Treatment burden — the workload associated with managing a disease, including taking medications, attending medical appointments, and carrying out self-care tasks — was reported by nearly 70% of patients with amyotrophic lateral sclerosis (ALS), according to a study in Italy. Among patients reporting any burden, more than half were…
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Lower blood levels of adiponectin, a signaling molecule produced by fat tissue, and the anti-inflammatory molecule interleukin (IL)-10 are associated with faster disease progression and shorter survival in people with amyotrophic lateral sclerosis (ALS), a study in China found. The findings also showed that established prognostic measures, such as…
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I’ve recently started meeting with a therapist through telehealth to try to better cope with life as my husband’s caregiver. Todd is homebound now, so we have been more isolated, which is hard on my mental health. It’s stressful to always be on duty, ready to move an arm,…
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Projenx‘s prosetin was found to be safe and well tolerated at doses that engaged its therapeutic target in people with amyotrophic lateral sclerosis (ALS), supporting its continued development as a potential disease-modifying therapy. These interim data from the fully enrolled PRO-101 Phase 1 clinical trial (NCT05279755), including…
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When a parent develops amyotrophic lateral sclerosis (ALS), adult children may face heavy emotional pressures and may have difficulty balancing family, work, and personal life, highlighting the need for emotional support and guidance from both healthcare professionals and others who have gone through similar experiences. “Due to the profound…
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Earlier this month, I played host to a two-week online event in the ALS News Today Forums: “Funny Moments: Finding Humor in ALS.” I was anxious about it and wondered if members would even bother to participate. Boy, was I wrong. But I’m getting ahead of myself. Let’s…
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Cases of motor neuron diseases — including amyotrophic lateral sclerosis (ALS), the most common of these — are increasing in European countries. A study suggests the reason is not solely because of an aging population, though more people are living longer and neurodegenerative diseases are more common in older…
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Becoming educated and informed about ALS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your ALS journey.
There is no cure for ALS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
