Frank Benincasa
Forum Replies Created
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Well said
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I haven’t been diagnosed yet but have many symptoms and it’s “early”. Today I had to go to the supermarket for a prescription and Walked very slowly and had to muster some strength to speak to the pharmacist. I thought exactly about your question. People have to see how I walk, how I talk and what will happen in the coming months. I guess the answer will just have to be, let them if they’re so ignorant. People will always treat you differently. Sometimes they are well meaning and sometimes they might feel you are inconveniencing them. This is why people stay home when they could be going out. People will stare and some may ridicule. People may have thought that I was unsociable at my granddaughter’s graduation last week because I found a seat and stayed there until it was finally time to leave. I had no intention to stumble around and make up something on why I was so hoarse. I really don’t care what they think.
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I know. I usually wake up at around 3 AM with those 3 letters my first thought. It’s good to have someone to talk to, even strangers on a forum.
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I did that early. Thought my fatigue was adrenal and thyroid related. I take thyroid meds. Also thought breathing issue was thyroid related or maybe a return of Asthma I had years ago. I thought maybe the food getting stuck was due to approaching 70 after all things happen when you get old. I had already looked up some symptoms and when I started drooling I knew there was no way to explain it away as I did with the other symptoms. I guess it’s all the way your mind works that determine how you’ll handle any emergency. Denial has never worked for me and I know it won’t work now.
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I’m going through this right now. I have an appt with neuro next week, but feel I already know. Fatigue, swallowing,(food getting stuck and choked badly 2 weeks ago),hoarse or no voice, short breath, twitching, tightness and cramps which get worse every single day, joint pain, plantar fasciitis in both feet (probably from tight calf muscles), drooling and slight weight loss. I find myself leaning or falling forward when I walk with slight pain as well as tripping if I don’t pay attention. I ate 1/2 box of Oreos last week just to maintain the 158 pounds I have. I also have cognitive impairment. I tried to do my bank statement last week. It took over an hour and I kept looking at the paper and saying to myself “what do I do next”. I worked in accounting years ago where part of my duties was the monthly statement so usually I could do in my sleep. I accept my symptoms but I’m sure when a doctor confirms, it will take on a finality. I pray every day for a miracle- not that God will cure me but that passing will be somewhat peaceful and not too stressful on my family.