In the fall of 2009, when my husband, Todd, first noticed a weak left arm, he thought it was a pinched nerve. He was referred to a spine-care clinic for physical therapy. A doctor there recognized that his symptoms might be due to ALS, canceled his physical therapy, and…
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Two interconnected themes — community and hope — dominated the conversations at a recent gathering of people living with neuromuscular diseases. Lily Sander, MDA National Ambassador, speaking at MDA Engage: Dallas. (Photo by Tara Haelle) Lily Sander, national ambassador for the Muscular Dystrophy Association (MDA), hit on those…
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A history of head injury is associated with 36% higher odds of amyotrophic lateral sclerosis (ALS), according to a systematic review and meta-analysis of 29 studies involving more than 5 million people. The review included 22 studies that compared people with and without ALS, looking at…
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AP-101, an experimental treatment being developed by AL-S Pharma for amyotrophic lateral sclerosis (ALS), may help patients preserve their body weight compared with a placebo, potentially indicating better clinical outcomes as the disease progresses. These findings come from a post-hoc analysis of AP101-02 (NCT05039099), a completed Phase…
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ALS.Community has launched a new free online platform to help people with amyotrophic lateral sclerosis (ALS), their families, and caregivers connect with others, share experiences, and find practical support. Developed with input from people living with ALS, the patient-led nonprofit platform offers discussion communities, virtual events, educational…
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Combining spinal fluid biomarkers associated with Alzheimer’s disease with levels of neurofilament light chain (NfL), a biomarker of nerve damage, may improve the diagnosis of people with amyotrophic lateral sclerosis (ALS) and predict their long-term outcomes, a study suggests. For example, people with ALS who test positive for the…
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Scientists have been searching for a cure for amyotrophic lateral sclerosis (ALS) for more than a century, and they are making faster progress than ever before in today’s collaborative research environment, according to Daragh Heitzman, MD, director of the ALS Clinic at Texas Neurology in Dallas. Heitzman, who…
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Becoming educated and informed about ALS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your ALS journey.
There is no cure for ALS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
