Columns

July 16, 2019July 12, 2019

How to Avoid the Sticky Points

Columns, Living Well with ALS - a column by Dagmar Munn

Lately, I’ve been on alert trying to avoid sticky points. These are what I call particular points in my day when I’m most vulnerable to distractions. Because if I ... Read more

July 11, 2019July 8, 2019

Faced with Incurable Disease, Fighting Is Winning

Columns, Joyful Sorrow - a Column by Kristin Neva

I am by nature a fixer. After my husband, Todd, was diagnosed with ALS, I found out modern medicine didn’t provide a cure. There’s no option for surgery. No ... Read more

July 10, 2019July 8, 2019

Viewing Life and ALS Through a Lou Gehrig Lens

Columns, Notes From the ALS Front - a Column by Rick Jobus

“For the past two weeks, you have been reading about a bad break. Yet today, I consider myself the luckiest man on the face of the earth.” —Lou Gehrig, ... Read more

July 3, 2019July 1, 2019

Navigating the Alternate Dimension of Home Health Services

Columns, Notes From the ALS Front - a Column by Rick Jobus

“You’re traveling through another dimension, a dimension not only of sight and sound but of mind. … That’s the signpost up ahead — your next stop, the Twilight Zone!” ... Read more

July 2, 2019June 28, 2019

Even Summer Fun Needs Recovery Time

Columns, Living Well with ALS - a column by Dagmar Munn

Summer is finally here, which means it’s time for outdoor events, fun trips, and visits from family and friends. I look forward to each and every one of these ... Read more

June 27, 2019June 25, 2019

Sometimes in Parenting, We Decide to Prepare, Not Protect

Columns, Joyful Sorrow - a Column by Kristin Neva

Welcome to Kristin Neva’s “Joyful Sorrow,” a new ALS News Today column. *** My world changed forever 13 years ago when I became a mom. I lay in the ... Read more

June 26, 2019June 24, 2019

‘Ode to Joy’: How a 911 Call Recalibrated Me

Columns, Notes From the ALS Front - a Column by Rick Jobus

I recently reemerged from a plummet into the dark depths of my psyche. An eight-day hospital stay triggered my dive into an emotional abyss. About 2 1/2 weeks ago, ... Read more

June 18, 2019June 14, 2019

Changing My Perspective on a Rare Disease

Columns, Living Well with ALS - a column by Dagmar Munn

Where were you on Feb. 28? Did you know that it was Rare Disease Day? Don’t feel bad if you missed it because I did too. But I shouldn’t ... Read more

June 11, 2019June 7, 2019

How to Create an Efficient ALS Mindset

Columns, Living Well with ALS - a column by Dagmar Munn

ALS and efficient are two words not often used in the same sentence. But to me, they are a perfect pairing. Mention “ALS” and it’s easy to think slow, ... Read more

June 5, 2019June 3, 2019

The Boomerang Effect of Raising Awareness

Columns, Notes From the ALS Front - a Column by Rick Jobus

A 1992 episode of the hit television series “Seinfeld” is a “life-imitating-art” story titled “The Pitch.” The character of George Costanza (with brief help from Jerry Seinfeld) attempts to ... Read more