@dagmar-munn
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Dagmar Munn posted a new activity comment 1 day, 1 hour ago
Hello Vanessa,
Welcome to the forum! I am one of the forum moderators as well as a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by…[Read more]
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Dagmar Munn posted a new activity comment 3 days, 21 hours ago
Hello Kim,
Welcome to the forum! I am one of the forum moderators as well as a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by…[Read more]
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Dagmar Munn posted a new activity comment 4 days, 1 hour ago
Hello Ed,
Welcome to the forum! I am one of the forum moderators as well as a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing…[Read more]
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Dagmar Munn posted a new activity comment 4 days, 1 hour ago
Hello Michelle,
Welcome to the forum! I am one of the forum moderators as well as a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by…[Read more]
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Dagmar Munn posted a new activity comment 5 days, 19 hours ago
Hi David, here is my personal blog : ALS and Wellness Blog https://alsandwellness.blogspot.com/2015/01/welcome.html where I write a lot about what I’m doing to maintain my health and longevity. One of these is exercise… look in my blog index and you’ll find my posts there. Also, feel free to ask me questions 😉 Again, welcome to the forum. Dagmar
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Dagmar Munn posted a new activity comment 5 days, 20 hours ago
Hello David,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Dagmar Munn posted a new activity comment 5 days, 20 hours ago
Hello Mark,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Dagmar Munn posted a new activity comment 5 days, 20 hours ago
Hello Mike,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Dagmar Munn started the topic How do you describe ALS to friends and family? in the forum Living With ALS 6 days, 11 hours ago
For anyone outside of the ALS community understanding exactly what ALS is can be very confusing. In fact, it’s confusing enough for those of us who have it too! I’ve had to answer questions such as: what is ALS? Is it the same as MS? Or, how did you get it?
I know that friends, family, and even strangers who ask me these questions aren’t ready…[Read more]
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Dagmar Munn posted an update 1 week, 2 days ago
November is “Caregiver Appreciation Month” – – but it really should be recognized all year long. Hear is my latest post on my ALS and Wellness Blog: “Finding the Funny Moments in Caregiving” https://alsandwellness.blogspot.com/2022/11/finding-funny-moments-in-caregiving.html
Hug your caregiver today! -
Dagmar Munn posted a new activity comment 1 week, 2 days ago
Hello Rich,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Dagmar Munn posted a new activity comment 1 week, 2 days ago
Hello Matt,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Dagmar Munn posted a new activity comment 1 week, 3 days ago
Hello Stefan, muscle and nerve biopsy is utilized in the US (https://alsnewstoday.com/als-diagnosis/) but not necessary for all cases of diagnosis… as stated in my link. I think countries outside of the US follow their own protocols.
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Dagmar Munn replied to the topic Ankle-Foot Orthosis (AFOs): Your Questions, Tips and Shared Resources in the forum Living With ALS 1 week, 3 days ago
Elaine, I would think that while wearing an AFO on each foot you would be safer to also walk with a walker with wheels. It may seem cumbersome at first, but it does provide stability. AFOs after all, immobilize your ankles, which are important to maintaining balance.
Maybe with one AFO you can walk independently… but with 2, avoid falling by…[Read more]
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Dagmar Munn replied to the topic Ankle-Foot Orthosis (AFOs): Your Questions, Tips and Shared Resources in the forum Living With ALS 1 week, 4 days ago
Hi Patty, I also walk better barefoot (better sensing of balance from skin’s direct contact with the floor), and, I walk better with tennis shoes on around the house than with my AFOs. But I do wear my AFOs going out if I need to avoid foot drag or if need to walk longer distances. (in my case I also use a walker with wheels)
The restriction at…[Read more]
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Dagmar Munn posted a new activity comment 1 week, 4 days ago
I read in your profile that you were looking for more ideas to help live with ALS in a positive manner. May I suggest you look at some of the positivity and motivation from my ALS and Wellness Blog: https://alsandwellness.blogspot.com/2017/09/als-and-wellness-blog-archives.html
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Dear Dagmar,
Thank you very much for the warm hello! I started checking out your blog already.What I was wondering is, why a biopsy is not standard in ALS diagnostics. At least in Germany it’s not done. Do you have anything related?
Best regards
Stefan-
Hello Stefan, muscle and nerve biopsy is utilized in the US (https://alsnewstoday.com/als-diagnosis/) but not necessary for all cases of diagnosis… as stated in my link. I think countries outside of the US follow their own protocols.
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Dagmar Munn posted a new activity comment 1 week, 4 days ago
Hello Sab,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Dagmar Munn posted a new activity comment 1 week, 4 days ago
Hello Stefan,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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I read in your profile that you were looking for more ideas to help live with ALS in a positive manner. May I suggest you look at some of the positivity and motivation from my ALS and Wellness Blog: https://alsandwellness.blogspot.com/2017/09/als-and-wellness-blog-archives.html
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Dear Dagmar,
Thank you very much for the warm hello! I started checking out your blog already.What I was wondering is, why a biopsy is not standard in ALS diagnostics. At least in Germany it’s not done. Do you have anything related?
Best regards
Stefan-
Hello Stefan, muscle and nerve biopsy is utilized in the US (https://alsnewstoday.com/als-diagnosis/) but not necessary for all cases of diagnosis… as stated in my link. I think countries outside of the US follow their own protocols.
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Dagmar Munn posted a new activity comment 1 week, 5 days ago
Hello Marua,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Dagmar Munn posted a new activity comment 2 weeks, 1 day ago
If you have any issues with your photo or anything else on the forum, just send me a message. I’ll be here to help. Again, welcome 😀 Dagmar
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Thank you. This site has been a go-to for me. I am a year in and am hopefully one of the slow progressors. Am curious to hear more of your story; especially your longevity
Hi David, here is my personal blog : ALS and Wellness Blog https://alsandwellness.blogspot.com/2015/01/welcome.html where I write a lot about what I’m doing to maintain my health and longevity. One of these is exercise… look in my blog index and you’ll find my posts there. Also, feel free to ask me questions 😉 Again, welcome to the forum. Dagmar