ALS News Today Forums | Shane | Activity

Shane started the discussion Breakthrough Israeli research in the forum Research Topics

Thu, 25 Dec 2025 20:44:25 -0600

I’ve recently read about ALS research in Israel suggesting that the use of the microRNA-126 molecule to treat ALS might not just slow or stop, but REVERSE the progression of ALS. I encourage others to join me in urging Dr. Merit Cudkowicz, director of the Sean Healey ALS center at Mass. General Hospital in Boston, to focus on research in this…

Shane replied to the discussion Nose Running in the forum Living With ALS

Tue, 05 Mar 2024 22:47:04 -0600

Reply to Nose Running

My ALS symptoms started five years ago, and my internist has told me for years that I have a postnasal drip. But only in the last six months have I experienced a runny nose at least half of the day/Evening. Since I have no use of my arms and hands, caring a handkerchief we’re blowing my own nose is not an option. I am seeing a new ENT doctor…

Shane replied to the discussion Radicava and side effects in the forum Living With ALS

Thu, 29 Feb 2024 22:05:38 -0600

Reply to Radicava and side effects

(My first post). I was diagnosed with ALS in December 2019, although my symptoms (trouble buttoning buttons with my right hand) started a year earlier. A present, I have no use of my arms and hands, my legs are weakening quite rapidly (that started less than a year ago), I have” Head drop” so wear a neck collar all the time, and in the last…

Shane became a registered member

Thu, 05 Jan 2023 19:47:27 -0600