Columns

February 11, 2020February 7, 2020

Hooray! You Can Hear Me Now!

Columns, Living Well with ALS - a column by Dagmar Munn

Sometimes you get lucky and life gives you a break, which is not always the norm for someone living with ALS. The past two weeks have been rather fun ... Read more

February 6, 2020February 4, 2020

I Am Savoring Our Limited Time as a Family

Columns, Joyful Sorrow - a Column by Kristin Neva

A month after my husband, Todd, was diagnosed with ALS, I wrote in my journal: “Squeezing in memories is bittersweet. Last weekend, we took Sara and Isaac to the ... Read more

January 30, 2020January 28, 2020

The Circle of Life from Motherhood to Caregiving

Columns, Joyful Sorrow - a Column by Kristin Neva

I thought my days of obsessively avoiding germs and examining poop would be over once my babies grew, but such is the circle of life now that my husband ... Read more

January 28, 2020January 24, 2020

Listen! Can You Hear Me Now?

Columns, Living Well with ALS - a column by Dagmar Munn

Living with ALS has taught me to adapt, adapt, and adapt. Because ALS symptoms tend to change, change, and change. And one of the symptoms I’ve been learning to ... Read more

January 23, 2020January 21, 2020

We Need Allies to Fight This War

Columns, Joyful Sorrow - a Column by Kristin Neva

My son pointed to a plastic army man on the ottoman. “That guy is a sniper,” he said. “He’s taking everyone out.” He placed a soldier on top of ... Read more

January 21, 2020January 17, 2020

My Success with Grab Bar Acrobatics

Columns, Living Well with ALS - a column by Dagmar Munn

Whenever I’m out and about running errands, I’m aware of the possibility I’ll need to make a quick stop at, ahem, the public restroom. But though I have ALS ... Read more

January 16, 2020January 14, 2020

I’m Channeling My Grief About ALS into Action and Advocacy

Columns, Joyful Sorrow - a Column by Kristin Neva

The grief that accompanies ALS is multifaceted. I grieve my husband’s loss of function and the loss of our dreams. Just when we find a new normal, there is ... Read more

January 14, 2020January 10, 2020

A New Paradigm for the Future of ALS

Columns, Living Well with ALS - a column by Dagmar Munn

The new year arrived bearing good and bad news. The good news is that 2020 marks my 10th year of living with ALS and I’m still here! The bad ... Read more

January 9, 2020January 8, 2020

Learning the Rules for the Medicare Guessing Game

Columns, Joyful Sorrow - a Column by Kristin Neva

Like many families, we played games over the holidays. Because my husband, Todd, is completely paralyzed due to ALS, we chose games in which he could participate. Apples to ... Read more

January 7, 2020January 3, 2020

Join Our Virtual Friendly Neighborhood, the ALS News Today Forums

Columns, Living Well with ALS - a column by Dagmar Munn

Last year, while serving as a moderator for the ALS News Today Forums, I added more than 355 people to my circle of ALS friends. And in the short ... Read more