Living With ALS

Fatigue

As ALS progresses, many patients experience fatigue, a symptom that can severely affect quality of life. Fatigue in ALS may be caused by the death of nerve cells because muscles around the weakened muscle must work harder to compensate for it. Weakness of the muscles involved in breathing may make it difficult for patients to achieve restful sleep, which can also contribute to fatigue.

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Exercise

Exercise may have many benefits for ALS patients, including reducing depression and improving strength and stamina. But it must be performed carefully to be beneficial. Patients should work with a physical therapist to determine how best to exercise safely, as well as to ensure that they include stretching, strength-building, and range-of-motion exercises in their routine.

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Smoking

Smoking is one of the risk factors that has been associated with ALS in several studies. It is not known whether this increased risk is caused by nicotine, oxidative stress, or other toxins in tobacco products. Regardless, studies have shown that smokers are more likely to develop ALS than people who have never smoked, regardless of other factors including age and gender.

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Speech and Communication

The severity of ALS symptoms can vary from patient to patient, but all commonly experience some level of speaking difficulties. As the muscles of the tongue, lips, vocal cords, and chest weaken, ALS patients may experience various speaking problems that can make it difficult to be understood. Difficulty speaking is referred to as dysarthria.

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Emotional and Mental Well-being

Most ALS symptoms are movement-related, but some patients can experience frontotemporal dementia or a condition known as pseudobulbar affect that involves an outward expression of emotions that patients are not really feeling. In addition, those with ALS can experience depression and anxiety.

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Mobility and Movement

As the disease progresses and more muscles are affected, getting around and accomplishing everyday tasks can become increasingly difficult. The degree to which an individual patient is affected can vary significantly, and there is a range of techniques and technologies to keep them independent for as long as possible.

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Breathing Difficulties

Breathing problems typically affect all ALS patients at some point. When the muscles involved in breathing weaken, it becomes difficult to inhale and exhale, causing the patient to take shorter and shallower breaths. This causes less oxygen to enter the blood and less carbon dioxide to be released, potentially leading to poor or restless sleep, fatigue, and headaches.

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Eating and Drinking

Many ALS patients struggle to maintain a full and healthy diet, which can lead to excessive weight loss as well as further fatigue and weakness. However, there is help available and a variety of techniques to try to combat these issues. Finding the best strategy to cope with problems related to eating and drinking can help maintain the best possible quality of life.

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Your ALS Community

Visit the ALS News Today forums to connect with others in the ALS community. These forums are designed for patients, caregivers, and medical professionals to discuss issues, ask questions, and share experiences.

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