Base

Name

Dutch Root

Nickname

dutch-root

Year of Birth

1957

Gender

Male

Location

Planu, TX

Relationship

Patient

Short Bio

Diagnosed with limb onset (left leg) in late 2019. Left leg limp started one year before diagnosis. Muscle twitching started in the Spring of 2019 . Subtle changes in my speech started in the summer of 2019. Went out on disability in January 2020. Retired August 2020. Symptoms have steadily progressed.

Currently my nutrition comes through a feeding tube as my swallowing ability continued to deteriorate. After 3 falls, I now get around using my power wheelchair only. My speech is not discernible so iIrely on typing to communicate. I used Model Talker software to record my voice over a year ago. I can play messages and text in my own voice. I am using an Eyegaze Edge tablet and my own laptop to communicate and keep my mind stimulated,. I am not yet using the eyesight function on the Eyegaze tablet.

How did you hear about us?

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How long have you or the person that you are caring for had ALS?

2 years

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