FRANCES GOODMAN
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FRANCES GOODMAN replied to the discussion Cosentyx in the forum Research Topics 3 months ago
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FRANCES GOODMAN replied to the discussion What do you think was the biggest reason your diagnosis was delayed? in the forum Diagnosis Information and General Questions 5 months ago
What do you think was the biggest reason your diagnosis was delayed?
From what I experienced many neurologists are just not trained about ALS or know what the symptoms are. I know now that that my brother had limb onset ALS, but the neurologists misdiagnosed him. They were very neglectful because he was in a lot of pain and they made no attempt to send him to more advanced neurologists who could have…
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FRANCES GOODMAN replied to the discussion Nose Running in the forum Living With ALS 10 months ago
Prescription strength cough medicine that thinned down his mucus. My brother ended up taking this for a bad cough which I think is because he was really stuffed up. He never had this problem before getting ALS. It seemed to help him a lot. Hospice prescribed it to him finally. He passed in early January. It was about 20 months from onset…
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FRANCES GOODMAN replied to the discussion COVID-19 and correlation with ALS symptoms in the forum COVID-19 and ALS 11 months ago
COVID-19 and correlation with ALS symptoms
Yes, my brother came down with his first ALS symptoms 2 months after having COVID for the second time. He had been vaccinated. This was May 2022. He was diagnosed with ALS March, 2023 after being misdiagnosed. He passed Jan. 4, 2024. I’ve noticed that there is a realization that long term COVID can turn into ALS in a small number of…
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FRANCES GOODMAN replied to the discussion Your tips, advice, and words of wisdom for others in the ALS community in the forum Living With ALS a year ago
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FRANCES GOODMAN replied to the discussion What do you think about Gene Therapy? in the forum Living With ALS a year ago
What do you think about Gene Therapy?
My brother is going very quickly from ALS. I fear there is not much time left. How can we get his DNA analyzed while he is still alive? Do you know any services that do this? He just turned 49 years old. He had never heard of ALS when he was diagnosed in mid-March. I had heard of ALS but I had heard it was rare and that it just… Read more
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FRANCES GOODMAN became a registered member a year ago
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Hello Frances,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive… Read more
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Hello Frances,
Welcome to the forum – – I am one of the forum moderators as well as a person living with ALS: I was diagnosed in 2010. I hope you have been able to read our ongoing discussions and are finding it easy to navigate to different topics.
If there is anything specific you would like to see discussed on the forum, feel free to post a… Read more
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