The Toughest Challenge’ for ALS Research

Saphyr Technology First to Measure DNA Expansions in Key ALS Gene

Finding Strength to Keep Going

Creatine Kinase Protein Levels Linked to Better Survival in ALS Patients

A Surprise Course in Life Support 101

Large Genetic Analysis Newly Links 5 Genes to Sporadic ALS

Why Ruth Bader Ginsburg Is My ALS Role Model

Impaired RNA Quality Control May Underlie Neurodegeneration in People with C9orf72 Mutations

MND Association Campaigning in UK for More Accessible Homes for ALS, MND Patients

University of Sheffield Partners With Aclipse to Advance ALS Treatment M102 to Clinical Trial

Finding My People

Japan Grants Patent to Brainstorm Covering Technique for NurOwn

FightMND Grant Awards Further Work Into ALS, Other Motor Neuron Diseases

When We Do Something, Something Happens

$1.9M NIH Grant Supports Study of Ways to Preserve Swallowing, Breathing

Novus Acquires Anelixis, Plans to Move AT-1501 Into Phase 2 Trial for ALS

Former NFL Player, Microsoft Team Up to Make Technology More Accessible

The Burden of Knowing the Future

Investigational Treatment IPL344 Safely Slows ALS Progression in Small Phase 1/2a Trial

Dosing Begins in Phase 2a Study of ALZT-OP1a for Mild-to-Moderate ALS

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