Columns

August 13, 2020August 11, 2020

Just Showing Up Is an Accomplishment

Columns, Joyful Sorrow - a Column by Kristin Neva

Years before my husband was diagnosed with ALS, I coordinated a tutoring program in Milwaukee. Many of the children and teens I worked with lived with stress and instability ... Read more

August 12, 2020August 10, 2020

Is It a Jinx or a Sphinx?

Columns, Notes From the ALS Front - a Column by Rick Jobus

“You don’t tug on Superman’s cape, You don’t spit into the wind, You don’t pull the mask off the old Lone Ranger, And you don’t mess around with Jim.” ... Read more

August 6, 2020August 3, 2020

Train Your Eyes to Find the Light

Columns, Joyful Sorrow - a Column by Kristin Neva

Weeks after my husband’s ALS diagnosis, we were still in shock, but we mustered ourselves for a family outing on my 33rd birthday. We planned the day around our ... Read more

August 5, 2020August 6, 2020

Navigating an Uncertain (Lega) Sea

Columns, Notes From the ALS Front - a Column by Rick Jobus

“The world will little note, nor long remember …”  These words of Abraham Lincoln were his prediction that the speech containing them would have no permanence. Ironically, the Gettysburg ... Read more

August 4, 2020August 5, 2020

Taming My Runaway Thinking

Columns, Living Well with ALS - a column by Dagmar Munn

Racing thoughts, runaway thoughts. Whatever you call ’em, I caught ’em. Yup, a case of full-blown, out-of-control, runaway thoughts. I hadn’t had them for years — not since the ... Read more

July 30, 2020July 27, 2020

Snapshots of Life With ALS

Columns, Joyful Sorrow - a Column by Kristin Neva

“Thank God I didn’t have to cough this weekend,” my husband, Todd, said after his parents left. They had been visiting us from Minnesota. A couple months ago, his ... Read more

July 28, 2020August 4, 2020

Knitting My Way to a Solution for the Chills

Columns, Living Well with ALS - a column by Dagmar Munn

Last week, I had the pleasure of joining the Fox Valley/Lakeshore ALS Virtual Support Group in Wisconsin as their guest speaker. We had fun discussing ways to reduce stress ... Read more

July 23, 2020July 21, 2020

Searching for a New Map

Columns, Joyful Sorrow - a Column by Kristin Neva

“I keep pulling it out — the old map of my inner path,” Joyce Rupp writes in her poem “Old Maps No Longer Work.” I was introduced to Rupp’s ... Read more

July 22, 2020July 27, 2020

The Absurdity of a Progressively Debilitating Terminal Illness

Columns, Notes From the ALS Front - a Column by Rick Jobus

 “Oh, I used to be disgusted and now I try to be amused.” Those lyrics from the Elvis Costello song “(The Angels Wanna Wear My) Red Shoes” are an ... Read more

July 21, 2020July 21, 2020

Let’s Go to the Movies

Columns, Living Well with ALS - a column by Dagmar Munn

During these past few months, like most folks I know, I’ve been watching movies — lots of movies. And by now, my wish list of titles is pretty well ... Read more