• Jane Kriskey started the topic Clinical trials in the forum Using our Forums 11 months, 1 week ago

    I find it amazing that there are never any trials to participate in. I search all over and see nothing, This is frustrating and also very confusing. I am beginning to wonder if they even exist. One would think that after a few years of searching I would find one that is accepting people. They are either old and finished or filled up. I guess it is a waste of time.

    • Jane,

      The “I AM ALS” website has a complete and up-to-date listing of all ongoing clinical trials for ALS. A the top of the page is an explanation. The dashboard is a the bottom:

      ALS Signal – Explore ALS Clinical Research, Trials and Studies

    • Jane,

      Have you talked with your medical providers about trials? Are you going to an ALS clinic? Often times they have “ins” to trials and studies.

      Jane – what are you goals for volunteering? Are you trying to contribute to research? Desire access to experimental medications? Do you have a family history of ALS?

      I have seen that the criteria for each study is very specific and limiting. Sometimes it requires a diagnoses of less than a specified time period or a certain gene mutation. Regardless, try reaching out to an ALS Clinic and see if they can point you in the right direction or help you in some way.

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