Elizabeth Pacheco

we all look to supplements to relieve our symptoms and hope that they can somehow slow down progression. I see a Dr. that also practices alternative medicine. Under her suggestion I take B complex, alpha lipoic acid, vitamin C  a d Mag very important and on my own I take Tudca. It’s one of the ingredients in Amx 0035 so why not? 

Waiting for approval of the drugs that we need such as Amylyx has proved to be extremely slow and frustrating. It seems that the FDA bureaucracy is a slow and painful grind. Painful for Als patient who simply must wait while their bodies weaken and degenerate. Yes we definitely need to nudge our congressmen and let them know that it’s time to w…[Read more]

I was very disappointed when I was turned down as a participant in clinical trials. And like all of you I felt frustrated but moreover “Struck” because I was old in the disease. I wasn’t basically Sick and disabled enough to participate. I’ve been told participation can accelerate progression and count your lucky stars that your progres…[Read more]