@cindy
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Cindy posted a new activity comment 1 year, 7 months ago
Thank you so much, I am making my way through this site and forum. My husband was diagnosed a few weeks ago and we are going to the Wash U ALS center on Thursday and have been working on my list of questions and wondered if anyone had questions they had asked or wish they had asked at the beginning?
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Cindy posted a new activity comment 1 year, 7 months ago
Thank you so much, I am making my way through this site and forum. My husband was diagnosed a few weeks ago and we are going to the Wash U ALS center on Thursday and have been working on my list of questions and wondered if anyone had questions they had asked or wish they had asked at the beginning?
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Cindy became a registered member 1 year, 8 months ago
Hello Cindy,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
Thank you so much, I am making my way through this site and forum. My husband was diagnosed a few weeks ago and we are going to the Wash U ALS center on Thursday and have been working on my list of questions and wondered if anyone had questions they had asked or wish they had asked at the beginning?
Hello Cindy, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
Thank you so much, I am making my way through this site and forum. My husband was diagnosed a few weeks ago and we are going to the Wash U ALS center on Thursday and have been working on my list of questions and wondered if anyone had questions they had asked or wish they had asked at the beginning?