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Dutch Root

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@dutch

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    Dutch Root replied to the topic Do you experience muscle twitching? in the forum Living With ALS 11 months, 1 week ago

    Ya, I have muscle twitching 24 hours a day. It started 2 years ago. It was one of the symptoms I had never experienced that led me to a neurologist and my ALS diagnosis. Twitching is exacerbated by any physical movement and stress. They are not painful. I do not take any medication to treat it.

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    Dutch Root replied to the topic Member Check In in the forum Living With ALS 11 months, 1 week ago

    Hi Everyone, I am new to this forum. I am grateful for my loving wife and family who support me through this most challenging event event in my life. While my wife, is my primary caregiver, I also have caregivers who come to our home to give my wife a break. They are awesome and I am very grateful for them. I’m also grateful we have good medical…[Read more]

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    Dutch Root became a registered member 11 months, 1 week ago

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      Dagmar Munn replied 11 months, 1 week ago

      Hello Dutch,

      Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

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      Amanda replied 11 months ago

      Hello Dutch, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]

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