Columns

May 15, 2019May 14, 2019

Revisiting Medicare’s Coverage of Home Healthcare

Columns, Notes From the ALS Front - a Column by Rick Jobus

About a year ago, I wrote about how ALS patients may receive home healthcare on an uninterrupted basis, with expenses covered by Medicare. Since then, there has been both ... Read more

May 14, 2019May 10, 2019

I’m Learning to Heed My ‘Aha’ Moments While Living with ALS

Columns, Living Well with ALS - a column by Dagmar Munn

I’ve always believed that I was open to new ways of doing things, but having ALS has put me to the test. My pride and a little denial have ... Read more

May 1, 2019April 29, 2019

A Look at the ABCs of ALS During ALS Awareness Month

Columns, Notes From the ALS Front - a Column by Rick Jobus

Awareness Breeds Compassion. Compassion Drives Enhanced Funding. Funding Generates Heightened Innovative Intervention Ideas. It all starts with awareness. May is ALS Awareness Month. It is not a coincidence that ... Read more

April 30, 2019April 26, 2019

How My AFOs Helped Me Learn to Live with ALS

Columns, Living Well with ALS - a column by Dagmar Munn

Sometimes we need a nudge to help us get over a mental funk and back into the swing of life. My nudge came from a pair of white ankle-foot ... Read more

April 24, 2019April 22, 2019

Breaking Even with ALS

Columns, Notes From the ALS Front - a Column by Rick Jobus

A zero-sum game is a situation in which the accumulation of gain is accompanied by a sum of loss of equal value. The net result is always zero. From the ... Read more

April 17, 2019April 16, 2019

Murphy’s Law and ALS: Plan for Things to Go Wrong and Pray that They Don’t

Columns, Notes From the ALS Front - a Column by Rick Jobus

“If anything can go wrong, it will.” — Murphy’s Law That adage could be the ALS anthem. From the onset of mysterious symptoms to the serpentine-like diagnostic process and ... Read more

April 16, 2019April 16, 2019

Staying Current on ALS Research and Learning from the Experts

Columns, Living Well with ALS - a column by Dagmar Munn

Recently, I attended an “Ask the Experts” educational seminar sponsored by my local chapter of the ALS Association. It’s an annual event that presents current information on ALS-related topics ... Read more

April 9, 2019May 15, 2019

How I Stop Feeling Overwhelmed by ALS

Columns, Living Well with ALS - a column by Dagmar Munn

It doesn’t matter if you are a patient living with ALS, or the person who provides care, ALS can feel overwhelming. Too many changes, too many decisions, and our ... Read more

April 3, 2019April 2, 2019

Perhaps the ‘Dark Ages’ Can Enlighten Us to Think ‘Why Not?’

Columns, Notes From the ALS Front - a Column by Rick Jobus

*** Instant Karma’s gonna get you, Gonna knock you right on the head, You better get yourself together, Pretty soon you’re gonna be dead. — John Lennon *** One ... Read more

April 2, 2019March 29, 2019

Introducing the ALS News Today Forums, Our Hub for Open Dialogue

Columns, Living Well with ALS - a column by Dagmar Munn

I have exciting news to share with you about a community addition to this site! The ALS News Today Forums, which launched today, is a space designed to give readers ... Read more

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