Columns

November 20, 2019November 18, 2019

Anger (Mis)Management: Seeking an Object of Blame for ALS

Columns, Notes From the ALS Front - a Column by Rick Jobus

“We have met the enemy and he is us.” One day recently, I became incensed. My anger was not your garden-variety ire; I experienced the kind of rage that ... Read more

November 19, 2019November 15, 2019

The 4 Ms: My Formula for Daily Living

Columns, Living Well with ALS - a column by Dagmar Munn

When I was diagnosed with ALS in 2010, my doctor told me there was one medication available to help slow the progression of the symptoms. But there was no ... Read more

November 14, 2019November 12, 2019

Calculating Risks While Balancing Family Life and ALS

Columns, Joyful Sorrow - a Column by Kristin Neva

I went parasailing during a vacation in Florida 10 years ago. I talked my brother into going with me, because my husband, Todd, wasn’t feeling up to it at ... Read more

November 13, 2019November 13, 2019

Black Tie Optional: Dressing for Success with ALS

Columns, Notes From the ALS Front - a Column by Rick Jobus

In Mark Twain’s book, “A Connecticut Yankee in King Arthur’s Court,” the protagonist, Hank Morgan, is ridiculed during a roundtable assemblage for his strange appearance and dress. He is ... Read more

November 12, 2019November 8, 2019

My Tricks for Adding Movement to My Day

Columns, Living Well with ALS - a column by Dagmar Munn

I’m always pleased to read news of advancements in health and wellness for those of us living with ALS. But one statement always makes me laugh out loud: ALS ... Read more

November 7, 2019November 6, 2019

Wartime Living Tests Marriages

Columns, Joyful Sorrow - a Column by Kristin Neva

Sometimes I’ll pick up a magazine in a grocery store checkout line and see a marriage article about sex or the division of household chores. I’ll sigh wistfully. Healthy ... Read more

November 6, 2019November 4, 2019

A Night of Heroes: I Was Humbled to Speak at an MDA Fundraiser

Columns, Notes From the ALS Front - a Column by Rick Jobus

“I think of a hero as someone who understands the degree of responsibility that comes with his freedom.” —Bob Dylan Recently, I had the pleasure of participating in the ... Read more

November 5, 2019November 1, 2019

The Power of My ALS Role Models

Columns, Living Well with ALS - a column by Dagmar Munn

Do you have an ALS role model? I do. I have a whole collection of ALS role models, and each one helps me power through my day. I’ve always ... Read more

October 31, 2019October 31, 2019

Imagining Our Lives Without ALS

Columns, Joyful Sorrow - a Column by Kristin Neva

My husband, Todd, recently asked me, “What do you think our life would be like if I hadn’t gotten ALS?” I’ve done this mental exercise before, but never with ... Read more

October 29, 2019October 25, 2019

I’ll Have What She’s Having: ‘ALS Reversals’ Share Good Advice

Columns, Living Well with ALS - a column by Dagmar Munn

We all know there’s no cure for the common cold. But let it be known that you have a cold, and suddenly everyone’s an expert. They’ll share advice, home ... Read more