While a bond of mutual affection can define friendship, the truest of friends share more than that. These types of friends are irreplaceable and more embedded in our lives and hearts than others. Deep friendship requires each friend to call upon the other for help and support, even in the…
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Common viral infections such as influenza and COVID-19 may accelerate the onset and progression of amyotrophic lateral sclerosis (ALS), a new mouse study suggests. “In our pre-clinical models, just one viral infection was enough to significantly accelerate ALS progression, even after the infection itself had resolved,” Art Marzok, PhD,…
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The amyotrophic lateral sclerosis (ALS) community is mourning Brooke Eby, an ALS advocate who documented her life with the disease on social media and helped build an online community for people living with ALS. Eby died Thursday, Oct. 1, at age 37. Eby was diagnosed with ALS in…
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For many people living with rare neuromuscular diseases, the most meaningful part of a recent Chicago gathering was not just the medical updates — it was finding a community that understood their daily struggles. The realization that they were not alone set the tone for MDA Engage: Chicago, a…
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Medicinova has completed the last patient visit in the placebo-controlled portion of the COMBAT-ALS clinical trial, which is evaluating its investigational oral therapy MN-166 (ibudilast) in people with amyotrophic lateral sclerosis (ALS). The Phase 2b/3 trial (NCT04057898) is testing MN-166’s safety and efficacy at slowing disease…
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Advocates are cheering as legislation that would renew the Accelerating Access to Critical Therapies (ACT) for amyotrophic lateral sclerosis (ALS) has made its way to President Donald Trump’s desk as the law reaches its Oct. 1 expiration date. ACT for ALS, signed into law in 2021 by President…
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On a walk in the field near my home, I passed by fruit trees that my dad had planted for me in 2014, two years before his death. He dug holes with his backhoe, planted two cherry and three apple trees, and then fenced them in so deer wouldn’t ruin…
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Becoming educated and informed about ALS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your ALS journey.
There is no cure for ALS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
