Two weeks ago I was at my nephew’s 50th birthday party. Upon leaving, an internist friend called me a “survivor”. Afterwards, I mentioned that to my family members. They all said, “Well you are!”. I like it better than “hero”.
A couple months ago, an old friend texted that he can’t think of me because it terrifies him. So, I will take survivor… Read more

The Team Gleason Foundation is wonderful. They provided me with a seat elevator for my wheelchair, which insurance would not cover. Yutha was the young professional who worked with my PT, mobility specialist, wheelchair company and myself. She was beyond excellent!

Thank you for your post. I have been saying this to my wife for awhile. She realizes that it is hard for me, as I have always been a people person. I just had an old friend tell me that he can’t think of me because it terrifies him.

I was an optometrist when the disease took me out of practice at age 63. I really enjoyed my career. I chose optometry while in 10th grade and did not even have my first eye exam until my senior year.  After trying to work for others for a year, I  realized that I would be happy if I could have my own practice. However,  we were with limited… Read more

Hi Tim Burr (7-2-2020),

I use an Astral150 non-invasive ventilator at night.  I too experienced a runny nose and phlegm in the back of throat.  My ALS neuromuscular specialist felt that these symptoms were not due to my als.

I mentioned this to my ENT in July.  He Rx’ed Atrovent (Ipratropium bromide).  I do 2 puffs in each nostril, twice… Read more

In my state, physicians must by law report a patient who is at risk driving.  And by law, the DOT must not disclose the name of the reporter, even to the patient. The doctor needs not inform the patient of the reporting.
Some states may require just self reporting but this leads to high non-compliance, given the social and economic pressures… Read more