| Short Bio |
Hi, I was diagnosed 11/22 after a year of leg and arm weakness. Not genetic, nobody in my family has any neuro history. Worked as an RN. Now on Riluzole and Relyvrio I do not feel it helps, getting weaker and have a powerchair ordered. I have no energy. Insurance denied Radicava since I can not get up any steps…It is a daily struggle. I have friends helping me but have to look for a paid caregiver that can help me with daily chores. How does paid caregiving work? Will the insurance pay?
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| How long have you or the person that you are caring for had ALS? |
11/2022
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