@delmitch
-
Delbert Mitchell replied to the topic Do ALS clinical trials exclude too many pALS? in the forum Research Topics 2 years, 2 months ago
I have been excluded from many possible trials due to the fact I was diagnosed in 2014. Another factor is that most of these trials are on the east coast or midwest which limits ALS participants from participating. I live in Nevada, and the closest trial centers are in Los Angeles, San Diego, or San Francisco, and yet we have a Cleveland Clinic…[Read more]
-
Delbert Mitchell replied to the topic Leg jerks in the forum Living With ALS 2 years, 5 months ago
Like your husband, I suffer with leg spasms, but I also suffer with spasticity that keeps me awake at night. It’s hard to mentally relax in bed so that your body can relax. Baclofin helps, but I still have days where it’s difficult to sleep. What I have done (I don’t know if it’s healthy or not) is, I take an Aleve capsule occasionally when I…[Read more]
-
Delbert Mitchell posted a new activity comment 2 years, 6 months ago
Thank you for accepting my forum application. Like you I also am living with ALS, being diagnosed in 2014, however, prior to being diagnosed, I felt the effects in 2008 while umpiring a high school baseball game. After almost six years of testing with multiple trips to UCLA Medical Center and Mayo Clinic in Rochester, MN, my neurologist at Las…[Read more]
-
Delbert Mitchell became a registered member 2 years, 6 months ago
Hello Delbert,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
Thank you for accepting my forum application. Like you I also am living with ALS, being diagnosed in 2014, however, prior to being diagnosed, I felt the effects in 2008 while umpiring a high school baseball game. After almost six years of testing with multiple trips to UCLA Medical Center and Mayo Clinic in Rochester, MN, my neurologist at Las…[Read more]
Hello Delbert, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]