ALN-SOD, an experimental RNA-based therapy being developed for a genetic subtype of amyotrophic lateral sclerosis (ALS) called SOD1-ALS, showed an “encouraging” safety profile and preliminary signs of potential efficacy, according to early results from a Phase 1b/2 study. Biomarker data from participants in the first-in-human Phase 1b/2 GOALS…
Discussion
My husband, Todd, and I celebrated our 23rd wedding anniversary this week. We’ve spent 16 of those years with ALS since Todd’s diagnosis in 2010. I’ve been thinking recently about how we have found meaning within this difficult life we’ve been living for so long. Todd and Kristin…
Discussion
For Emmy award-winning host and New York Times bestselling author Tabitha Brown, joy, gratitude, and hope have guided her through life since losing her mother to amyotrophic lateral sclerosis (ALS) in 2007. Speaking this week at the ALS Nexus conference in Orlando, Florida, and online, Brown shared how…
Discussion
An experimental implantable device from Precision Neuroscience enabled computers to decode brain signals to predict movement and speech, which could eventually help create assistive devices for people with amyotrophic lateral sclerosis (ALS). That’s according to findings from preliminary tests conducted in patients undergoing routine neurosurgical procedures, which were…
Discussion
People with diabetes may be less likely to develop amyotrophic lateral sclerosis (ALS) than those without diabetes, according to findings detailed in a poster presented at the ALS Nexus conference. The study also found that people with a longer reported duration of diabetes and those receiving insulin as…
Discussion
The ALS Association has awarded Mitochon Pharmaceuticals a $1 million grant to support a Phase 2 clinical trial testing the company’s experimental therapy MP-101 in people with amyotrophic lateral sclerosis (ALS). The study is still in the planning stages and is expected to kick off next year.
Discussion
Higher levels of physical activity were associated with a lower risk of developing amyotrophic lateral sclerosis (ALS) in a large U.K. study. The association was seen using both self-reported activity questionnaires and objective measurements from wrist-worn devices called accelerometers. Among participants with known genetic risk factors for ALS,…
Discussion
Discussion
Discussion
Discussion
Discussion
Discussion
Becoming educated and informed about ALS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your ALS journey.
There is no cure for ALS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
