Columns

May 28, 2020May 26, 2020

‘Graves Are for the Living’

Columns, Joyful Sorrow - a Column by Kristin Neva

On Memorial Day, my mom, the kids, and I visited Lakeside Cemetery in Hancock, Michigan. My mom and the kids left in time to attend the Memorial Day service. ... Read more

May 26, 2020May 22, 2020

My Face Mask Blocks More Than COVID-19

Columns, Living Well with ALS - a column by Dagmar Munn

A large part of successfully living with ALS is to face each challenge with a positive mindset and find workable solutions so I can continue to move forward with my ... Read more

May 21, 2020May 19, 2020

Let’s Just Call It Love

Columns, Joyful Sorrow - a Column by Kristin Neva

A few years before my husband, Todd, was diagnosed with ALS, he baked a cake for a church fundraiser with one hand while our infant daughter slept on her ... Read more

May 20, 2020May 18, 2020

A Typical Day in My Life with ALS

Columns, Notes From the ALS Front - a Column by Rick Jobus

“Woke up, fell out of bed, dragged a comb across my head.” These are the first two lines of the bridge that Paul McCartney contributed to The Beatles’ song ... Read more

May 19, 2020May 15, 2020

My A-L-S Word Game

Columns, Living Well with ALS - a column by Dagmar Munn

Here’s a fun challenge. In the spirit of celebrating ALS Awareness Month, I invite you to play my A-L-S word game. It’s a simple game I created to help ... Read more

May 14, 2020May 12, 2020

An Unexpected Delivery Full of Love

Columns, Joyful Sorrow - a Column by Kristin Neva

As I waited for the postmaster to bring my package to the counter, I tried to think of what I had ordered. Nothing came to mind. He set the ... Read more

May 13, 2020May 11, 2020

The Monster that ALS Is

Columns, Notes From the ALS Front - a Column by Rick Jobus

Donald Rumsfeld, the former U.S. Secretary of Defense, once stated at a Defense Department briefing in 2002 that, “There are known knowns. There are things we know that we ... Read more

May 12, 2020May 8, 2020

Reimagining the Rollator

Columns, Living Well with ALS - a column by Dagmar Munn

Did you know that rollators were invented nearly 40 years ago? A Swedish woman with polio added four wheels to her walker, and the idea was an instant success. ... Read more

May 7, 2020May 4, 2020

Stories Connect Us in ALS Awareness Month

Columns, Joyful Sorrow - a Column by Kristin Neva

For a couple years after my husband Todd’s ALS diagnosis, I sought companionship in books written by people with ALS or their spouses. I read half a dozen stories, ... Read more

May 6, 2020May 4, 2020

ALS Awareness: What It’s Worth

Columns, Notes From the ALS Front - a Column by Rick Jobus

“I think it’s time we stop, children, what’s that sound? Everybody look what’s going down.” That call for awareness comes from the song “For What It’s Worth” by Buffalo ... Read more