| Short Bio |
My brother is diagnosed with ALS about 6 months ago and we are all devastated. We do not know anyone with this dreadful disease and it’s very heartbreaking to witness someone you love deteriorates so rapidly and losing his mobility, freedom and dignity. I’d like to join this forum so that I can share experiences and learn how others cope with caring for someone who has ALS, advice, and more importantly to keep updated with any future drugs that may help slowing down this awful disease.
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| How long have you or the person that you are caring for had ALS? |
8 months
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