Creighton Rider

Aw, no.  So sorry to hear the news.  He was a stalwart; it was always fun to read his articles and see what song he would weave in to the article.  I will miss him.  My condolences to you, Dagmar, as from the readers’ perspective it seems as one of your comrades has fallen.  Hang in there and keep carrying the banner forward.

…make that John Driskell Hopkins, aka  “Hop”

Thanks Lisa.  Feel free to share it!

Thank you Steve.  I’m sorry about your Dad.  It’s a terrible disease indeed.

Thanks Len!  I love the music genre.

hi guys- I recently wrote a song about ALS and wanted to share it with the community for ALS Awarenesses month.  How do I do that?   It is already up on YouTube.

Thanks !

Live ’til you die
find my rambling thoughts about ALS at

http://live-til-you-die.blogspot.com/?view=magazine

if he is still walking, check out stopheaddrop.com.  For sitting, try Headmaster

Hi Dagmar-

My symptoms started with hand/arm weakness, but then affected my neck before my legs. I tried many neck braces before settling on a Headmaster for its ease of use. And although it gave me good support, I didn’t like the restrictions of fixed braces that prevented me from turning my head, talking, or looking down. I was tired of…[Read more]

Ah, great topic, Dagmar. Since ALS is a progressive disease, our needs are a moving target. As a result, my favorite tools have changed quite a bit though my twelve years of life with ALS. My journey started with the loss of the use of my hands and arms. My speech was still fine, so Dragon Dictation was high on my list, as I could quickly type…[Read more]