News Publisher’s Note: ALS News Today Launching Survey for Healthcare Providers

News Phase 3 Trial of Masitinib as Add-on ALS Treatment Cleared by FDA

Columns, Joyful Sorrow - a Column by Kristin Neva We’ve Adapted Before, and We’ll Adapt Again

News NORD’s Advice on COVID-19: You’re Stronger Than You Think

News MDA Hosting Online Q&A on COVID-19 Today

Columns, Notes From the ALS Front - a Column by Rick Jobus Talking Trash with ALS

News NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

News Brain Mapping Study May Be Used to Help ALS Patients Regain Motor Control

Columns, Living Well with ALS - a column by Dagmar Munn Handling Stress During the COVID-19 Crisis

News Using Anti-diabetics, Cholesterol-lowering Medicines May Affect Risk of ALS

News Radicava Effective in Slowing Progression Across Year of Use, Trial Data Show

News Funding to Boost Clinical Development of Investigational ALS Therapy ILB

Columns, Joyful Sorrow - a Column by Kristin Neva 7 Ways Life with ALS Is Similar to Life During a Pandemic

News Target ALS and ALS Association to Fund Research on TDP-43’s Potential as ALS Biomarker

Columns, Notes From the ALS Front - a Column by Rick Jobus Painting Broad Brushstrokes from ALS to COVID-19

News ‘Hero’ Proteins Protect Cells from Toxic Clumps Underlying ALS, Other Neurodegenerative Diseases

Columns, Living Well with ALS - a column by Dagmar Munn My Strategy for Facing Change: Adapt, Learn, Survive

News Given Proteins in Blood Cells May Be Markers of ALS and Its Likely Course

News ALS Association Grant to Advance Treatment Aimed at Gut Microbiota

News Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19

Columns, Joyful Sorrow - a Column by Kristin Neva Making Peace with the Waves of Emotion that Come with ALS

News FAIM Protein Prevents, Reverses Mutant SOD1 Clumping, Study Shows

News Stimulating Muscle Cells May Help to Repair Motor Neurons

News Patients with Milder Weaknesses Show Ability to Drive in Simulator Study

News Collaboration Funds Experimental Therapy for Rare FUS-ALS

News Animal Studies Targeting Mitochondria Help Prolong Survival, Review Shows

Columns, Joyful Sorrow - a Column by Kristin Neva Appreciating My Partner

News Vermont Couple Shares Strategies on Managing Neurodegenerative Disease

Columns, Notes From the ALS Front - a Column by Rick Jobus In the ‘Way Back Seat’ with ALS: Learning to Live on Autopilot

News Oxidative Stress May Be Therapy Target in ALS, Study of Skin Cells Suggests

Columns, Living Well with ALS - a column by Dagmar Munn ALS Awareness: Minding Me While Minding the Message

News Machine Learning Links Depression, Quality of Life to ALS Caregiver Burden

News Pediatric Rare Disease Therapies Increase, But Most Repurposed, Study Finds

News Study Finds Differences in Cerebrospinal Fluid Dynamics in ALS

News Editing of SOD1 Gene Slows ALS Progression in Mice, Study Finds

Columns, Joyful Sorrow - a Column by Kristin Neva Living Life While Taking Precautions

News Reldesemtiv Wins EMA Orphan Drug Designation for ALS Treatment

News Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare

News Fish Model of ALS Links TDP-43 Protein Clumping to Motor Neuron Ills

News Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29

Columns, Living Well with ALS - a column by Dagmar Munn Stepping onto the ALS Rating Scale

News Project ALS, Medidata Join to Speed Personalized ALS Therapies

News Astrocytes in Nervous System Seen to Protect Motor Neurons from Toxicity of Clumps

News Trauma, Sports, Herbicides, Other Factors May Increase ALS Risk, Study Suggests

Columns, Joyful Sorrow - a Column by Kristin Neva ALS Is Rare, but My Husband Is Part of a Broader Rare Community

News Monkeys on Neurotoxic Diet May Be New Animal Model for ALS Research

News Advice on Starting Nonprofit Groups for Rare and Other Diseases Focus of NORD Webinar

Columns, Notes From the ALS Front - a Column by Rick Jobus Facing the Rarefied Air of ALS with Dignity

News Aiforia and NeuroScience Associates Partner to Study Brain Changes in ALS

Columns, Living Well with ALS - a column by Dagmar Munn Living Well On the Rare Side

News Enclear Receives Key Funding to Advance Therapies that Clear Toxic Proteins from Brain, Spinal Cord

News C9ORF72 Mutations Disrupt Cellular RNA and Protein Processing, Study Finds

News ALS Association Awards Neuropore $500K to Advance Potential Anti-inflammatory Therapy

amyotrophic lateral sclerosis (ALS), News Patients, Supporters Worldwide Recognizing Rare Disease Day 2020

Columns, Joyful Sorrow - a Column by Kristin Neva 5 Ways to Help Kids Cope with a Parent’s ALS

News Gene Seen to Protect Motor Neurons May Serve as ALS and SMA Therapy, Study Suggests

Columns, Notes From the ALS Front - a Column by Rick Jobus My Diagnosis Anniversary: Revisiting the Start of My ALS Journey

News Boosting Endocytosis Shows Promise for ALS Therapy, Study Finds

News ALS Telecare App Benefits Patients, Providers, Study Shows

News Potential Protein Target for Antibody Therapy Identified in Early Study

News Study Links Cognitive Impairment with Toxic Protein Clumps in ALS

Columns, Joyful Sorrow - a Column by Kristin Neva 3 Ways ALS Has Changed Me

News ALS Association Gives INmune Bio $500K to Advance Protein Targeting Innate Immune System

News ALS Combination Therapy PrimeC Receives FDA’s Orphan Drug Designation, Enters Clinical Trials

News FDA Efforts to Bring Patients into Treatment Decisions Focus of NORD Webinar

Columns, Living Well with ALS - a column by Dagmar Munn Hooray! You Can Hear Me Now!

News New Spinal Delivery Method Renders Stem Cell Therapy Safer, More Effective for ALS, Other Diseases, Early Study Suggests

News A 1st ‘Platform’ Trial, Data Hub for Research, and Other Advances in ALS: Talk With MDA

News With Post-Brexit Move to Amsterdam Complete, EMA Renews Rare Disease Focus

Columns, Joyful Sorrow - a Column by Kristin Neva I Am Savoring Our Limited Time as a Family

News Tool to Test Health of Mitochondria in Neurons May Lead to ALS Therapies, Study Reports

News ALS Activist Ed Rapp to Be Honored by Les Turner ALS Foundation

News Problems in Single Protein, Gemin3, May Underlie ALS Despite Its Diversity, Study Suggests

News Bloom Science Granted Exclusive Option to License Gut Microbiome-based Therapies for ALS, Other Neurological Disorders

News New AI Analysis of Blood Samples May Help Predict Progression of Neurodegenerative Diseases, Study Says

News Preclinical Study Offers New Clues to the Link Between ALS and Type 2 Diabetes

Columns, Joyful Sorrow - a Column by Kristin Neva The Circle of Life from Motherhood to Caregiving

News Nonprofits RARE Courage, All Wheels Up Partner on Survey Seeking to Improve Air Travel for Wheelchair Users

News AI-based Platform Suggests Cancer Candidate LAM-002 as Possible ALS Therapy, AI Therapeutics Says

News $1M Donation Creates Quebec’s First ALS Research Chair

Columns, Living Well with ALS - a column by Dagmar Munn Listen! Can You Hear Me Now?

News Potential Oral Treatment for Cell Energy in ALS to Enter Phase 1 Trial, Stealth Bio Announces

News FDA Gives OK to HEALEY ALS Platform Trial Testing Zilucoplan, CNM-Au8, and Verdiperstat

News Diseases Like ALS Common Cause of Death for Former Soccer Players, Scottish Study Finds

Columns, Joyful Sorrow - a Column by Kristin Neva We Need Allies to Fight This War

News Dosing Begins in Phase 2 Study of Nanomedicine as Disease-modifying ALS Treatment

News Single Injection of RNA Therapy Blocks Degeneration, Prevents Disease Progression in Mice Models of Familial ALS

Columns, Living Well with ALS - a column by Dagmar Munn My Success with Grab Bar Acrobatics

News Masitinib Alleviates Inflammatory Response Triggered by Schwann Cells in Rat Model of ALS

News ALS Association Invests $3M in Platform Trial to Accelerate Development of Treatments

News Neuropore’s Potential ALS Oral Treatment Found to be Safe and Well-Tolerated in Healthy Volunteers, Phase 1 Trial Shows

Columns, Joyful Sorrow - a Column by Kristin Neva I’m Channeling My Grief About ALS into Action and Advocacy

News Neos Completes Dosing in Phase 1 Trial of Anti-Drooling Treatment NT0502 in Healthy Volunteers

News Alexion to Initiate Phase 3 Trial of Ultomiris for Familiar, Sporadic ALS Patients

Columns, Living Well with ALS - a column by Dagmar Munn A New Paradigm for the Future of ALS

News ALS Research Ambassador Collaboration Enabled More Patient-centered Design of REFINE-ALS Trial

News AstroRx Increases Ability to Perform Daily Functions in ALS Patients, Trial Results Show

News Kadimastem Finishes Treating Second Group of ALS Patients with AstroRx in Phase 1/2a Trial

Columns, Joyful Sorrow - a Column by Kristin Neva Learning the Rules for the Medicare Guessing Game

News Mitochondrial ‘Suicide’ May Signal Start of Neurodegeneration in ALS, Mouse Study Suggests