Newly Diagnosed: You Are Not Alone on Your Journey
Whether you are a patient or a caregiver, it’s important to remember that you are not alone on this journey with ALS and that others have been in your shoes. Here’s a collection of our columnists’ words that they would like to share to help guide, inspire, and encourage you.
The 4 Ms: My Formula for Daily Living
In addition to taking her medication and seeing her doctor, columnist Dagmar Munn has developed her own simple wellness formula to improve her quality of life while living with ALS. She calls it the “4 M’s.”: medication, mindfulness, motion, and mood.
The Art of ALS Adaptability
Dagmar always thought she was good at adapting to change — until ALS came along. She had to learn how to adapt not only her body but her mind. She has three steps she recommends following to master the art of the adaptability.
Granting Myself Permission to Sit With My Grief
Caring for a spouse with ALS means the loss is ongoing, writes columnist Kristin Neva. In moments of sadness she gives herself space to grieve. She says that when she does, the sorrow subsides, and she is able to feel moments of joy.
As a Caregiver, Going Down the ‘What If’ Rabbit Hole Isn’t Helpful
When her husband, Todd, was first diagnosed, Kristin was consumed by anxiety, but dwelling on all the “what ifs” wasn’t helpful. Going down the “what if” rabbit hole rarely leads to satisfactory answers; it only leads to more questions, anxiety, and a world of fear.
The Art of Declaring War on ALS
Once war is declared with ALS, the threat of attack constantly looms, writes columnist Rick Jobus. He knows that legend says ALS has never lost a war. But no matter the physical destruction, he is determined that his spirit will come out on top.
5 Steps to Make Your Relationships Stronger than ALS
Living with ALS can cause dramatic changes to your relationships, writes columnist Rachel Doboga. She offers several tips to try and help maintain and rebuild strong relationships while living with the disease.