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Chris King

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@egkingatt-net

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    Chris King replied to the topic Here I Go Again in the forum Research Topics 2 months, 2 weeks ago

    I’ve never had a clinic visit like that nor a full body MRI or lumbar puncture. Can’t imagine every 6 months, the 3-4 hour sessions that I have every 3-4 months are exhausting and haven’t been that productive after hopefully anticipating the first one. Everyone’s disease progression is so different I feel they’re much more comfortable with a set…[Read more]

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    Chris King replied to the topic Social Death in the forum Living With ALS 4 months, 3 weeks ago

    I related to Eric’s post as I’ve increasingly experienced the social disconnect the last 6 years dealing with bulbar onset PLS. It was almost immediate once my speech and gait were so compromised and I was filled with rage as I could still contribute to the groups and organizations which I’d been involved with including church. The ALS clinic…[Read more]

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    Chris King replied to the topic ALS and Pain in the forum Living With ALS 8 months, 1 week ago

    I have pain plus cramps somewhat relieved with Baclofen which was just increased at ALS clinic visit still low dose and feel it helps somewhat. My right arm and bicep have hurt plus swollen before officially diagnosed but never explored as upper motor neurons are only responding on EMG? I’m a firm believer in whatever normal we can do keep at it t…[Read more]

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    Chris King became a registered member 9 months, 1 week ago

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 9 months, 1 week ago

      Hello Chris,

      I am happy to welcome you to this forum! As you know, I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

      You’ll find our forum members are friendly, supportive, and ready to offer tips or share their experiences with ALS. If there is anything specific you would like to see discussed on the forum,…[Read more]

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 9 months ago

      Chris, I noticed in your bio that you are a quilter. Are you a hand quilter or a machine quilter? I’ve done free-form quilting, but that’s about it 🙂

    • Profile picture of Amanda
      Amanda replied 9 months ago

      Hello Chris,
      Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

      We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]

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