ALS News Today Forums | Frank Benincasa | Activity https://alsnewstoday.com/forums/members/frankbeni/activity/ Activity feed for Frank Benincasa. Sun, 19 Apr 2026 05:29:35 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 24484d5d32c28990ecade43e62edacfe Frank Benincasa posted an update: I had my 2nd EMG 2 weeks ago and this one was clear […] https://alsnewstoday.com/forums/activity/p/17477/ Tue, 25 Oct 2022 14:05:57 -0500 I had my 2nd EMG 2 weeks ago and this one was clear also. Meanwhile my symptoms continually increase and new ones arrive. I can no longer sleep in bed due to poor breathing. I use a recliner half way down and have trouble standing up when I raise it. I use a walker around the house because of several falls and unsteadiness. I can no longer open… Read more

]]> 0 53fdce5b4a4d0bfa09317102dae5c6cd Frank Benincasa started the discussion Help with what to ask my doctor in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/help-with-diagnosis/ Wed, 07 Jul 2021 16:01:21 -0500 Help with what to ask my doctor

I went to a Neuro doc last week, having bulbar symptoms (swallowing, breathing, speech, saliva, etc. along with twitches, cramps and stiffness) and his physical exam was normal. He sent me for an EMG which I did this morning and that was normal. Doc doing test said that he just checks the limbs on the order for the right side of the body… Read more

]]> b2343d6c62ee20def5427ebb26856190 Frank Benincasa posted an update: Do you think about God? I finds myself reading […] https://alsnewstoday.com/forums/activity/p/12399/ Fri, 25 Jun 2021 16:54:50 -0500 Do you think about God? I finds myself reading bible passages, praying and asking for forgiveness for not only what I’ve done wrong in my life but also not doing right. Strange that about 3 years ago, still in great health I started thinking about God, the afterlife,etc. To me, even more important how we die is how we live. I’ve been a… Read more

]]> 0 da293c3c371b3c66aabc0a29d09d3894 Frank Benincasa replied to the discussion Do people treat you differently because of ALS? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/do-people-treat-you-differently-because-of-als/#post-19640 Thu, 24 Jun 2021 10:52:56 -0500 Reply to Do people treat you differently because of ALS?

Well said

]]> d4a64f18ec04575668311cf03b30f478 Frank Benincasa replied to the discussion Do people treat you differently because of ALS? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/do-people-treat-you-differently-because-of-als/#post-19637 Wed, 23 Jun 2021 23:24:23 -0500 Reply to Do people treat you differently because of ALS?

I haven’t been diagnosed yet but have many symptoms and it’s “early”. Today I had to go to the supermarket for a prescription and Walked very slowly and had to muster some strength to speak to the pharmacist. I thought exactly about your question. People have to see how I walk, how I talk and what will happen in the coming months. I guess the… Read more

]]> 94fa68bd148675bd9bda184187dfa244 Frank Benincasa replied to the discussion Coming to terms with your diagnosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/coming-to-terms-with-your-diagnosis/#post-19616 Tue, 22 Jun 2021 15:42:29 -0500 Reply to Coming to terms with your diagnosis

I know. I usually wake up at around 3 AM with those 3 letters my first thought. It’s good to have someone to talk to, even strangers on a forum.

]]> 5b5f4d356c889aab1b9208ff0d1740e4 Frank Benincasa replied to the discussion Coming to terms with your diagnosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/coming-to-terms-with-your-diagnosis/#post-19615 Tue, 22 Jun 2021 15:39:46 -0500 Reply to Coming to terms with your diagnosis

I did that early. Thought my fatigue was adrenal and thyroid related. I take thyroid meds. Also thought breathing issue was thyroid related or maybe a return of Asthma I had years ago. I thought maybe the food getting stuck was due to approaching 70 after all things happen when you get old. I had already looked up some symptoms and when I… Read more

]]> 62cdce1060a04a3217b993dc02f39132 Frank Benincasa replied to the discussion Coming to terms with your diagnosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/coming-to-terms-with-your-diagnosis/#post-19614 Tue, 22 Jun 2021 15:29:07 -0500 Reply to Coming to terms with your diagnosis

I’m going through this right now. I have an appt with neuro next week, but feel I already know. Fatigue, swallowing,(food getting stuck and choked badly 2 weeks ago),hoarse or no voice, short breath, twitching, tightness and cramps which get worse every single day, joint pain, plantar fasciitis in both feet (probably from tight calf muscles),… Read more

]]> a6c7d228be1df97cf03b78de5ad7be85 Frank Benincasa posted an update: I started twitching last Thursday basically everywhere […] https://alsnewstoday.com/forums/activity/p/11508/ Thu, 06 May 2021 16:38:57 -0500 I started twitching last Thursday basically everywhere all at once with jerks and cramps. I have NO other symptoms. I can open jars, carry bags, tie shoes, no trouble with stairs, etc. I have a preliminary dx of Cushings Disease due to high ACTH and cortisol levels. I’m finally seeing an Endocronologist next week for more tests and likely an MRI… Read more

]]> 0 2da3c1bf5f622006f92830759edc312e Frank Benincasa became a registered member https://alsnewstoday.com/forums/activity/p/11505/ Thu, 06 May 2021 14:34:33 -0500 1