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Ray Chandler

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@bobbyrayc

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  • Profile picture of Shannon Halstead

    Shannon Halstead and Profile picture of Ray ChandlerRay Chandler are now friends 6 months, 3 weeks ago

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    Kathryn F. Kennedy and Profile picture of Ray ChandlerRay Chandler are now friends 1 year, 5 months ago

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    Ray Chandler replied to the topic Smoking and ALS in the forum Living With ALS 3 years, 3 months ago

    Yes I think my smoking was one of many contributors to ALS.  I stopped in 97 but still think it may have contributed but is not solely responsible.  There are way too many ‘could haves.’

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    Ray Chandler replied to the topic ALS Functional Rating Scale; Are Subjective Scores a Valid Measurement? in the forum Living With ALS 3 years, 8 months ago

    I don’t think it is a very good measure but like Riluzole it’s all we have.  My current score is 41 but could easily be 38 or 39 depending on how I answer.

    For starters – turning in bed.  At diagnosis I was answering this one with ‘slow and clumsy’.  Turns out it was the bed and not me.  We got a new bed and now the answer is ‘normal fun…[Read more]

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    Dagmar Munn and Profile picture of Ray ChandlerRay Chandler are now friends 3 years, 9 months ago

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    Amanda and Profile picture of Ray ChandlerRay Chandler are now friends 3 years, 10 months ago

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    Ray Chandler replied to the topic ALS and compassionate allowance in the forum Living With ALS 3 years, 10 months ago

    Yes that is a SS requirement. There was a bill recently before Congress to waive the waiting period for certain cases (ALS being one) but I don’t know if it was ever brought up for a full vote.

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    Ray Chandler replied to the topic To work, or not to work? How having ALS influenced your decision in the forum Living With ALS 3 years, 10 months ago

    My doctor more or less made this decision for me.  He sent my employer a letter stating that I should not be working and they sent me on my way the next day.  I started drawing STD, then LTD.  Not knowing a progression rate or what the future held I didn’t fight this.  I feel like I could still be working although some accommodations would hav…[Read more]

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    Ray Chandler replied to the topic ALS and compassionate allowance in the forum Living With ALS 3 years, 10 months ago

    It took about 3 weeks to get approval with benefits kicking in 6 months after quitting work.  SS Disability and Medicare started at the same time.  No visit to the office was required.  I filled out the application online and received a phone call interview from the local office a week or so later.

    Ray

     

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    Ray Chandler became a registered member 3 years, 10 months ago

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 3 years, 10 months ago

      Hello Ray, my name is Dagmar. I’m one of the forum co-moderators and wanted to welcome you and thank you for joining our forum! We hope you will take the time to go through all the open conversations that are in progress and feel free to join in. If you have any questions or concerns or even suggestions, just let us know, and we will do our best t…[Read more]

    • Profile picture of Amanda
      Amanda replied 3 years, 10 months ago

      Good evening Ray and welcome to the ALS forum. I am Amanda, one of the co-moderators of the ALS forum. Have a look at the forum and discussions. You are welcomed post comments, ask questions and provide feedback. We are here to provide support and information. Please let us know if we can do anything to be helpful.

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