Vicki

I ended up with shoes from Ortho Feet and love them. The heel has an adjustable strap (great for AFOs) along with an adjustable strap over the instep. Check it out
Sanibel Heel Strap – Blue
I find wearing an adaptive nightgown all day is easier for my husband to work with when using the restroom. The adaptive…[Read more]

Hi Scotty,

I agree that your BIL is very lucky to have you.  I was diagnosed in May and have am stuck in a power chair because my legs gave out, my arms are very painful (I suspect they’ll be gone soon) and my voice is almost gone.  Before I was diagnosed, my caregiver husband and I found this newsletter.  By the time I went for my final emg te…[Read more]

My neurologist suggested I take Miralax (Polyethylene Glycol 3350 Powder) and it works well most days.  When I go two days without a visit to the bathroom, I take two stool softeners and usually have success.  I know drinking water helps but I sleep a lot and forget to hydrate.

After 15 months of waiting, I was diagnosed on May 11th with Sporatic Als.  It’s been up and down for me but yesterday I finally got my camera out and had a peaceful early morning visit with the wild birds that come to our feeders.  I’ve been a bird watcher for years and met lots of nice people that enjoy their cameras and the birds.  To me, it…[Read more]

My ALS doctor started me on Riluzole over a year ago and before he was positive I even had ALS. Now that I’ve been diagnosed, I still take it and I’ve never had a problem with it along with the supplements and Vitamin C.  I hope the doctor is able to assist your BIL.