Dagmar

Dagmar posted an update 2 hours, 41 minutes ago

Happy Monday! I’m sharing my latest blog post “Learning How to Pivot When Living With ALS” https://alsandwellness.blogspot.com/2022/01/learning-how-to-pivot-when-living-with.html
Dagmar replied to the topic How to Keep on Talking: Helpful Tips and Links for ALS-related Dysarthria in the forum Living With ALS 21 hours, 21 minutes ago

I’m not a medical expert, and everyone’s ALS symptoms vary from person to person – – so what is working for me may or may not work for you. But, if you’re anything like me… I figured, what’s the worst that could happen? I could lose my voice… 😊.

1. Premier option: “Living Speech Series for ALS”

This is an excellent online program cov…[Read more]
Dagmar started the topic How to Keep on Talking: Helpful Tips and Links for ALS-related Dysarthria in the forum Living With ALS 21 hours, 28 minutes ago

Research has shown that of all the various ALS symptoms (that can include the loss of use of our arms and legs, loss of swallowing, muscle atrophy, and more) losing the ability to speak (dysarthria) is frequently identified as the worst aspect of having the disease.

It’s something I began struggling with six years ago. And like most other ALS p…[Read more]
Dagmar replied to the topic Is anyone getting the 4th shot/booster? in the forum Coronavirus (COVID-19) and ALS 2 days, 19 hours ago

Klara, I would be happy to share what I’ve been doing to help keep me talking 😀 Rather than post my reply here in this discussion thread, I will gather ALL my information and links and start a new topic in the Living with ALS forum. (I’ll do that tomorrow, on Saturday) That way, more folks can read it and benefit 🙂
Dagmar posted a new activity comment 3 days, 3 hours ago

Hello John,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

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Dagmar posted a new activity comment 3 days, 22 hours ago

Hello Jay,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

View Conversation
Dagmar posted a new activity comment 3 days, 22 hours ago

Hello Patricia,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing…[Read more]

View Conversation
Dagmar started the topic Is anyone getting the 4th shot/booster? in the forum Coronavirus (COVID-19) and ALS 4 days, 3 hours ago

My husband just received a notice from the VA that at the end of January they will be offering the 4th Moderna vaccine shot to VA members and spouses.

When I researched information about recommendations for a 4th “booster” I read mixed opinions. Some recommend it for immunocompromised people, others say wait for a vaccine targeting omicron (maybe…[Read more]
Dagmar posted a new activity comment 4 days, 3 hours ago

Hello Dawn,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

View Conversation
Dagmar posted a new activity comment 4 days, 22 hours ago

Hello Kris,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

View Conversation
Dagmar posted a new activity comment 5 days, 3 hours ago

Hello Tina,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

View Conversation
Dagmar posted a new activity comment 6 days, 2 hours ago

Hello Kelley,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

View Conversation
Dagmar started the topic ALS Community Invited to Help Set Research Priorities in US in the forum Research Topics 6 days, 19 hours ago

(from an article in ALS News Today)
“The National Institute of Neurological Disorders and Stroke (NINDS) is asking people across the amyotrophic lateral sclerosis (ALS) community to submit their preferences regarding what should be prioritized to accelerate ALS research.

NINDS, which is part of the National Institutes of Health (NIH), is…[Read more]
Dagmar posted a new activity comment 6 days, 21 hours ago

We are happy you joined us – – and look forward to learning from you. 🙂

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Dagmar posted a new activity comment 6 days, 22 hours ago

Hello Kwmechelle,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by…[Read more]

View Conversation
Dagmar posted a new activity comment 6 days, 22 hours ago

Hello Max,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

View Conversation
Dagmar posted a new activity comment 6 days, 22 hours ago

Hello Pat,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

View Conversation
Dagmar posted a new activity comment 6 days, 23 hours ago

Hello Barbara,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

View Conversation
- Barbara A Lavelle replied 6 days, 22 hours ago
  
  Thank you Dagmar, I am looking forward to being a member and learning more about ALS. I live in San Francisco. I’ve been on/off the ALS road for the last 17 years. Just recently I am being evaluated again to see if I have ALS. Looking forward to sharing my story. Thank you again.
  - Dagmar replied 6 days, 21 hours ago
    
    We are happy you joined us – – and look forward to learning from you. 🙂
Dagmar posted a new activity comment 1 week, 2 days ago

Hello David,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

View Conversation
Dagmar posted a new activity comment 1 week, 2 days ago

Hello Charity,

Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

View Conversation
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