@bobscannell
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Bob Scannell started the topic Gabapentin, good or bad for ALS? in the forum Living With ALS 1 year, 12 months ago
My wife, who has ALS, was having severe itching issues. We tried various things, then a doc suggested Gabapentin. So far it seems to have helped the itching. I have also read that there are some potential other positives about Gabapentin for ALS, which is encouraging to maybe stay on this med. But, I have also read some potential downsides, in…[Read more]
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Bob Scannell started the topic EAP and Right to Try in the forum Research Topics 2 years, 2 months ago
Where is best place to find out information on these, and more specifically, given a need to prioritize where to spend time finding help for my wife’s ALS, are either of these worth pursuing, or just a bunch of words which in the end are not available for most?
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Bob Scannell replied to the topic Preparing for the future – Healthcare in the forum A Forum for ALS Caregivers 2 years, 7 months ago
My wife is just recently diagnosed with ALS. She is 52. She is not eligible for Social Security Disability, because she has been a stay at home Mom since our first child was born.
So, we are not able for Medicare through Social Security.
Is there another means of getting into Medicare (because of ALS), other than through Social Security Disability?
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Bob Scannell posted a new activity comment 2 years, 7 months ago
Thank you both for reaching out. My wife is newly diagnosed with ALS, and we are trying to learn, quickly. Your work is helpful, and your support is very much appreciated!
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Bob Scannell became a registered member 2 years, 7 months ago
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Hello Bob,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns, or even…[Read more]
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Hello Bob, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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Thank you both for reaching out. My wife is newly diagnosed with ALS, and we are trying to learn, quickly. Your work is helpful, and your support is very much appreciated!
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Bob,
Have you contacted your local ALS Association Chapter to see if they had advice or information. If you find out anything please post the information in the forums. I’m sure that others are in similar positions. I’ll be following to see if anyone in our online community has information.