No Title

Amanda posted a new activity comment 1 day, 11 hours ago

Hello Terry,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]

View Conversation
Amanda started the topic Grief and our Mental Health in the forum Living With ALS 1 day, 11 hours ago

Anticipatory Grief, for me, has always been more difficult than conventional grief. The waiting, the worrying, and feeling helpless and without any control is unthinkable, yet part of everyday life for a pALS and caregivers.

Perhaps many people share this perspective. You can grieve the loss of a loved one, the loss of your abilities, the loss…[Read more]
Amanda replied to the topic In Loving Memory of Jonathan Maddock in the forum In Loving Memory 1 week ago

Karen and Kelsey,
I’m deeply sadden for your loss and sending you my heartfelt condolences. Thank you for sharing this information with our community.

Warmly,
Amanda
Amanda posted a new activity comment 1 week, 1 day ago

Hello Steven,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]

View Conversation
Amanda posted a new activity comment 1 week, 1 day ago

Hello Sonovia,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]

View Conversation
Amanda posted a new activity comment 1 week, 1 day ago

Hello Gerry,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]

View Conversation
Amanda posted a new activity comment 1 week, 1 day ago

Hello Heidi
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]

View Conversation
Amanda replied to the topic What's the latest news on AMX0035? in the forum Research Topics 1 week, 5 days ago

Hi Stephanie,

I’ve read a little about the Tregs clinical trials online. I believe it is looking at cells in an pALS’s body that don’t perform properly (removing blood and separating) and disrupt the immune system, specifically causing (?) or not preventing inflammation in the body. I can’t remember the exact details. Did you have specific q…[Read more]
Amanda replied to the topic What's the latest news on AMX0035? in the forum Research Topics 1 week, 5 days ago

Hi Stephanie,

I’ve read a little about the Tregs clinical trials online. I believe it is looking at cells in an pALS’s body that don’t perform properly (removing blood and separating) and disrupt the immune system, specifically causing (?) or not preventing inflammation in the body. I can’t remember the exact details. Did you have specific q…[Read more]
Amanda replied to the topic What's the latest news on AMX0035? in the forum Research Topics 1 week, 5 days ago

Hi Stephanie,

I’ve read a little about the Tregs clinical trials online. I believe it is looking at cells in an pALS’s body that don’t perform properly (removing blood and separating) and disrupt the immune system, specifically causing (?) or not preventing inflammation in the body. I can’t remember the exact details. Did you have specific q…[Read more]
Amanda posted a new activity comment 1 week, 5 days ago

Hi Mary,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]

View Conversation
Amanda posted a new activity comment 1 week, 5 days ago

Hello Joseph,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]

View Conversation
Amanda posted a new activity comment 1 week, 5 days ago

Hello Sarah,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]

View Conversation
Amanda posted a new activity comment 1 week, 5 days ago

Hello Rebecca,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]

View Conversation
Amanda posted a new activity comment 1 week, 5 days ago

Hello Wendy,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]

View Conversation
Amanda replied to the topic Social Death in the forum Living With ALS 2 weeks, 4 days ago

Thank you Pete!!
Amanda started the topic Four Kinds of Services for pALS and Caregivers!! What could help you? in the forum Diagnosis Information and General Questions 2 weeks, 4 days ago

What kind of help or services would help you the most?

In-home respite care usually involves a trained professional (often from a home health agency) who comes into the home to provide necessary care during a period of time when the caregiver is away. In some communities, there may be a church, volunteer agency, or group that provides r…[Read more]
Amanda posted a new activity comment 3 weeks ago

Hello Tom,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]

View Conversation
Amanda posted a new activity comment 3 weeks ago

Hello Grase,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]

View Conversation
Amanda posted a new activity comment 3 weeks ago

Hello Angela,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]

View Conversation
Load More