Nearly 500 people gathered in Orlando, Florida, and more than 1,900 joined them online to discuss advances in amyotrophic lateral sclerosis (ALS) research and care and community goals for the future at the third annual ALS Nexus Conference. Clinicians, researchers, patients, caregivers, advocates, industry partners, and others in the…
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When I was diagnosed with ALS, my first thought wasn’t about me. It was about my children. I’m a mother of six; one of my children has passed away, and today my family and I are building a new life in New York after moving from Puerto Rico. I wondered how I would…
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People with amyotrophic lateral sclerosis (ALS) who are exposed to high levels of certain pollutants in the years before disease onset have worse survival outcomes, a new study shows. The findings add to building evidence that pollution and environmental toxins can affect the course of ALS. Researchers are calling…
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A buildup of microplastics in the nervous system may be linked to a higher risk of developing amyotrophic lateral sclerosis (ALS), according to a new study. People newly diagnosed with the neurodegenerative disease were found to have higher concentrations of tiny plastic particles in both their blood and the…
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A newer set of diagnostic criteria for amyotrophic lateral sclerosis (ALS) was significantly more sensitive at identifying people with the disease than two older diagnostic approaches, a real-world study in Germany found. Among more than 400 people ultimately diagnosed with ALS, these Gold Coast criteria correctly identified 92.5% of…
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The challenges of caregiving have been in the news lately. Last year, Dolly Parton appeared in a video following the death of her husband, Carl Dean, to quell rumors about her own poor health after the cancellation of some shows. She said, “Back when my husband, Carl, was very sick,…
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Neurosense Therapeutics is revamping its development plan for PrimeC, the company’s experimental oral therapy for amyotrophic lateral sclerosis (ALS). The updated plan includes a new study that will directly compare PrimeC against an approved ALS treatment, as well as a restructured Phase 3 trial and analyses of…
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Becoming educated and informed about ALS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your ALS journey.
There is no cure for ALS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
