@crider
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Creighton Rider replied to the topic Calling all forum members with an ALS-related blog in the forum Living With ALS 1 month, 2 weeks ago
Live ’til you die
find my rambling thoughts about ALS at -
Creighton Rider replied to the topic Neck drop in the forum A Forum for ALS Caregivers 6 months ago
if he is still walking, check out stopheaddrop.com. For sitting, try Headmaster
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Creighton Rider replied to the topic All About: Neck, Hand and, Foot/Ankle Braces in the forum Mobility Aides, Assistive Technology and Medical Equipment 8 months, 3 weeks ago
Hi Dagmar-
My symptoms started with hand/arm weakness, but then affected my neck before my legs. I tried many neck braces before settling on a Headmaster for its ease of use. And although it gave me good support, I didn’t like the restrictions of fixed braces that prevented me from turning my head, talking, or looking down. I was tired of…[Read more]
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Creighton Rider replied to the topic The best appliance (or gizmo/gadget) that I own is… in the forum Living With ALS 1 year, 7 months ago
Ah, great topic, Dagmar. Since ALS is a progressive disease, our needs are a moving target. As a result, my favorite tools have changed quite a bit though my twelve years of life with ALS. My journey started with the loss of the use of my hands and arms. My speech was still fine, so Dragon Dictation was high on my list, as I could quickly type…[Read more]
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Creighton Rider became a registered member 2 years, 1 month ago
Hello Creighton, this is Dagmar! I’m one of the forum co-moderators and I welcome you and thank you for joining our forum! We hope you will take the time to go through all the open conversations that are in progress and feel free to join in. The easiest way to see what is current is to click “Activity” on the top menu bar. Then scroll down.…[Read more]
Hello Creighton and welcome to that ALS forum. Thank you for joining our members.
Please have a look at the ongoing discussions and topics. You are welcomed to respond, ask questions and post topics.
If you have any ideas or suggestions please let myself or Dagmar know. We want to make sure that the forum is a supportive environment with…[Read more]