Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a keyword in the forum’s search bar. If you have any questions, concerns, or even suggestions, just let me or Amanda (who shares co-moderator duties with me) know, and we will do our best to help you.
Please note that this forum’s purpose is to discuss issues related to ALS, not to provide diagnosis or medical advice.
Again, thank you for joining our forum – – We look forward to your comments and I look forward to chatting with you! Dagmar
Thank you. This site has been a go-to for me. I am a year in and am hopefully one of the slow progressors. Am curious to hear more of your story; especially your longevity
Hi David, here is my personal blog : ALS and Wellness Blog https://alsandwellness.blogspot.com/2015/01/welcome.html where I write a lot about what I’m doing to maintain my health and longevity. One of these is exercise… look in my blog index and you’ll find my posts there. Also, feel free to ask me questions 😉 Again, welcome to the forum. Dagmar
Hi David,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation too. Our mutation is on the SOD1 gene and is associated with slow progression ALS. I lost my father, grandfather, both aunts, and a several cousins to ALS. My family has been volunteering for medical research for over a decade, and I believe we are getting closer to finding a way to stop the progression of ALS.
Other members are pALS, caregivers and medical professionals. Please review the ongoing discussions and join in at anytime. You are also welcomed to post discussion topics, ask questions and respond to other members. The more we share, the better we all are in this community.
Please feel free to contact myself or Dagmar if you need any kind of assistance. Again, welcome to the forum! We look forward to getting to know you.
Hello David,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a keyword in the forum’s search bar. If you have any questions, concerns, or even suggestions, just let me or Amanda (who shares co-moderator duties with me) know, and we will do our best to help you.
Please note that this forum’s purpose is to discuss issues related to ALS, not to provide diagnosis or medical advice.
Again, thank you for joining our forum – – We look forward to your comments and I look forward to chatting with you! Dagmar
Thank you. This site has been a go-to for me. I am a year in and am hopefully one of the slow progressors. Am curious to hear more of your story; especially your longevity
Hi David, here is my personal blog : ALS and Wellness Blog https://alsandwellness.blogspot.com/2015/01/welcome.html where I write a lot about what I’m doing to maintain my health and longevity. One of these is exercise… look in my blog index and you’ll find my posts there. Also, feel free to ask me questions 😉 Again, welcome to the forum. Dagmar
Hi David,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation too. Our mutation is on the SOD1 gene and is associated with slow progression ALS. I lost my father, grandfather, both aunts, and a several cousins to ALS. My family has been volunteering for medical research for over a decade, and I believe we are getting closer to finding a way to stop the progression of ALS.
Other members are pALS, caregivers and medical professionals. Please review the ongoing discussions and join in at anytime. You are also welcomed to post discussion topics, ask questions and respond to other members. The more we share, the better we all are in this community.
Please feel free to contact myself or Dagmar if you need any kind of assistance. Again, welcome to the forum! We look forward to getting to know you.
Amanda