Columns

September 12, 2018September 10, 2018

Minding My Manners: ALS and Etiquette

Columns, Notes From the ALS Front - a Column by Rick Jobus

“Manners are a sensitive awareness of the feelings of others. If you have that awareness, you have good manners, no matter what fork you use.” ―Emily Post In case we ... Read more

September 11, 2018September 7, 2018

The ALS Workaround Dilemma

Columns, Living Well with ALS - a column by Dagmar Munn

If you’re like me and live with ongoing physical changes from ALS, you’ve probably used workarounds. What is a workaround? A workaround is a creative, temporary solution that solves ... Read more

September 5, 2018September 4, 2018

ALS Cannot Change Who I Am

Columns, Notes From the ALS Front - a Column by Rick Jobus

“You just got lesson No. 1: Don’t think; it can only hurt the ball club.” That was the advice that Kevin Costner, who portrayed baseball player “Crash” Davis, dispensed ... Read more

September 4, 2018August 31, 2018

How I Took a Vacation from ALS

Columns, Living Well with ALS - a column by Dagmar Munn

Hello again! I’ve just returned from my summer vacation — my month-long vacation from ALS! No, I didn’t suddenly escape my disease or experience a miraculous recovery; my ALS ... Read more

August 29, 2018August 27, 2018

Caregiving Is the Real Labor of Love

Columns, Notes From the ALS Front - a Column by Rick Jobus

Love, according to the Bible’s First Epistle to the Corinthians 13:7, “always protects, always trusts, always hopes, always perseveres.” As Labor Day approaches in the U.S., it is fitting ... Read more

August 22, 2018August 21, 2018

No Room for Pride when ALS Is Involved

Columns, Notes From the ALS Front - a Column by Rick Jobus

“Humility is nothing but truth, and pride is nothing but lying.” ―St. Vincent de Paul I never knew the comical extent of my pride until ALS hit me. Prior ... Read more

August 15, 2018August 14, 2018

All of These People Found Life After ALS

Columns, Notes From the ALS Front - a Column by Rick Jobus

“You can either celebrate what you can do, or mourn what you can’t. Every day I wake up and create a new normal. I don’t dwell on what has ... Read more

August 8, 2018August 6, 2018

Let’s Get Physical: The ALS Exercise Debate

Columns, Notes From the ALS Front - a Column by Rick Jobus

“Use it, or lose it.” That was the motivational summary statement during my first post-ALS diagnosis physical therapy (PT) session. As my condition’s horrific prognosis continued percolating in my ... Read more

August 1, 2018July 30, 2018

A Picture Perfect Start to My Day?

Columns, Notes From the ALS Front - a Column by Rick Jobus

“Be intent upon the perfection of the present day.” –William Law Today I experienced an uninterrupted utopia, recognizing that utopia may be a subjective, non-absolute concept, best expressed in ... Read more

July 25, 2018July 24, 2018

To ‘B’ or Not to ‘B’?

Columns, Notes From the ALS Front - a Column by Rick Jobus

That is the question. Vitamin B, that is. And any other nutritional supplement. Shortly after ALS crashed my party, I was introduced to the book “Eric Is Winning,” by ... Read more

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