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March 25, 2020March 25, 2020

‘Hero’ Proteins Protect Cells from Toxic Clumps Underlying ALS, Other Neurodegenerative Diseases

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Human cells produce a type of proteins, termed “Heroes,” that protect against the formation of toxic protein aggregates involved in several neurological conditions, including amyotrophic lateral sclerosis (ALS), and ... Read more

March 24, 2020March 24, 2020

Given Proteins in Blood Cells May Be Markers of ALS and Its Likely Course

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Levels of specific proteins found in specialized immune cells — white blood cells like lymphocytes and monocytes — can serve as biomarkers for amyotrophic lateral sclerosis (ALS), helping doctors to ... Read more

March 23, 2020March 23, 2020

ALS Association Grant to Advance Treatment Aimed at Gut Microbiota

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Bloom Science, a biopharmaceutical company, announced it has received a $500,000 grant from The ALS Association to advance a treatment that, by managing bacteria populations in the gut, might restore ... Read more

March 20, 2020March 20, 2020

Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19

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Even with the coronavirus pandemic ravaging Europe and much of the world, patient advocate Lucia Monaco, PhD, of Italy remains confident that the Paris-based nonprofit she chairs will see ... Read more

March 19, 2020March 19, 2020

FAIM Protein Prevents, Reverses Mutant SOD1 Clumping, Study Shows

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A molecule that prevents cell death was able to prevent and reverse clumping of a mutant form of the protein superoxide dismutase 1 (SOD1) — the underlying cause of ... Read more

March 18, 2020March 18, 2020

Stimulating Muscle Cells May Help to Repair Motor Neurons

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Muscle cell activity helps to promote motor nerve cell repair after injury, scientists found in using a device to model motor neuron and muscle cell interaction. They believe this ... Read more

March 17, 2020March 17, 2020

Patients with Milder Weaknesses Show Ability to Drive in Simulator Study

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Amyotrophic lateral sclerosis (ALS) patients with mild to moderate disease progression show an ability to drive that’s comparable to other adults, despite weaknesses with movement and cognition, a small ... Read more

March 16, 2020March 23, 2020

Collaboration Funds Experimental Therapy for Rare FUS-ALS

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Eight patients will receive jacifusen, an experimental therapy for amyotrophic lateral sclerosis (ALS) caused by FUS gene mutations, under a joint effort from the ALS Association, Project ALS, and Columbia ... Read more

March 13, 2020March 13, 2020

Animal Studies Targeting Mitochondria Help Prolong Survival, Review Shows

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Studies in animal models investigating mitochondrial abnormalities in amyotrophic lateral sclerosis (ALS) found that therapies targeting mitochondria — the powerhouses of cells — are consistently effective in prolonging survival, a ... Read more

March 12, 2020March 23, 2020

Vermont Couple Shares Strategies on Managing Neurodegenerative Disease

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Like many couples, Joe and Linda Lacroix of Milton, Vermont, spent much of their lives working, raising families, maintaining their home, and planning for the future. Unlike most, however, ... Read more

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