Columns

January 16, 2019January 16, 2019

First, We Must Answer the Key Question: What Is ALS?

Columns, Notes From the ALS Front - a Column by Rick Jobus

It’s complicated. That trite, two-word sentence has become, in the age of social media, the go-to characterization of any couple whose pairing defies analysis. In the best case, after ... Read more

January 15, 2019January 11, 2019

Riding Out the Lag Time

Columns, Living Well with ALS - a column by Dagmar Munn

Yup, it’s that time of year again — lag time! We’re in that weird space in time that’s just after all the holiday hoopla and before the “next big ... Read more

January 9, 2019January 10, 2019

I’m Back to Wish Readers a Happy New Year

Columns, Notes From the ALS Front - a Column by Rick Jobus

“Reports of my demise have been greatly exaggerated.” —Mark Twain, in a letter to The New York Sun I spent the better part of November under the weather. I ... Read more

January 8, 2019January 4, 2019

The Power of One Resolution

Columns, Living Well with ALS - a column by Dagmar Munn

The new year is just beginning, and my email inbox is already overflowing with suggestions about the importance of setting goals and resolutions. But for many living with ALS, ... Read more

January 7, 2019January 3, 2019

Trying the Self-care Power Hour

Columns, The Mighty Mind - a Column by Rachel Doboga

When I look back at 2018, I feel pride. I fought my ALS hard. I forced myself to finish all my meals, even when I had zero appetite, to ... Read more

December 11, 2018December 7, 2018

The ALS Game Board of Life

Columns, Living Well with ALS - a column by Dagmar Munn

I’ve always looked forward to December; it’s a month filled with decorations, holiday gifts, and happy social gatherings. But this month eight years ago, I was diagnosed with ALS, ... Read more

December 3, 2018November 29, 2018

I’m Stepping Out of the Past to Fully Appreciate the Present

Columns, The Mighty Mind - a Column by Rachel Doboga

It’s hard to live in the present when the past feels as close as my shadow. I can’t stop thinking about the things I have lost. I’m nearly immobile, ... Read more

November 27, 2018November 21, 2018

Living Loudly and Laughing with Dysarthria

Columns, Living Well with ALS - a column by Dagmar Munn

About four years ago, ALS impeded my speaking ability. Like more than 80 percent of all ALS patients, I now have dysarthria, or what I refer to as my “ALS ... Read more

November 20, 2018November 19, 2018

Stuck in the Past? Here’s How to Reframe Your Future

Columns, Living Well with ALS - a column by Dagmar Munn

Before ALS, whenever I thought about the future, I assumed my life would continue in a state of health and happiness, filled with lots of interesting activities. But in ... Read more

November 13, 2018November 9, 2018

For Caregivers Appreciation Month, Give a Gift from Your Heart

Columns, Living Well with ALS - a column by Dagmar Munn

When I learned I had ALS, my whole world changed, because on that day, I officially became an ALS patient. My husband’s world changed as well because, just as ... Read more