Amanda

Hello David, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]

Hello Geison, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]

Hello Leslie, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]

Hello Gershon, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]

Hello Harold, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]

Good morning David,

Are you home or in the hospital? I hope you are feeling better.

Amanda

Hello Heidi, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]

Oh no, thinking of you David.

Hello Todd, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]

Good morning Forum members, Jorge speaks German. I’ve been using an online German to English translator. I thought I would repost his message in English 🙂

Hello I am from Germany Lac de Constance .. I had gait disorders at the end of 2019, which then became more and more violent. Then I went to the orthopedic surgeon because everyone thought I…[Read more]

David,
I am so sorry to hear you have COVID. It sounds like you are taking care of yourself, please continue to do so. Also, let us know how you are feeling.

Amanda

Andrew,
Thank you for sharing your experiences and making it clear that you are not giving anyone medical advice. This forum is great and our members are wonderful, and especially helpful to each other. Pointing out that each person had individual needs and should be cautious is right on.

Members, please be sure to talk to your medical team…[Read more]

Hello Jorg, und willkommen im ALS-Forum. Ich bin Amanda, eine der Co-Moderatorinnen des Forums. Wir freuen uns, dass Sie unserer Online-Community beigetreten sind. Sie werden feststellen, dass das ALS-Forum aus Menschen mit unterschiedlichen Assoziationen mit ALS besteht. Meine Familie hat eine lange Geschichte von ALS und wir wissen, dass wir…[Read more]

Hello Julia, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]

Hello Karen, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]

I spoke to Dr. Benatar about this study in April. I thought he said they would be publishing results towards the end of the summer, but I haven’t seen that either.