-
Vicki replied to the topic Dressed with Success: Adaptive Clothing for Living with ALS in the forum Living With ALS 1 year, 6 months ago
I ended up with shoes from Ortho Feet and love them. The heel has an adjustable strap (great for AFOs) along with an adjustable strap over the instep. Check it out
Sanibel Heel Strap – Blue
I find wearing an adaptive nightgown all day is easier for my husband to work with when using the restroom. The adaptive…[Read more] -
Vicki replied to the topic Helping someone with ALS to feel less alone in the forum A Forum for ALS Caregivers 1 year, 7 months ago
Hi Scotty,
I agree that your BIL is very lucky to have you. I was diagnosed in May and have am stuck in a power chair because my legs gave out, my arms are very painful (I suspect they’ll be gone soon) and my voice is almost gone. Before I was diagnosed, my caregiver husband and I found this newsletter. By the time I went for my final emg te…[Read more]
-
Vicki replied to the topic Share your tips for dealing with embarassing "bathroom" topics in the forum Living With ALS 1 year, 7 months ago
My neurologist suggested I take Miralax (Polyethylene Glycol 3350 Powder) and it works well most days. When I go two days without a visit to the bathroom, I take two stool softeners and usually have success. I know drinking water helps but I sleep a lot and forget to hydrate.
-
Vicki replied to the topic Check in on Summer in the forum Living With ALS 1 year, 10 months ago
After 15 months of waiting, I was diagnosed on May 11th with Sporatic Als. It’s been up and down for me but yesterday I finally got my camera out and had a peaceful early morning visit with the wild birds that come to our feeders. I’ve been a bird watcher for years and met lots of nice people that enjoy their cameras and the birds. To me, it…[Read more]
-
Vicki replied to the topic Complications with Riluzole and high levels of Vit C and other supplements in the forum Living With ALS 1 year, 11 months ago
My ALS doctor started me on Riluzole over a year ago and before he was positive I even had ALS. Now that I’ve been diagnosed, I still take it and I’ve never had a problem with it along with the supplements and Vitamin C. I hope the doctor is able to assist your BIL.
-
Vicki's profile was updated 2 years ago
-
Vicki's profile was updated 2 years ago
-
Vicki became a registered member 2 years, 1 month ago
-
Hello Vicki,
Welcome to the forum! I am one of the forum moderators, as well as a person who is living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
-
Hello Vicki, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
-