@bakereld
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Joan replied to the topic Understanding PFT in the forum Diagnosis Information and General Questions 1 week, 5 days ago
You need to see a pulmonologist ( lung doctor) specializing in ALS
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Joan replied to the topic Update us on the research and trials you are in!! in the forum Research Topics 3 weeks, 3 days ago
Jim
the amx0035 is in a phase 3 trial Phoenix and is applying for expanded access also which you could qualify for potentially
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Joan replied to the topic Alternative Medicine and ALS in the forum Living With ALS 1 month, 1 week ago
Thank you
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Joan replied to the topic Dude about diagnosis in the forum Diagnosis Information and General Questions 1 month, 2 weeks ago
I would not wait but see an ALS expert and they are hard to find
She needs to have everything else excluded but then should consider treatment now and not wait
You never know how long you have to livei had to go to another state to see the correct doctors
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Joan replied to the topic Dude about diagnosis in the forum Diagnosis Information and General Questions 1 month, 2 weeks ago
I would not wait but see an ALS expert and they are hard to find
She needs to have everything else excluded but then should consider treatment now and not wait
You never know howling you have to live -
Joan posted a new activity comment 1 month, 2 weeks ago
Thank you
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Joan became a registered member 1 month, 2 weeks ago
Hello Joan,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
Thank you