My husband, Todd, and I were having a discussion with a visitor in which our guest told us about his back pain and trouble sleeping. “You know what you should do?” Todd began. “Instead of getting out of bed, hire nighttime help, and they can roll you to your side…
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Specialized multidisciplinary care was associated with longer survival in people with amyotrophic lateral sclerosis (ALS), a study found. The benefit was particularly notable among people with limb-onset, or spinal-onset, ALS, whose symptoms typically begin in the limbs. Median survival from symptom onset without invasive ventilation was 44 months with…
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An artificial intelligence (AI) tool called Capsule Networks can distinguish people with amyotrophic lateral sclerosis (ALS) from unaffected individuals, with predictive performance comparable to testing for major known ALS genes, according to a study. The large international research collaboration, which used data from more than 47,000 people across 13…
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Delivering gentle electrical stimulation to the spinal cord can reduce the buildup of toxic TDP-43 protein clumps in a mouse model of amyotrophic lateral sclerosis (ALS), according to a new study. The specific type of stimulation used in the study is known as multisite direct current stimulation (DCS). The…
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A novel treatment for amyotrophic lateral sclerosis (ALS) caused by mutations in a specific gene called CHCHD10 showed promise for slowing disease progression in a clinical trial that tested the therapy in a single individual, as reported in a new study. “I didn’t think I would see this kind of…
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Measuring blood levels of toxic TDP-43 protein in astrocyte-derived extracellular vesicles — packets of cellular material released from star-shaped brain support cells called astrocytes — may help diagnose amyotrophic lateral sclerosis (ALS), according to a new study from U.S. researchers. Tests showed that differences in TDP-43 levels inside these…
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ALS has changed the way I do everyday tasks. While I had to adopt some changes quickly — like giving up my driving privileges and no longer preparing meals — others crept in over time, like changes to the clothes I wear and my handwriting. What I found interesting,…
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Becoming educated and informed about ALS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your ALS journey.
There is no cure for ALS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
