Columns

June 20, 2018June 19, 2018

Keeping the Faith

Columns, Notes From the ALS Front - a Column by Rick Jobus

ALS has been a blessing to me. You read that right — a blessing. Oh, it has been many other things: ordeal, handicap, curse, millstone, scene-stealer, tormentor, humiliator, predator, ... Read more

June 6, 2018June 4, 2018

The Placebo Effect of Fighting ALS

Columns, Notes From the ALS Front - a Column by Rick Jobus

“I’m afraid you have amyotrophic lateral sclerosis.” My neurologist continued, “Anyone can get it, even myself,” and like Charlie Brown in the classroom, I shut him off completely, reducing ... Read more

June 5, 2018June 1, 2018

How to Build Your Own ALS Stress Toolkit

Columns, Living Well with ALS - a column by Dagmar Munn

Just as no two ALS journeys are alike, there is no one-size-fits-all method for dealing with the emotional stress of living with this disease. During this past year of ... Read more

May 29, 2018May 25, 2018

From Balloons to Bubbles: How I Breathe Well with ALS

Columns, Living Well with ALS - a column by Dagmar Munn

I know I have no control over how quickly or slowly my ALS progresses, but I can try to hold off the negative effects that come from long periods ... Read more

May 22, 2018May 18, 2018

How I Cruise Through the Slow Lane of ALS

Columns, Living Well with ALS - a column by Dagmar Munn

There’s no doubt about it — living with ALS has sure slowed me down! And if you have ALS, you probably feel your life slowing down as well. It’s ... Read more

May 15, 2018May 14, 2018

Let’s Raise Awareness About the Many Looks of ALS

Columns, Living Well with ALS - a column by Dagmar Munn

The other day, I watched a celebrity interview on TV. The soft-spoken man had short, neat hair and wore a blue button-down shirt. He looked like a banker or an ... Read more

May 9, 2018May 8, 2018

ALS Patients Can Get Medicare Cover for Home Healthcare

Columns, Notes From the ALS Front - a Column by Rick Jobus

My family recently made a welcome discovery. It turns out that home healthcare for ALS patients is covered by Medicare. The revelation came as we faced a dilemma: my ... Read more

May 1, 2018April 30, 2018

Spring and Summer Are Chock-full of ALS Awareness Events

Columns, Living Well with ALS - a column by Dagmar Munn

Are you ready? Then let’s GO! We can climb a mountain, walk a mile, drink a beer, or just shop online — all to raise money for ALS. In ... Read more

April 24, 2018April 23, 2018

Being ALS Support Group Savvy

Columns, Living Well with ALS - a column by Dagmar Munn

In last week’s column, I shared how the simple strategy of showing up helps me live with ALS. This week, I have a suggestion for something that should be at the ... Read more

April 17, 2018April 16, 2018

How I Use ‘Showing Up’ to Help Me Live with ALS

Columns, Living Well with ALS - a column by Dagmar Munn

I experienced quite a few emotional dips during my first year of living with ALS. Dips in the way of full-on mental funks, feeling a loss of purpose, being ... Read more