[fred-schreiber]

There are NO good head or neck braces for ALS victims. We tried three different brands, including Headmaster and OttoBock. They are OK for someone with, let’s say, a neck injury. But our son’s chin kept sliding off the Headmaster. His head kept tilting on it. The Headmaster kept collapsing. The OttoBock was like football gear and prevented him from leaning against something. He couldn’t sleep in it. He had violent yawning episodes and the head supports prevented him from opening his mouth. He came up with a solution: he wore a baseball cap with a non-stretchable band at the back of it. We tethered that band to the headrest of his wheelchair with a 1” wide adjustable velcro strap. We could tilt his head to his liking with it. The downside was that his forehead had a lot of pressure on it because the front of the baseball cap pressed there, so we kept having to pad the inside of the cap. He slept with his head tethered the same way. I looked at the stopheaddrop.com devices: how can anyone sit down and lean against anything without feeling the metal tubes?