Columns

December 10, 2020December 7, 2020

Craving Laughter in the Midst of Sorrow

Columns, Joyful Sorrow - a Column by Kristin Neva

It’s time again to send our annual Christmas letter and picture card to our friends and family. Since my daughter could talk, I’ve kept a list of cute things ... Read more

December 9, 2020December 7, 2020

We Are All the Stuff of Legends

Columns, Notes From the ALS Front - a Column by Rick Jobus

“All the world’s a stage, And all the men and women merely players; They have their exits and their entrances; And one man in his time plays many parts ... Read more

December 8, 2020December 4, 2020

Rebuilding My Confidence and Avoiding Life’s Banana Peels

Columns, Living Well with ALS - a column by Dagmar Munn

One of the first symptoms of ALS I experienced was a sudden weakness in my legs and feet. This meant that without warning, whenever I walked I felt as if ... Read more

December 3, 2020November 30, 2020

A Physical Presence in Our Lives

Columns, Joyful Sorrow - a Column by Kristin Neva

On Saturday morning, I lay cuddled next to my husband, Todd, in bed. I could feel his thigh muscles pulse against my leg, misfire after misfire. I wished I ... Read more

December 2, 2020November 30, 2020

Stumbling Upon the Sublime in a Minefield of the Ridiculous

Columns, Notes From the ALS Front - a Column by Rick Jobus

“Well I don’t know how to tell the weight of the sun, … How the home computer has me on the run, … Of all the Nobel prizes that ... Read more

December 1, 2020November 24, 2020

Zooming Past My Previous Predictions

Columns, Living Well with ALS - a column by Dagmar Munn

During these final weeks of 2020, I’ve been reflecting on the various ways this world health crisis has affected the ALS community. One evolving activity that has held my ... Read more

November 25, 2020November 23, 2020

Giving Thanks With 2020 Vision

Columns, Notes From the ALS Front - a Column by Rick Jobus

“I am a rock, I am an island, And a rock feels no pain.” In 2020, there have been none of Paul Simon’s “rocks” to be found in the ... Read more

November 19, 2020November 17, 2020

Growing Up With a Parent’s Illness

Columns, Joyful Sorrow - a Column by Kristin Neva

I cried as I listened to an episode of the “Everything Happens” podcast. Writer Samantha Irby described growing up with sick parents. When she was 9, her mom was ... Read more

November 18, 2020November 16, 2020

Adapting With the Hope That a Tradition Can Be Toppled

Columns, Notes From the ALS Front - a Column by Rick Jobus

“Put me in, coach, I’m ready to play today, Look at me, I can be center field.” John Fogerty’s homage to an aspiring baseball player is reminiscent of my ... Read more

November 17, 2020November 16, 2020

Banishing Thought Loops and Living One Day at a Time

Columns, Living Well with ALS - a column by Dagmar Munn

As one of the moderators for the ALS News Today Forums, I get to welcome new members and learn a little bit about each person. Many of these new ... Read more