Managing ALS goes far beyond routine doctor visits and medical checklists. Clinical metrics can track disease progression, but they fail to capture the real story: what it actually takes to navigate daily life with ALS as a family and care team.
In honor of National Family Caregivers Month, this family conversation moderated by ALS News Today columnist Juliet Taylor, offered a rare, authentic look behind the scenes with the people who truly get it: the caregivers who help make independent living possible. Featuring acclaimed actor and producer Russell Andrews, his partner actress Erica Tazel of Amazon Prime’s 2026 series “The Greatest,” and Russell’s two children Anya and Kai Andrews, real insight came from an intimate, candid conversation about navigating a new life after diagnosis. Alongside ALS Network President and CEO Sheri Strahl, they shared what multi-generational teamwork, balancing career and caregiving, and navigating systemic support actually look like in real time.
The true experts are the people living and caregiving every single day. In this recording, our advocates, caregivers, and community leaders talked openly about relationships, accepting care, family dynamics, organizational resources, and real-world independence.
In honor of National Family Caregivers Month, this family conversation, recorded on November 5, 2026, and hosted by ALS News Today columnist Juliet Taylor, offered a rare, authentic look behind the scenes with the people who truly get it: the caregivers who help make independent living possible.
Juliet lost her husband, Jeff, to ALS in 2020, 19 months after his diagnosis. Together Jeff and Juliet enjoyed being on the water, live music, pets, and traveling. She was his primary caregiver, and finds meaning and healing in helping individuals and families who are living with or have lost a loved one to ALS. Juliet lives with her rescue pup, Sailor, on the eastern shore of Maryland, in a home that Jeff chose because it reminded him of his beloved Green Lake in Michigan.
Discussion
The United States Congress recently passed legislation to support five more years of ALS research and expand access to promising experimental therapies. We cannot afford to waste a moment. On Sept. 28, Congress passed the…
