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Creighton Rider replied to the topic In Memory of Rick Jobus in the forum In Loving Memory 1 week ago
Aw, no. So sorry to hear the news. He was a stalwart; it was always fun to read his articles and see what song he would weave in to the article. I will miss him. My condolences to you, Dagmar, as from the readers’ perspective it seems as one of your comrades has fallen. Hang in there and keep carrying the banner forward.
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Creighton Rider replied to the topic Hop on a Cure! in the forum ALS Awareness and Advocacy 4 weeks ago
…make that John Driskell Hopkins, aka “Hop”
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Creighton Rider replied to the topic I wrote a song for ALS Awareness Month in the forum ALS Awareness Month 1 month, 1 week ago
Thanks Lisa. Feel free to share it!
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Creighton Rider replied to the topic I wrote a song for ALS Awareness Month in the forum ALS Awareness Month 1 month, 1 week ago
Thank you Steve. I’m sorry about your Dad. It’s a terrible disease indeed.
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Creighton Rider replied to the topic I wrote a song for ALS Awareness Month in the forum ALS Awareness Month 1 month, 1 week ago
Thanks Len! I love the music genre.
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Creighton Rider started the topic I wrote a song for ALS Awareness Month in the forum ALS Awareness Month 1 month, 1 week ago
A few years ago, in the back seat of a Suburban rolling down the highway, some words popped into my head about my journey with ALS. They were lyrics dancing around in my brain, and I even heard a deep country voice singing it. I only got two or three verses figured out in the car, and when I got home I typed them out with my toes, and never…[Read more]
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Creighton Rider replied to the topic How to Post Topics/Messages/Status Updates in Our Forums in the forum Using our Forums 1 month, 2 weeks ago
hi guys- I recently wrote a song about ALS and wanted to share it with the community for ALS Awarenesses month. How do I do that? It is already up on YouTube.
Thanks !
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Creighton Rider replied to the topic Calling all forum members with an ALS-related blog in the forum Living With ALS 10 months ago
Live ’til you die
find my rambling thoughts about ALS at -
Creighton Rider replied to the topic Neck drop in the forum A Forum for ALS Caregivers 1 year, 2 months ago
if he is still walking, check out stopheaddrop.com. For sitting, try Headmaster
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Creighton Rider replied to the topic All About: Neck, Hand and, Foot/Ankle Braces in the forum Mobility Aides, Assistive Technology and Medical Equipment 1 year, 5 months ago
Hi Dagmar-
My symptoms started with hand/arm weakness, but then affected my neck before my legs. I tried many neck braces before settling on a Headmaster for its ease of use. And although it gave me good support, I didn’t like the restrictions of fixed braces that prevented me from turning my head, talking, or looking down. I was tired of…[Read more]
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Creighton Rider replied to the topic The best appliance (or gizmo/gadget) that I own is… in the forum Living With ALS 2 years, 3 months ago
Ah, great topic, Dagmar. Since ALS is a progressive disease, our needs are a moving target. As a result, my favorite tools have changed quite a bit though my twelve years of life with ALS. My journey started with the loss of the use of my hands and arms. My speech was still fine, so Dragon Dictation was high on my list, as I could quickly type…[Read more]
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Creighton Rider became a registered member 2 years, 10 months ago
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Hello Creighton, this is Dagmar! I’m one of the forum co-moderators and I welcome you and thank you for joining our forum! We hope you will take the time to go through all the open conversations that are in progress and feel free to join in. The easiest way to see what is current is to click “Activity” on the top menu bar. Then scroll down.…[Read more]
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Hello Creighton and welcome to that ALS forum. Thank you for joining our members.
Please have a look at the ongoing discussions and topics. You are welcomed to respond, ask questions and post topics.
If you have any ideas or suggestions please let myself or Dagmar know. We want to make sure that the forum is a supportive environment with…[Read more]
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Hi Creighton – – that is great that you have written a song about ALS that you’d like to share with us.
Just go to the forum “ALS Awareness Month” and start a new topic. Give it a title referring to your song, and in the description tell us the title and a little about it and why/how you wrote it. Then – – add the YouTube link.
I’ll be on the…[Read more]
Creighton,
Can you post the link on the forums?