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February 11, 2020February 11, 2020

FDA Efforts to Bring Patients into Treatment Decisions Focus of NORD Webinar

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The U.S. Food and Drug Administration (FDA), a vast government bureaucracy, employs about 17,500 people and had a budget of $5.7 billion in 2019. Yet even with its enormous ... Read more

February 10, 2020February 11, 2020

New Spinal Delivery Method Renders Stem Cell Therapy Safer, More Effective for ALS, Other Diseases, Early Study Suggests

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A new spinal cell delivery method may reduce the risks and boost the effectiveness of stem cell therapy designed to regenerate the nervous system in neurodegenerative diseases such as ... Read more

February 7, 2020February 7, 2020

A 1st ‘Platform’ Trial, Data Hub for Research, and Other Advances in ALS: Talk With MDA

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Much work is ongoing in amyotrophic lateral sclerosis (ALS), as researchers look for better ways of treating people with a disease that progressively cripples and kills motor neurons — ... Read more

February 6, 2020February 6, 2020

With Post-Brexit Move to Amsterdam Complete, EMA Renews Rare Disease Focus

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The gleaming new Dutch headquarters of the European Medicines Agency (EMA), fronting Domenico Scarlattilaan in Amsterdam’s suburban Zuidas business district, finally opened for business last month — just over ... Read more

February 6, 2020February 6, 2020

Tool to Test Health of Mitochondria in Neurons May Lead to ALS Therapies, Study Reports

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A new tool to search for medicines that might treat neurodegenerative diseases linked to problems with mitochondria, including amyotrophic lateral sclerosis (ALS), has been developed by a team of ... Read more

February 6, 2020February 11, 2020

ALS Activist Ed Rapp to Be Honored by Les Turner ALS Foundation

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At the time of his stunning 2015 amyotrophic lateral sclerosis (ALS) diagnosis, Ed Rapp was a veteran Caterpillar executive who had worked and lived around the world. Since being diagnosed, ... Read more

February 5, 2020February 5, 2020

Problems in Single Protein, Gemin3, May Underlie ALS Despite Its Diversity, Study Suggests

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A single protein called Gemin3 may be the bridge linking the varied proteins known to underlie amyotrophic lateral sclerosis (ALS), suggesting a common pathway in this disease, a study using ... Read more

February 4, 2020February 4, 2020

Bloom Science Granted Exclusive Option to License Gut Microbiome-based Therapies for ALS, Other Neurological Disorders

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Bloom Science and Duke University have entered into an exclusive licensing agreement that provides the biopharmaceutical company access to the intellectual property and technology related to unique strain isolates ... Read more

February 3, 2020February 4, 2020

New AI Analysis of Blood Samples May Help Predict Progression of Neurodegenerative Diseases, Study Says

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A new artificial intelligence (AI) algorithm can accurately predict the severity and progression of neurodegenerative diseases, such as Alzheimer’s and Huntington’s, by analyzing gene expression data from blood samples, ... Read more

January 31, 2020January 31, 2020

Preclinical Study Offers New Clues to the Link Between ALS and Type 2 Diabetes

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The presence of autoantibodies against a calcium channel in people with amyotrophic lateral sclerosis (ALS) may explain the frequent development of type 2 diabetes in these patients, a preclinical study ... Read more

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