Short Bio |
I was diagnosed with ALS a year ago (onset was two years ago). I was a journalist for 40 years. A reporter and photographer team are documenting my life with ALS. The story will also include my interviews with NurOwn succeses and Right to Try updates. I’ll be participating in the (delayed) Healey Platform Trial (hopefully I’ll be selected for Verdiperstat treatment) If any of you guys are interested, I can pass info along.
|
How long have you or the person that you are caring for had ALS? |
Two years
|