The U.S. Food and Drug Administration (FDA) has granted fast-track designation to CK0803, an experimental T-cell therapy from Cellenkos that’s currently in Phase 1 clinical testing for people with amyotrophic lateral sclerosis (ALS). The designation aims to accelerate the clinical development and regulatory review of new treatments that…
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When my late husband, Craig, was diagnosed with ALS, we were very naïve and didn’t really know much about the disease. ALS has since been in the media more, so now people have more of an appreciation of what it means to have it. The only thing we knew…
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ALN-SOD, an experimental RNA-based therapy being developed for a genetic subtype of amyotrophic lateral sclerosis (ALS) called SOD1-ALS, showed an “encouraging” safety profile and preliminary signs of potential efficacy, according to early results from a Phase 1b/2 study. Biomarker data from participants in the first-in-human Phase 1b/2 GOALS…
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My husband, Todd, and I celebrated our 23rd wedding anniversary this week. We’ve spent 16 of those years with ALS since Todd’s diagnosis in 2010. I’ve been thinking recently about how we have found meaning within this difficult life we’ve been living for so long. Todd and Kristin…
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For Emmy award-winning host and New York Times bestselling author Tabitha Brown, joy, gratitude, and hope have guided her through life since losing her mother to amyotrophic lateral sclerosis (ALS) in 2007. Speaking this week at the ALS Nexus conference in Orlando, Florida, and online, Brown shared how…
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An experimental implantable device from Precision Neuroscience enabled computers to decode brain signals to predict movement and speech, which could eventually help create assistive devices for people with amyotrophic lateral sclerosis (ALS). That’s according to findings from preliminary tests conducted in patients undergoing routine neurosurgical procedures, which were…
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People with diabetes may be less likely to develop amyotrophic lateral sclerosis (ALS) than those without diabetes, according to findings detailed in a poster presented at the ALS Nexus conference. The study also found that people with a longer reported duration of diabetes and those receiving insulin as…
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Becoming educated and informed about ALS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your ALS journey.
There is no cure for ALS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
