MDA Engage Symposium

Two interconnected themes — community and hope — dominated the conversations at a recent gathering of people living with neuromuscular diseases. Lily Sander, MDA National Ambassador, speaking at MDA Engage: Dallas. (Photo by Tara…

Scientists have been searching for a cure for amyotrophic lateral sclerosis (ALS) for more than a century, and they are making faster progress than ever before in today’s collaborative research environment, according to Daragh…

Lily Sander will never forget what it was like to meet other people with neuromuscular diseases the first time she attended Muscular Dystrophy Association (MDA) Summer Camp. Living with Charcot-Marie-Tooth disease, Sander had…

For many people living with rare neuromuscular diseases, the most meaningful part of a recent Chicago gathering was not just the medical updates — it was finding a community that understood their daily struggles. The…

Early rehabilitation, a care team that works together, and adequate bracing equipment can help people with neuromuscular diseases stay active and safe, two rehab specialists said. “Every patient has a different journey,” said Sol Abreu-Sosa,…

A progressive decline in lung function is unavoidable for many people with neuromuscular conditions such as amyotrophic lateral sclerosis (ALS), but there are steps that patients can take to ease breathing issues and improve quality…

Mindy Henderson has spent much of her life challenging the limits others have placed on her. When she was diagnosed with spinal muscular atrophy (SMA) — a genetic condition that causes muscles to weaken over…

The Muscular Dystrophy Association (MDA) brought its Engage Community Seminar to Hershey, Pennsylvania, on July 18, uniting individuals with neuromuscular diseases, caregivers, and medical experts for a day of education and connection. Hosted in collaboration…