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May 21, 2019May 21, 2019

ALS Type 8 May Cause Cognitive and Behavioral Changes, Leading to Depression, Study Suggests

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People with familial amyotrophic lateral sclerosis (ALS) related to the gene VAPB — known as ALS type 8 — can show subtle cognitive deficits and obvious behavioral changes, which may lead ... Read more

May 20, 2019May 20, 2019

Using Antibiotics May Increase Risk of Developing ALS, Swedish Study Suggests

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Using antibiotics may increase the risk of developing amyotrophic lateral sclerosis (ALS), with a higher number of prescriptions linked to greater risk, a nationwide study in Sweden suggests. However, ... Read more

May 17, 2019May 17, 2019

Phase 3 Trial Results of Tirasemtiv Show Potential of Similar Therapies for ALS, Researchers Say

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People with amyotrophic lateral sclerosis (ALS) who tolerated higher doses of tirasemtiv showed a trend toward slower decline in breathing muscle activity, although the difference was not statistically significant between those ... Read more

May 16, 2019May 16, 2019

Oxford BioDynamics to Use New Technology as Partner in REFINE-ALS Biomarker Study

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Oxford BioDynamics has joined the REFINE-ALS study, a project designed to detect and measure the levels of specific biomarkers among people with amyotrophic lateral sclerosis (ALS), Mitsubishi Tanabe Pharma ... Read more

May 15, 2019May 15, 2019

Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

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With 250 rare diseases newly identified every year, scientists can barely keep up — even as the healthcare system fails millions of Americans whose rare diseases have already been ... Read more

May 15, 2019May 15, 2019

Mitsubishi Tanabe Launches Online Tool to Help Patients, Caregivers Find ALS Infusion Services

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Mitsubishi Tanabe Pharma America (MTPA) has launched a new database that locates healthcare providers, area infusion treatment centers, and in-home infusion services, with the goal of providing a one-stop ... Read more

May 14, 2019May 14, 2019

ALS Therapy Development Institute Launches #AskMeAboutALS Effort for ALS Awareness Month

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In observance of ALS Awareness Month, the ALS Therapy Development Institute (ALS TDI) has launched a campaign aimed at sparking more discussion about the progressive neurological disease. A leading non-profit ... Read more

May 13, 2019May 13, 2019

Investigational ALS Treatment NPT520-34 Begins Phase 1 Trial in Healthy Volunteers

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NPT520-34, an investigational small molecule for the treatment of Parkinson’s disease and amyotrophic lateral sclerosis (ALS), is being tested on healthy individuals in a new Phase 1 clinical trial, its developer ... Read more

May 10, 2019May 10, 2019

#AANAM — Research Examines Clinical, Genetic Features of ALS Type 4

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New research details some of the clinical and genetic changes and imaging features seen in patients with amyotrophic lateral sclerosis type 4 (ALS4), a subtype of juvenile amyotrophic lateral ... Read more

May 10, 2019May 10, 2019

#AANAM – Genetic Testing Useful for ALS Diagnosis, with Few Patient Concerns for Impact on Well-being, Studies Report

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Only a minority of amyotrophic lateral sclerosis (ALS) patients are concerned about a possible negative impact of genetic testing on their well-being and that of their family, according to ... Read more

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