Columns

November 6, 2019November 4, 2019

A Night of Heroes: I Was Humbled to Speak at an MDA Fundraiser

Columns, Notes From the ALS Front - a Column by Rick Jobus

“I think of a hero as someone who understands the degree of responsibility that comes with his freedom.” —Bob Dylan Recently, I had the pleasure of participating in the ... Read more

November 5, 2019November 1, 2019

The Power of My ALS Role Models

Columns, Living Well with ALS - a column by Dagmar Munn

Do you have an ALS role model? I do. I have a whole collection of ALS role models, and each one helps me power through my day. I’ve always ... Read more

October 31, 2019October 31, 2019

Imagining Our Lives Without ALS

Columns, Joyful Sorrow - a Column by Kristin Neva

My husband, Todd, recently asked me, “What do you think our life would be like if I hadn’t gotten ALS?” I’ve done this mental exercise before, but never with ... Read more

October 29, 2019October 25, 2019

I’ll Have What She’s Having: ‘ALS Reversals’ Share Good Advice

Columns, Living Well with ALS - a column by Dagmar Munn

We all know there’s no cure for the common cold. But let it be known that you have a cold, and suddenly everyone’s an expert. They’ll share advice, home ... Read more

October 24, 2019October 22, 2019

We’ve Learned to Compartmentalize Family Life While Living with ALS

Columns, Joyful Sorrow - a Column by Kristin Neva

A few months after Todd’s diagnosis, our ALS clinic put me in touch with a woman who was further down the road that I had just begun. Similar to ... Read more

October 17, 2019October 15, 2019

Just Breathe: Dealing with Chronic Stress

Columns, Joyful Sorrow - a Column by Kristin Neva

ALS is now affecting my husband’s breathing. On occasion, Todd’s lungs fill with fluid and he needs me to give him an assisted cough, just as his physical therapist ... Read more

October 16, 2019October 14, 2019

Adding MDA’s Vast Resources to My ALS Arsenal and Giving Back

Columns, Notes From the ALS Front - a Column by Rick Jobus

About a week after my initial ALS diagnosis, the crippling fog that it had produced lifted enough for me to seek a second opinion. The appointment took place at ... Read more

October 10, 2019November 13, 2019

Coming Unstuck and Reaching Beyond Ourselves

Columns, Joyful Sorrow - a Column by Kristin Neva

Before my husband, Todd, got ALS, we had minor problems, but we were full of hope. We had a small baby so I wasn’t getting much sleep, but I ... Read more

October 9, 2019November 13, 2019

Envisioning a Bright Future for Our Survivors

Columns, Notes From the ALS Front - a Column by Rick Jobus

From time to time, a comment in response to one of my columns reveals that the commenter has lost someone to ALS. The first time it happened, I paid ... Read more

October 8, 2019October 4, 2019

Celebrating My Public and Personal Milestones

Columns, Living Well with ALS - a column by Dagmar Munn

In last week’s column, I wrote about a gala banquet that I recently attended. As the event approached, I worried about what I would wear and how others would ... Read more