Dagmar Munn

Dagmar Munn started the topic Do you have mobility issues? Take this survey and help a company that is focused on increasing your accessibility in the forum Mobility Aides, Assistive Technology and Medical Equipment 17 hours, 11 minutes ago

VisitAble in Charlottesville, Virginia, is on a mission is to create a more accessible world for those in the disabled community. VisitAble starts by focusing on mobility access and disability etiquette. This survey will help focus their efforts on the most critical mobility access issues.

PREFERABLY THOSE WITH MOBILITY ISSUES are invited to…[Read more]
Dagmar Munn started the topic How do you define an ALS cure? in the forum Research Topics 1 day, 11 hours ago

“Why aren’t researchers doing more to find a cure?” “Why isn’t more effort and money devoted to this?”

Do these questions sound familiar? They are in a piece from a fellow columnist who writes for MS News Today. Although ALS and MS are two different conditions, both share the lack of a medical cure and sustainable treatments.

In his column,…[Read more]
Dagmar Munn replied to the topic Frequent, Intense Exercise is a Risk Factor for ALS – – But is it? in the forum Research Topics 2 days, 18 hours ago

I’m like you, Mike. I’ve been active in sports and fitness-exercise my entire life. And I have sporadic ALS.

But, I don’t believe my activity level was the cause of my ALS. Rather, it gave me a body that was in tip-top shape and better prepared to handle the challenges of living with ALS. If I had any loss of muscle strength, at least I was at a…[Read more]
Dagmar Munn replied to the topic Another theory! Causes of ALS in the forum ALS News 2 days, 18 hours ago

Kathy – – I think you might have read it here in the forums 🙂 we have a discussion going in the Research Forum: https://alsnewstoday.com/forums/forums/topic/frequent-intense-exercise-is-a-risk-factor-for-als-but-is-it/

Basically, it matters whether you have sporadic or genetic ALS. According to this study, we need to differentiate between the…[Read more]
Dagmar Munn replied to the topic Another theory! Causes of ALS in the forum ALS News 3 days, 9 hours ago

… and then there are those pALS like me, who despite living in the dry, desert area – – nowhere near water, coal, or power lines still get ALS. Maybe it’s not always caused by environmental exposure.
Dagmar Munn posted a new activity comment 3 days, 18 hours ago

Hello Bill,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

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Dagmar Munn posted a new activity comment 3 days, 18 hours ago

Hello Cindy,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

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Dagmar Munn posted a new activity comment 3 days, 18 hours ago

Hello Ginger,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

View Conversation
Dagmar Munn posted a new activity comment 4 days, 18 hours ago

Hello Dutch,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

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Dagmar Munn started the topic Frequent, Intense Exercise is a Risk Factor for ALS – – But is it? in the forum Research Topics 5 days, 13 hours ago

Get ready for a flurry of viral articles and posts on social media bashing exercise and ALS. Although we’ve had over 10 years of published research showing the benefits of exercise once you’ve been diagnosed with ALS. New research has been published that delves into the controversy surrounding theories that exercise (or sports) increases the…[Read more]
Dagmar Munn posted a new activity comment 6 days, 13 hours ago

Good to hear that John. Good luck to you on your health journey. 🙂

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Dagmar Munn posted a new activity comment 6 days, 13 hours ago

Hello Robert,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

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Dagmar Munn posted a new activity comment 6 days, 18 hours ago

Hello Stephanie,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing…[Read more]

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Dagmar Munn replied to the topic Birthdays and ALS in the forum Living With ALS 1 week ago

Which forum did you want to post it in? I can change it for you.
Dagmar Munn replied to the topic Birthdays and ALS in the forum Living With ALS 1 week ago

Kathy, it’s easy to fall into that type of thinking. Dwelling on “how many birthdays do I have left?” is the same to me as asking “how long will I live?” No one knows how long they will live (with or without ALS) I have ALS, but that may not be the cause of my demise… tomorrow I could be hit by the beer truck (an old saying)…

Rather than…[Read more]
Dagmar Munn posted a new activity comment 1 week ago

Hello Jalal,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

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Dagmar Munn posted a new activity comment 1 week, 1 day ago

John, it is good that you are planning to see a neurologist for an MRI. I would caution you from taking the advice of people on forums or chat rooms. They are not medical professionals. Don’t second-guess your doctor’s evaluation. Remember, there is still no difinitive test to confirm ALS – – only a battery of tests to rule out other conditions.…[Read more]

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Dagmar Munn replied to the topic ALS – Take Action Website in the forum ALS Awareness and Advocacy 1 week, 1 day ago

Jim, That is an interesting article. I believe that one of Dr Bedlack’s theories on ALS “reversals” is that their axons sprout and make compensation connections. He points to this happening in the case of those patients who recover from polio. Worth pursuing!
Dagmar Munn posted a new activity comment 1 week, 1 day ago

Hello Jenny, I’m sorry that your husband’s ALS is progressing so fast. It sounds like you are keeping up with the changes and following his neurologist’s recommendations for next-step-surgeries. I am not a medical professional and have not experienced the symptoms or treatments your husband has had, so I cannot offer opinions or…[Read more]

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Dagmar Munn replied to the topic ALS – A Looked-over Sickness in the forum ALS Awareness and Advocacy 1 week, 2 days ago

Anyone else feeling slightly irritated when hearing the Governors of different states announce they will give a million dollars away to someone who gets vaccinated? Not only are the “fence-sitters” getting awarded for their procrastination (why did I get min so early and miss out?) BUT ALSO – – it feels unfair that we work so hard to raise funds…[Read more]
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