@christina-birdsong
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Christina Birdsong replied to the topic Confused about progression of symptoms in the forum Diagnosis Information and General Questions 1 week ago
Hello,
I have experience muscle wasting, particularly in my right leg and arm. Even the right side of my chest has muscle wasting. When I went to Johns Hopkins, where I was diagnoses, they referred me for 6 months of physical therapy. It has worked wonders. They acutally got me off the walker and onto a cane (for now). I’m now able to walk…[Read more]
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Christina Birdsong replied to the topic Your tips, advice, and words of wisdom for others in the ALS community in the forum Living With ALS 1 week, 2 days ago
Hello. My doctor thinks I may have “Slow ALS” which means I could live far longer. I find very little literature on the web about slow ALS. Does anyone have information to share with me? I would so appreciate it.
Thank you,
Christina
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Christina Birdsong replied to the topic How to respond when someone greets you with “How are you doing?" in the forum Living With ALS 1 month, 1 week ago
Likewise, while I appreciate getting cards, those that are “Get well” cards are problematic. Perhaps my friend doesn’t know what ALS is. I choose to just appreciate that they thought me. I think it has helped that people can be referred to Caring Bridge, where what’s going on with me can be found, and I invite questions. The more people that…[Read more]
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Christina Birdsong replied to the topic First Symptoms in the forum Living With ALS 1 month, 3 weeks ago
Thank you for all the responses. They have been helpfully informative to me. I was diagnosed in August of last year. Currently I have much muscle wasting in my right chest and have thus lost strength in my right arm. My knees have started buckling and I am falling. The level of fatigue is somewhat shocking to me as I feel strong, my mind feels…[Read more]
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Christina Birdsong replied to the topic What aspect of ALS has surprised you the most? in the forum Living With ALS 2 months ago
Yes, it is extraordinarily different from person to person. My first symptom was my eyesight going in and out. Periodically everything I looked at became white and then resolved back into the way it out to appear. Then I found that I could not lift my head up when I was laying down. I began to have remarkable muscle wasting between my left and…[Read more]
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Christina Birdsong started the topic First Symptoms in the forum Living With ALS 2 months, 2 weeks ago
Hello. I was diagnosed last month. I would appreciate knowing what the first symptoms were that led other patients to see medical advice. What told you something was wrong? For me it was severe fatigue. Thank you.
Christina
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Christina Birdsong became a registered member 2 months, 2 weeks ago
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Hello Christina,
Welcome to the forum! I am one of the forum moderators as well as a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by…[Read more]
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Hello again,
Just a friendly reminder for you to click on your forum profile and complete the missing information. It is helpful to know a bit more about you when you are participating in our forum discussions. Again, welcome! Dagmar
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My first symptoms were a profound weakness in my right foot. I dragged my toes and tripped a lot. Other ALS patients notice different areas like speech, swallowing, hand weakness, etc. they are all signs to get checked by a neurologist.
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Hello Christina,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an e…[Read more]
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Christina,
I have a mutation associated with a slow progression. If you want to talk just PM me! I’m the 15th person in my family with ALS so, unfortunately I’ve seen more than I would like.