Columns

September 17, 2020September 14, 2020

The Burden of Knowing the Future

Columns, Joyful Sorrow - a Column by Kristin Neva

Lulu Wang’s film “The Farewell” is based on an actual lie. The 2019 comedic drama looks at a family’s decision to keep their matriarch ignorant of her stage IV ... Read more

September 15, 2020September 11, 2020

Things to Do While Waiting for a Cure

Columns, Living Well with ALS - a column by Dagmar Munn

Big news buzzed through the ALS community last week about AMX0035, an investigational treatment for ALS that just finished a Phase 2/3 clinical trial. Early results indicated that AMX0035 ... Read more

September 10, 2020September 8, 2020

Gaining Perspective Through Journaling

Columns, Joyful Sorrow - a Column by Kristin Neva

Perspective can be hard to come by with ALS, but writing has helped me keep my head above water. I’ve kept a journal since I was a kid. I ... Read more

September 8, 2020September 4, 2020

Learning to Pivot When Living With ALS

Columns, Living Well with ALS - a column by Dagmar Munn

All around me, I’ve been noticing how people, businesses, and organizations are pivoting to survive these challenging times. We’re getting confident using Zoom, dine-in restaurants have expanded their takeout ... Read more

September 3, 2020September 1, 2020

Now, Our Favorite Restaurant Is Inaccessible to All

Columns, Joyful Sorrow - a Column by Kristin Neva

My husband, Todd, and I celebrated our 17th wedding anniversary in late August with a date at Fitzgerald’s, a restaurant built on the shore of Lake Superior in Eagle ... Read more

September 1, 2020August 28, 2020

Going With My Gut

Columns, Living Well with ALS - a column by Dagmar Munn

Looking forward to getting a flu shot is something I never thought possible. But at this point in what has been a very strange year, it’s a darned good ... Read more

August 27, 2020August 25, 2020

Friends Who Can Handle Chronic Illness

Columns, Joyful Sorrow - a Column by Kristin Neva

In his book “Out of Solitude,” Henri Nouwen writes, “When we honestly ask ourselves which persons in our lives mean the most to us, we often find that it ... Read more

August 26, 2020August 24, 2020

Finding Sweetness in the Eye of the Storm

Columns, Notes From the ALS Front - a Column by Rick Jobus

Just like Lionel Barrymore as James Temple in “Key Largo“ and Gary Sinise as Lt. Dan Taylor in “Forrest Gump,” I survived a hurricane wheelchair-bound. Unlike the original works ... Read more

August 25, 2020August 21, 2020

Getting Back to the Basics of Mindfulness

Columns, Living Well with ALS - a column by Dagmar Munn

Recently, I noticed I was having problems keeping track of time. Not clock time, as in being a little early or showing up too late. But calendar time — ... Read more

August 20, 2020August 17, 2020

Taking Care of Unfinished Business

Columns, Joyful Sorrow - a Column by Kristin Neva

“That’s the one project I wish I could have finished,” my husband, Todd, said while looking out a window at Comet’s doghouse. He had expressed similar sentiment on other ... Read more

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