I asked our smart speaker to play music by the Lumineers while I got my husband, Todd, washed up and out of bed this morning. One of their songs, “Nobody Knows,” played, and it resonated with me and our ALS journey. “Nobody knows how to say goodbye/…
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PRC-Saltillo and Team Gleason are partnering to help people with amyotrophic lateral sclerosis (ALS) maintain communication and connections with family, friends, and their communities as the disease progresses. Under the collaboration, PRC-Saltillo will contribute its expertise in speech-generating technology and augmentative and alternative communication (AAC), while Team…
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One of my ALS symptoms is weak legs and feet, which keeps me constantly struggling to prevent further decline. Lately, I’ve been obsessed with how far I walk. Not with my ability to walk — I’ve been focused on that ever since my diagnosis in 2010 — but…
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Some people with amyotrophic lateral sclerosis (ALS) experience subtle signs of the disease, such as pain and motor problems, in the years before they are diagnosed. The findings add to growing evidence that ALS may have a prodromal phase, a period in which people start to experience biological changes…
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People with amyotrophic lateral sclerosis (ALS) may share genetic roots with people who have other neurodegenerative conditions, including frontotemporal dementia (FTD), even when no family connection is known, a new study suggests. The findings highlight the genetic overlap across the ALS-FTD disease spectrum and suggest that conventional family histories may…
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A pivotal Phase 2/3 clinical trial comparing the experimental oral therapy CB03-154 with a placebo in people with amyotrophic lateral sclerosis (ALS) has completed enrollment in China, developer Zhimeng Biopharma announced. China’s Center for Drug Evaluation (CDE) cleared the trial to begin last year. It…
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We’ve had a mild fall on Michigan’s Keweenaw Peninsula with no snow or frost yet, though we often have both before November arrives. But even with our good weather, I’m steeling myself to face the coming winter. I drained my hoses and hung them on the garage wall. I picked…
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Becoming educated and informed about ALS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your ALS journey.
There is no cure for ALS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
