Base

Name

Kathryn F. Kennedy

Nickname

kathryn-f-kennedy

Year of Birth

1953

Gender

Female

Location

Tyler

Relationship

Patient

Short Bio

Was diagnosed in August 2018.  I am the 7th relative on my Mother’s side of the family to have ALS.  Currently on Riluzole and Radicava, which has definitely helped but of course am continuing to slowly decline.  I am truly blessed to have the greatest husband in the world, and extremely devoted family and friends.  I am also extremely grateful that this diagnosis was not a surprise.

I truly feel feel so terribly saddened that 90-95% of ALS patients have no experience or knowledge of why this devastating disease occurred.

How did you hear about us?

ALS Website

How long have you or the person that you are caring for had ALS?

1 year 3 months

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