Columns

January 16, 2020January 14, 2020

I’m Channeling My Grief About ALS into Action and Advocacy

Columns, Joyful Sorrow - a Column by Kristin Neva

The grief that accompanies ALS is multifaceted. I grieve my husband’s loss of function and the loss of our dreams. Just when we find a new normal, there is ... Read more

January 14, 2020January 10, 2020

A New Paradigm for the Future of ALS

Columns, Living Well with ALS - a column by Dagmar Munn

The new year arrived bearing good and bad news. The good news is that 2020 marks my 10th year of living with ALS and I’m still here! The bad ... Read more

January 9, 2020January 8, 2020

Learning the Rules for the Medicare Guessing Game

Columns, Joyful Sorrow - a Column by Kristin Neva

Like many families, we played games over the holidays. Because my husband, Todd, is completely paralyzed due to ALS, we chose games in which he could participate. Apples to ... Read more

January 7, 2020January 3, 2020

Join Our Virtual Friendly Neighborhood, the ALS News Today Forums

Columns, Living Well with ALS - a column by Dagmar Munn

Last year, while serving as a moderator for the ALS News Today Forums, I added more than 355 people to my circle of ALS friends. And in the short ... Read more

January 2, 2020December 19, 2019

Ordinary Outings Are Arduous with ALS

Columns, Joyful Sorrow - a Column by Kristin Neva

My Facebook friends post accomplishments like completing a 5K run. If I were to post my accomplishments, I would include taking my husband, Todd, to my daughter’s school concert. ... Read more

December 19, 2019December 17, 2019

Even Trees Die with No Known Cause or Cure

Columns, Joyful Sorrow - a Column by Kristin Neva

I tell potential customers that my Christmas wreaths will last until Easter. That usually gets a chuckle and often a sale. At a holiday craft fair, a gray-haired man ... Read more

December 18, 2019December 16, 2019

The Art of Declaring War on ALS

Columns, Notes From the ALS Front - a Column by Rick Jobus

Upon the death of someone with ALS, a common theme is often invoked. Words such as heroic or courageous may be chosen to characterize the deceased. The disease’s course ... Read more

December 12, 2019December 10, 2019

In Defense of Delight in the Midst of Suffering

Columns, Joyful Sorrow - a Column by Kristin Neva

If my husband, Todd, did not have ALS, there would still be someone else with ALS. And there’s cancer. Childhood illness. Tragic accidents. But winter has arrived on the ... Read more

December 10, 2019December 6, 2019

What (Not) to Say to a Friend Who Has ALS

Columns, Living Well with ALS - a column by Dagmar Munn

Whether I’m at a social gathering or in the middle of a lighthearted chat in the grocery store, there’s no doubt about it — people can say the darndest ... Read more

December 5, 2019January 15, 2020

Grief Is a Wolf that Demands Attention

Columns, Joyful Sorrow - a Column by Kristin Neva

As I approached the one-year anniversary of my husband, Todd’s, ALS diagnosis, I wrote in my journal: “I want to be happy, healed, and whole again. But the grief ... Read more