Columns

November 19, 2020November 17, 2020

Growing Up With a Parent’s Illness

Columns, Joyful Sorrow - a Column by Kristin Neva

I cried as I listened to an episode of the “Everything Happens” podcast. Writer Samantha Irby described growing up with sick parents. When she was 9, her mom was ... Read more

November 18, 2020November 16, 2020

Adapting With the Hope That a Tradition Can Be Toppled

Columns, Notes From the ALS Front - a Column by Rick Jobus

“Put me in, coach, I’m ready to play today, Look at me, I can be center field.” John Fogerty’s homage to an aspiring baseball player is reminiscent of my ... Read more

November 17, 2020November 16, 2020

Banishing Thought Loops and Living One Day at a Time

Columns, Living Well with ALS - a column by Dagmar Munn

As one of the moderators for the ALS News Today Forums, I get to welcome new members and learn a little bit about each person. Many of these new ... Read more

November 12, 2020November 12, 2020

How ALS Affects the Hierarchy of Needs

Columns, Joyful Sorrow - a Column by Kristin Neva

I’ve written before about how the world has been shrinking for my husband, Todd, and me. Some activities, such as going on vacation or visiting people in their homes, ... Read more

November 11, 2020November 9, 2020

Enjoying the Vagaries of Life’s Carnival Ride

Columns, Notes From the ALS Front - a Column by Rick Jobus

“Run away, run away/ It’s the restless age/ Look away, look away/ You can turn the page/ … Take away, take away/ This house of mirrors/ Give away, give ... Read more

November 10, 2020November 6, 2020

Finding the Funny Moments in Caregiving

Columns, Living Well with ALS - a column by Dagmar Munn

ALS is certainly a serious condition, and there is nothing funny about it, but many funny moments can happen. For my caregiver husband and me, holding on to a ... Read more

November 5, 2020November 2, 2020

‘Once Upon a Time’ Becomes ‘Once When He Still Could’

Columns, Joyful Sorrow - a Column by Kristin Neva

My office offers retreat, in that it only has wall décor we acquired before ALS upended our lives. Over my book case is a framed painting of Maine’s Bar ... Read more

November 4, 2020November 3, 2020

We Are Family: The Case For Reciprocating Care

Columns, Notes From the ALS Front - a Column by Rick Jobus

“Your lifelong membership is free, Keep a-giving each brother all you can. Oh, aren’t you proud to be in that fraternity, The great big brotherhood of man?” Those lines, ... Read more

November 3, 2020October 30, 2020

During National Family Caregivers Month, We Say Thank You!

Columns, Living Well with ALS - a column by Dagmar Munn

Although it’s hard to find much to celebrate in 2020, this year happens to mark an important milestone for my husband and me. I’m celebrating achieving 10 years of ... Read more

October 29, 2020October 27, 2020

When Positivity Becomes a Problem

Columns, Joyful Sorrow - a Column by Kristin Neva

Last week, we had an early snowfall, even for Michigan’s Keweenaw Peninsula. Snow frosted the tips of trees and blanketed the grass, leaving small bits of green peeking through. ... Read more