Columns

March 23, 2021March 19, 2021

My COVID-19 Vaccine Included a Shot of Positive Attitude

Columns, Living Well with ALS - a column by Dagmar Munn

Although I was smack in the middle of a vast parking lot and surrounded by a hundred strangers, I felt genuinely hopeful for the first time in a long, long ... Read more

March 18, 2021March 16, 2021

Giving Up Social Media Isn’t That Simple for Caregivers

Columns, Joyful Sorrow - a Column by Kristin Neva

I gave up social media for Lent. Many Christians deny themselves some pleasure or refrain from a vice or a bad habit for a period of preparation and reflection in ... Read more

March 17, 2021March 15, 2021

A Smart, Shakespearean Perspective on Missing the Mark

Columns, Notes From the ALS Front - a Column by Rick Jobus

“Missed it by that much …” That was one of the catchphrases from the farcical spy situation comedy “Get Smart,” a Mel Brooks brainchild. Maxwell Smart, Agent 86, frequently uttered ... Read more

March 16, 2021March 12, 2021

How I Live With Gravity, Coincidence, and ALS

Columns, Living Well with ALS - a column by Dagmar Munn

I’ll admit that during my high school days, when our studies turned toward physics, I didn’t pay much attention. Gravity, the invisible force that keeps us on the ground and ... Read more

March 11, 2021March 8, 2021

Life With ALS Is Hard, and Sometimes the Little Things Are Too Much

Columns, Joyful Sorrow - a Column by Kristin Neva

Sometimes little things push me over the edge. One morning last week, I was already cranky because I had burnt the oatmeal. The smell followed me, lingering in my hair ... Read more

March 10, 2021March 8, 2021

Peaceful Reflections From an Empty Bucket

Columns, Notes From the ALS Front - a Column by Rick Jobus

“‘Cause I got a peaceful, easy feelin’, And I know you won’t let me down, ‘Cause I’m already standin’ On the ground.” Those lyrics by Jack Tempchin, sung by the ... Read more

March 9, 2021March 5, 2021

With Clinical Trial Criteria, We’re Stuck on the Outside, Looking In

Columns, Living Well with ALS - a column by Dagmar Munn

“Have you ever participated in clinical trials?” That’s a common question among ALS patients. What’s my standard answer? “It’s complicated. I’m participating in several studies, but even though I’d like ... Read more

March 4, 2021March 2, 2021

I’m Thankful for Getting a Chance to Miss You

Columns, Joyful Sorrow - a Column by Kristin Neva

“I’m glad I got the chance to miss you,” I told my husband, Todd, when I got home after a day trip skiing with our children last week. Since Todd ... Read more

March 2, 2021February 26, 2021

Echo! Can You Understand Me, Now?

Columns, Living Well with ALS - a column by Dagmar Munn

Last week, I stepped onto my soapbox (mine has special safety handrails) and voiced my opinion about an issue that’s been bugging me for several years. It’s a problem I ... Read more

February 25, 2021February 22, 2021

It’s Important to Share Our ALS Stories on Rare Disease Day

Columns, Joyful Sorrow - a Column by Kristin Neva

I was overcome with grief after my husband, Todd, was diagnosed with ALS. He was just 39. Our daughter was 4 years old, and our son was 9 months old. ... Read more

Pin It on Pinterest