While scrolling through social media the other day, I came across a question that stopped me in my tracks: How has having ALS impacted your life for the better? I scanned the replies and thought to myself, “It all depends on which chapter of my ALS journey you’re asking…
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Stem cell therapies are generally safe and well tolerated in people with amyotrophic lateral sclerosis (ALS), and preliminary evidence from clinical trials suggests they may also help slow functional decline, according to a systematic review and meta-analysis of several published studies. Researchers found that people given stem cell therapies…
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Loneliness and regret are key drivers of mental health distress among people with amyotrophic lateral sclerosis (ALS), according to a new survey — but the researchers also found that maintaining a hopeful outlook may help those with the rare disease to combat anxiety, depression, and frustration. The survey,…
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Researchers, physicians, industry partners, caregivers, and people with amyotrophic lateral sclerosis (ALS) are gearing up to gather for the third annual ALS Nexus conference, an effort from the ALS Association to bring the ALS community together around a shared goal of changing the future of ALS. The…
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I’m writing this column from one of my favorite places with two of my most beloved people. It’s an overcast morning here at my little creek house on the eastern shore of Maryland, and I’m nestled in a rocking chair with a cup of black coffee, something I would’ve done…
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People with amyotrophic lateral sclerosis (ALS) who have a history of strenuous exercise tend to develop the disease earlier than patients who were less physically active, according to a study. However, data showed that heavy exercise does not increase the risk of death for ALS patients, and exercise itself…
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Analyses of vocal recordings using artificial intelligence (AI) may aid in the diagnosis of amyotrophic lateral sclerosis (ALS), particularly among those with a form of the disease called bulbar-onset ALS that initially affects the mouth and throat, a new study suggests. Bulbar-onset ALS generally has a poorer prognosis than…
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Becoming educated and informed about ALS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your ALS journey.
There is no cure for ALS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
