Paradromics’ investigational Connexus brain-computer interface (BCI) enabled a woman with a progressive motor neuron disease to generate her own words in real time, answer open-ended questions, and communicate with her family using synthesized speech. The woman, who had a severe impairment of her ability to speak, was the first…
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This morning my husband, Todd, asked me how many boxes of medical gloves we had left, so I took an inventory. We stock medium, large, and extra-large, because different caregivers prefer different sizes. “I think we need to order more large,” I said, “There’s four boxes left.” I paused as…
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Mindy Henderson has spent much of her life challenging the limits others have placed on her. When she was diagnosed with spinal muscular atrophy (SMA) — a genetic condition that causes muscles to weaken over time — as an infant, doctors told her parents that she might not live long…
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Every day, I remind myself: Today, I need to keep moving. Before my diagnosis of ALS, that was something I said to other people. As a wellness director, my job was to motivate others to bend, stretch, reach, and add movement into their daily lives. Now, the tables have…
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Coya Therapeutics is approaching full enrollment in its main clinical trial for COYA 302, an experimental therapy for amyotrophic lateral sclerosis (ALS), having signed on its 100th participant. The Phase 2/3 ALSTARS trial (NCT07161999) aims to recruit 120 adults with ALS across sites in the U.S.
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Five Canadian students personally affected by amyotrophic lateral sclerosis (ALS) will each receive $2,500 to support their studies in the 2026-2027 academic year. The ALS Canada Kevin Daly Bursary award winners were chosen for their contributions to the ALS community through caregiving, advocacy, fundraising, volunteering, or awareness efforts. The bursary…
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Filmmaker and University of Virginia graduate Chris Farina had the idea for a documentary about death and dying about 10 years ago. Now he’s in the final stages of amyotrophic lateral sclerosis (ALS), and is relying on friends to help him complete the project. One of those friends is…
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Becoming educated and informed about ALS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your ALS journey.
There is no cure for ALS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
