The neurologist my husband saw where we live was AWFUL! He painted a doomsday scenario and basically told my husband that the current meds don’t do much and to prepare to get a wheelchair, feeding tube and decide if he wanted to go on a ventilator.
We immediately got an appointment at The Barrow Institute in Phoenix and flew down there. The doctor there, Jeremy Shefner, was WONDERFUL. He, unfortunately, confirmed the diagnosis, but told us it was moving slowly and said to my husband, “If you don’t walk in here on your own two feet a year from now, it’s because you got hit by a truck.” You can imagine what that did for our spirits.