News

August 22, 2017

ALS Mutation Kills Nerve Cells by Preventing Protein Clumps from Breaking Apart, Study Reports

Researchers have discovered a new way by which a gene mutation can kill neurons in people with ALS and a related disease, frontotemporal dementia, or FTD. Their discovery, published ... Read more

August 21, 2017August 21, 2017

Perceptive Devices and Tobii Dynavox Partnership Will Combine Facial Expression and Eye Tracking Technology

News

Perceptive Devices, a company specializing in hands-free and voice-free electronic devices, is partnering with eye tracking device maker Tobii Dynavox to develop a new generation of hands-free and voice-free control technology for those ... Read more

August 18, 2017

ALS Association Celebrates 3rd Anniversary of ALS Ice Bucket Challenge with New Campaign

News

The ALS Association is celebrating the third anniversary of the ALS Ice Bucket Challenge with a new awareness and fund-raising campaign to support the amyotrophic lateral sclerosis (ALS) community. ... Read more

August 17, 2017

Increasing Dok-7 Protein Levels May Improve ALS Patients’ Muscle Function, Study Reports

News

Increasing the production of the muscle protein Dok-7 may be a way to treat the muscle weakness in ALS, a Japanese study reports. The research, “DOK7 genes therapy enhances ... Read more

August 16, 2017August 17, 2017

Radicava Hopes, Expectations from NFL’s William White and Doctors at Ohio State

News

William White, who entered Ohio State University on a football scholarship, played for the Buckeyes and earned an engineering degree before going on to an 11-year NFL career with the ... Read more

August 15, 2017

Gene Editing System Revamped to Target RNA Aggregates Found in Inherited ALS

News

Researchers have found a way to break down aggregated RNA molecules that cause diseases such as certain inherited forms of amyotrophic lateral sclerosis (ALS). As the technique has the ... Read more

August 14, 2017August 14, 2017

Radicava, First Approved Therapy for ALS Since 1995, Now Available for U.S. Patients

News

Radicava (edaravone), the first new medication for amyotrophic lateral sclerosis (ALS) in 22 years, is now available in the United States. Approved May 5 by the U.S. Food and Drug Administration ... Read more

August 11, 2017

Brazilian Doctors Prescribing Hemp Cannabis Products to ALS and Psoriasis Patients

News

Brazilian doctors have begun prescribing HempMeds Brasil‘s hemp cannabis oil to ALS and psoriasis patients, the company’s U.S. parent reports. San Diego-based Medical Marijuana said it is the first time Brazilian ... Read more

August 10, 2017

BrainStorm Appoints VP of Patient Advocacy and Government Affairs

News

BrainStorm Cell Therapeutics has appointed a new vice president of patient advocacy and government affairs, a move intended to reinforce the company’s commitment to the amyotrophic lateral sclerosis (ALS) community. ... Read more

August 9, 2017

Amylyx Pharmaceuticals Doses First Patient in Phase 2 Trial of AMX0035 as an ALS Therapy

News

Amylyx Pharmaceuticals has dosed the first patient in a Phase 2 clinical trial that will assess AMX0035’s ability to treat amyotrophic lateral sclerosis. Researchers are seeking 132 participants for the CENTAUR ... Read more