[Donna2B]

I wish I had not depended on my son’s Neurologist to walk us through this journey. His neurologist was unresponsive and not helpful. After a month of her telling us she would do something and not doing it, I learned that I would have to rely on myself to find the right resources and support for Ryan. I often wondered if she thought he would join an ALS Clinic, and she would be done with us, but Ryan’s insurance would not cover the ALS Clinic (A battle we are still fighting), but even that, she said she would call the insurance company and speak on his behalf, but she did not. We wasted nearly six weeks with her, but we are now on a good path with great support and resources.