Updates

July 15, 2020July 30, 2020
New Insights on the Value of ALS Drug Riluzole [Sponsored Article]
August 14, 2020August 14, 2020
New ALS Chip Model Closely Mimics Disease, May Aid Research

Researchers report having created a new human-on-a-chip model, one able to more accurately simulate the clinical features of amyotrophic lateral sclerosis (ALS) in people. The ... Read more
August 13, 2020August 11, 2020
Just Showing Up Is an Accomplishment

Years before my husband was diagnosed with ALS, I coordinated a tutoring program in Milwaukee. Many of the children and teens I worked with ... Read more
August 13, 2020August 14, 2020
Nerve Cell Injury and Chronic Inflammation Need Be Focus of ALS Research, Study Argues

The greater incidence of amyotrophic lateral sclerosis (ALS) among professional athletes and people with head trauma, and the faster functional decline seen in animal ... Read more
August 12, 2020August 10, 2020
Is It a Jinx or a Sphinx?

“You don’t tug on Superman’s cape, You don’t spit into the wind, You don’t pull the mask off the old Lone Ranger, And you ... Read more
August 12, 2020August 13, 2020
Seelos to Proceed With Phase 2b/3 Trial Investigating SLS-005 for ALS

Seelos Therapeutics has received a notification from the U.S. Food and Drug Administration (FDA) permitting the launch of its Phase 2b/3 clinical trial investigating ... Read more

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May 4, 2018May 4, 2018

Hypermetabolism in ALS Linked to Greater Functional Decline and Shorter Survival, Study Says

News

Patients with amyotrophic lateral sclerosis (ALS) show high prevalence of hypermetabolism, which leads to more rapid physical decline and earlier death, new study reports. The research, “Hypermetabolism in ALS is associated with greater functional decline and shorter survival,” appeared ... Read more

Updates

New Insights on the Value of ALS Drug Riluzole [Sponsored Article]

New ALS Chip Model Closely Mimics Disease, May Aid Research

Just Showing Up Is an Accomplishment

Nerve Cell Injury and Chronic Inflammation Need Be Focus of ALS Research, Study Argues

Is It a Jinx or a Sphinx?

Seelos to Proceed With Phase 2b/3 Trial Investigating SLS-005 for ALS

New Streaming Channel Showcases Rare Disease Films

Aural Analytics’ Speech Technology Added to HEALEY ALS Platform Trial

AC Immune Working to Move TDP-43 Antibody Into Clinical Testing for ALS

Paper Explores Whether Lou Gehrig Experienced a Temporary ALS Reversal in 1938

Train Your Eyes to Find the Light

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Navigating an Uncertain (Lega) Sea

AstroRx Slows ALS Progression at All Doses Tested, Trial Shows

Taming My Runaway Thinking

ALS Researchers Probe Cerebrospinal Fluid’s Role in Motor Neurons

Stem Cell Treatment Seen to Safely Aid Speech in ALS Patients in Small Study

Snapshots of Life With ALS

Phase 3 Update: Levosimendan Fails to Ease Breathing Problems in ALS Patients

Ultrasound Measures of Muscle May Help in Diagnosing, Evaluating ALS

Stress-sensing Molecule May Be Potential Therapeutic Target in ALS

New FUS Mutation Linked to Aggressive ALS in Teenage Girl

Searching for a New Map

Common Blood Biomarker Changes Linked to ALS Progression, Study Determines

The Absurdity of a Progressively Debilitating Terminal Illness

Tofersen Safe, Appears to Slow Disease Progression in SOD1 ALS Patients, Phase 1/2 Trial Shows

Let’s Go to the Movies

Study Finds Higher Risk of Prolonged Grief Among Bereaved Caregivers of MND Patients

Slower Progression Seen in US Veterans Living Longer Than Disease Norm

Cancer Immunotherapy Aldesleukin Shows Promise for ALS in Pivotal Trial

Expanding World, Shrinking World

ALS Association Grant Sustains HudsonAlpha Institute, Crestwood Medical Center Project

Taking Baby Steps in Search of a Cure

microRNA Sequences Work as ‘Fingerprints’ for Early ALS Diagnosis, Study Says

Clinigen’s Aldesleukin Earns FDA’s Orphan Drug Designation as ALS Treatment

Hypermetabolism in ALS Linked to Greater Functional Decline and Shorter Survival, Study Says

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New ALS Chip Model Closely Mimics Disease, May Aid Research

Just Showing Up Is an Accomplishment

Nerve Cell Injury and Chronic Inflammation Need Be Focus of ALS Research, Study Argues

Is It a Jinx or a Sphinx?

Seelos to Proceed With Phase 2b/3 Trial Investigating SLS-005 for ALS

New Streaming Channel Showcases Rare Disease Films

Aural Analytics’ Speech Technology Added to HEALEY ALS Platform Trial

AC Immune Working to Move TDP-43 Antibody Into Clinical Testing for ALS

Paper Explores Whether Lou Gehrig Experienced a Temporary ALS Reversal in 1938

Train Your Eyes to Find the Light

Subscribe to our mailing list

Navigating an Uncertain (Lega) Sea

AstroRx Slows ALS Progression at All Doses Tested, Trial Shows

Taming My Runaway Thinking

ALS Researchers Probe Cerebrospinal Fluid’s Role in Motor Neurons

Stem Cell Treatment Seen to Safely Aid Speech in ALS Patients in Small Study

Snapshots of Life With ALS

Phase 3 Update: Levosimendan Fails to Ease Breathing Problems in ALS Patients

Ultrasound Measures of Muscle May Help in Diagnosing, Evaluating ALS

Stress-sensing Molecule May Be Potential Therapeutic Target in ALS

New FUS Mutation Linked to Aggressive ALS in Teenage Girl

Searching for a New Map

Common Blood Biomarker Changes Linked to ALS Progression, Study Determines

The Absurdity of a Progressively Debilitating Terminal Illness

Tofersen Safe, Appears to Slow Disease Progression in SOD1 ALS Patients, Phase 1/2 Trial Shows

Let’s Go to the Movies

Study Finds Higher Risk of Prolonged Grief Among Bereaved Caregivers of MND Patients

Slower Progression Seen in US Veterans Living Longer Than Disease Norm

Cancer Immunotherapy Aldesleukin Shows Promise for ALS in Pivotal Trial

Expanding World, Shrinking World

ALS Association Grant Sustains HudsonAlpha Institute, Crestwood Medical Center Project

Taking Baby Steps in Search of a Cure

microRNA Sequences Work as ‘Fingerprints’ for Early ALS Diagnosis, Study Says

Checking In on My Life With ALS During Lockdown

Clinigen’s Aldesleukin Earns FDA’s Orphan Drug Designation as ALS Treatment

Pin It on Pinterest