The United States Congress recently passed legislation to support five more years of ALS research and expand access to promising experimental therapies. We cannot afford to waste a moment. On Sept. 28, Congress passed the Accelerating Access to Critical Therapies for ALS (ACT for ALS) Reauthorization Act, which would…
Discussion
The ALS Society of Canada is calling on the federal government to invest CAD$50 million over five years in a national initiative aimed at accelerating research, expanding clinical trial access, and advancing the search for treatments for amyotrophic lateral sclerosis (ALS). More than 40 people living with ALS,…
Discussion
A combination of 10 blood proteins distinguished people with amyotrophic lateral sclerosis (ALS) from healthy people with 98.3% balanced accuracy in a new study. “This 10-protein combination in our ALS disease prediction model classified ALS vs control with superior accuracy … to previously published studies,” researchers wrote. However, the…
Discussion
Two interconnected themes — community and hope — dominated the conversations at a recent gathering of people living with neuromuscular diseases. Lily Sander, MDA National Ambassador, speaking at MDA Engage: Dallas. (Photo by Tara Haelle) Lily Sander, national ambassador for the Muscular Dystrophy Association (MDA), hit on those…
Discussion
A history of head injury is associated with 36% higher odds of amyotrophic lateral sclerosis (ALS), according to a systematic review and meta-analysis of 29 studies involving more than 5 million people. The review included 22 studies that compared people with and without ALS, looking at…
Discussion
AP-101, an experimental treatment being developed by AL-S Pharma for amyotrophic lateral sclerosis (ALS), may help patients preserve their body weight compared with a placebo, potentially indicating better clinical outcomes as the disease progresses. These findings come from a post-hoc analysis of AP101-02 (NCT05039099), a completed Phase…
Discussion
In the fall of 2009, when my husband, Todd, first noticed a weak left arm, he thought it was a pinched nerve. He was referred to a spine-care clinic for physical therapy. A doctor there recognized that his symptoms might be due to ALS, canceled his physical therapy, and…
Discussion
Discussion
Discussion
Discussion
Discussion
Discussion
Becoming educated and informed about ALS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your ALS journey.
There is no cure for ALS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
