Columns

April 15, 2021April 12, 2021

Wanting More Than Family Screen Time

Columns, Joyful Sorrow - a Column by Kristin Neva

Family movie nights are great, but it’s a challenge to think of other things we can do together now that my husband, Todd, is paralyzed from ALS. I’ve long had ... Read more

April 14, 2021April 12, 2021

Celebrating a Trivial Pursuit at the 100 Mark

Columns, Notes From the ALS Front - a Column by Rick Jobus

“One hundred bottles of beer on the wall, One hundred bottles of beer! Take one down, Pass it around, Ninety-nine bottles of beer on the wall!” That ditty was invariably ... Read more

April 13, 2021April 9, 2021

Friends Don’t Tell Friends How to Cure Their Disease

Columns, Living Well with ALS - a column by Dagmar Munn

It all began as one of those typical online interactions when someone reaches out and asks for help. A gentleman contacted me via Facebook, explaining that his friend was recently ... Read more

April 8, 2021April 5, 2021

Spring Break With ALS Comes With Sacrifice and Love

Columns, Joyful Sorrow - a Column by Kristin Neva

I think a lot about how a parent’s ALS affects kids. Recently, an online friend lost her husband to ALS. She has small children and has been posting about their ... Read more

April 7, 2021April 5, 2021

Bifocal Vision Correction and the Art of Dance

Columns, Notes From the ALS Front - a Column by Rick Jobus

“I can see clearly now the rain is gone. I can see all obstacles in my way. Gone are the dark clouds that had me blind.” Last week, the Jimmy ... Read more

April 6, 2021April 2, 2021

How ‘Self-care Minis’ Help Me Through a Busy Day

Columns, Living Well with ALS - a column by Dagmar Munn

I’m always on the lookout for self-care strategies that help me cope and live with my ALS. Recently, I added two quick and easy skills I call “self-care minis” to ... Read more

April 1, 2021March 30, 2021

‘Why Didn’t You Tell Me I Was Happy?’

Columns, Joyful Sorrow - a Column by Kristin Neva

After my husband, Todd, was diagnosed with ALS, we thought he would have at most five years to live. We started with only two major goals: take a family vacation ... Read more

March 31, 2021March 29, 2021

Life Imitating Art Imitating Life

Columns, Notes From the ALS Front - a Column by Rick Jobus

“They’re gonna put me in the movies, They’re gonna make a big star out of me, … And all I gotta do is act naturally.” — Johnny Russell Two weeks ... Read more

March 25, 2021March 23, 2021

Discovering the World Is Broken

Columns, Joyful Sorrow - a Column by Kristin Neva

“What the heck happened to that guy?” a young boy called loudly to a woman leading him and other preschool children across the parking lot. I was loading my husband, ... Read more

March 24, 2021March 22, 2021

I’m Craving a Measured Change of Seasons

Columns, Notes From the ALS Front - a Column by Rick Jobus

“When she walks, she’s like a samba, That swings so cool and sways so gently, That when she passes, Each one she passes goes, ‘Ah.’” One day last month, if ... Read more