ALS News Today Forums | gale | Activity https://alsnewstoday.com/forums/members/gale/activity/ Activity feed for gale. Tue, 07 Apr 2026 05:56:35 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 68f9ce883b7f73ed386ac6754c302eed gale replied to the discussion Bipep Mask or tracheostomy, which one is more useful for ALS patients in the forum Using Our Forums https://alsnewstoday.com/forums/forums/topic/bipep-mask-or-tracheostomy-which-one-is-more-useful-for-als-patients/#post-25902 Thu, 05 Sep 2024 19:11:28 -0500 Reply to Bipep Mask or tracheostomy, which one is more useful for ALS patients

My husband is very simiilar to you. starting his 5th year since diagnosis. No use of arms, legs, hands very limited. He is on his NIV 24/7 and can be off for maybe 15 minutes at a time. He cannot write and uses his computer mouse with difficulty.

He uses his ventilator with a nose mask during the day which allows him to talk and be fed. At…

Read more

]]> f2ac892fe14c7d8dd07836dfb146b4a1 gale replied to the discussion What assistive device is helping you right now? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/what-assistive-device-is-helping-you-right-now/#post-25889 Fri, 30 Aug 2024 00:36:36 -0500 Reply to What assistive device is helping you right now?

My husband had the same problem. Uses his NIV 24/7. He switched to a nose mask, Airtouch N20, after trying a lot of others. This one works well and he can talk and eat with it on. He uses the full face at night.

]]> 8742f530e64c463a92aed125cdf9f74e gale became a registered member https://alsnewstoday.com/forums/activity/p/23407/ Wed, 17 Jul 2024 13:21:17 -0500 1