ALS News Today Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

George

Home Members George
show less show more
Profile picture of George

@geoflan

  • Activity
  • Profile
  • Friends 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Profile picture of George

    George replied to the topic Fear and ALS in the forum Living With ALS 1 week, 6 days ago

    Anger, fear, sadness, confusion, concern, love, caring,  all emotions that trip over each other.  Every day is different and met with resolve to do what we can to make my partner safe and comfortable.  No magic or miracles.  The elephant in the room just keeps getting larger.

  • Profile picture of George

    George replied to the topic Loose bowel movements in the forum Living With ALS 1 week, 6 days ago

    my partner has experienced this for quite some time.  Nothing seems to resolve the loose bowels.

  • Profile picture of George

    George replied to the topic When did you first hear those dreadful three letters…A….L….S ? in the forum ALS Awareness and Advocacy 1 month, 3 weeks ago

    At the height of Covid my partner met with a Neurologist.  He had been falling, fainting and had drop foot for some time.  He worked in a hospital with special needs individuals and was admitted for fainting.  The Neurologist looked at the muscle between his thumb and index finger and gave him a preliminary diagnosis.  The Neurologist rec…[Read more]

  • Profile picture of George

    George replied to the topic Caregivers, what are YOUR warning signs that you need to take a break? in the forum A​ ​Forum​ ​for​ ​ALS ​Caregivers​ 4 months ago

    As my partners primary caregiver for 2 1/2 years after his ALS diagnosis, I had to learn early on that I cannot control this and Jon, my partner will tell me what he wants. I have learned that I take one step at a time and often everything changes in an instant. A much needed break is a week away and I am ready. I am forgetting very important…[Read more]

  • Profile picture of George

    George replied to the topic As a caregiver, What Services Do You Use? in the forum A​ ​Forum​ ​for​ ​ALS ​Caregivers​ 5 months, 1 week ago

    My partner has been diagnosed for about 2 1/2 years. Early on I felt I could do everything. As the disease progressed and he lost the use of his arms and legs, it became apparent that I was burning out and feared I would start making mistakes with his care. Fortunately for us he is a military veteran and the services provided to both of us are…[Read more]

  • Profile picture of George

    George replied to the topic How to handle visitor requests when daily activities get difficult in the forum Living With ALS 6 months, 2 weeks ago

    My partner Jon is either in a motorized wheelchair or bed. He has urinary issues and has no control over his bowel movements. Legs and arms are paralyzed and hands almost there. He loves company but we are careful to make sure he is able to go for a period of time, usually an hour, and then we ask company to leave. We find the direct approach…[Read more]

  • Profile picture of George

    George replied to the topic How Do You “Take a Break” From Caregiving? in the forum A​ ​Forum​ ​for​ ​ALS ​Caregivers​ 9 months ago

    As an update to my earlier post, in only one week Jon’s caregiver has become a member of the family and they are good buddies.  I believe God sent her and it was meant to be.  She cleans him, bathes him and is so, so comforting.  Both of them have decided that I am not needed for the early day care and that is fine by me.   For the first time in o…[Read more]

  • Profile picture of George

    George replied to the topic How Do You “Take a Break” From Caregiving? in the forum A​ ​Forum​ ​for​ ​ALS ​Caregivers​ 9 months ago

    I have been caring for my partner for  one and a half years now, 24 hours a day, 7 days a week.  early on it was easy since he maintained most of his functions and I was basically support.  This elephant in the room has taken more space than we are comfortable with and now the care has become overwhelming.  His legs, arms and hands are bas…[Read more]

  • Profile picture of George

    George posted a new activity comment 9 months, 1 week ago

    Thanks Amanda for the email. I do have one question regarding Jon. Fortunately he is not in any pain but has basically lost the use of his legs, arms, and now his hands are going. I try to be here 100% for him but taking care of him, the house, appointments, meds, shopping, THE DOG, etc. I cannot remember everything he needs or wants.…[Read more]

    View Conversation
  • Profile picture of George

    George posted a new activity comment 9 months, 2 weeks ago

    Thank you Dagmar. This journey is always challenging and overwhelming. We have a wonderful support team at the Philadelphia VA. The doctor, nurses and all support staff really really care. If it was not for them I cannot imagine where Jon and I would be. I am mainly interested in new treatments and what others experience. Jon is a real…[Read more]

    View Conversation
    • Profile picture of Dagmar Munn
      Dagmar Munn replied 9 months, 2 weeks ago

      I’m sure you’ll find our forum members to be supportive and open about sharing their tips and experiences. We are happy you have joined this forum!

  • Profile picture of George

    George became a registered member 9 months, 2 weeks ago

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 9 months, 2 weeks ago

      Hello George,

      Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

      • Profile picture of George
        George replied 9 months, 2 weeks ago

        Thank you Dagmar. This journey is always challenging and overwhelming. We have a wonderful support team at the Philadelphia VA. The doctor, nurses and all support staff really really care. If it was not for them I cannot imagine where Jon and I would be. I am mainly interested in new treatments and what others experience. Jon is a real…[Read more]

        • Profile picture of Dagmar Munn
          Dagmar Munn replied 9 months, 2 weeks ago

          I’m sure you’ll find our forum members to be supportive and open about sharing their tips and experiences. We are happy you have joined this forum!

    • Profile picture of Amanda
      Amanda replied 9 months, 1 week ago

      Hello George,
      Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

      We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]

      • Profile picture of George
        George replied 9 months, 1 week ago

        Thanks Amanda for the email. I do have one question regarding Jon. Fortunately he is not in any pain but has basically lost the use of his legs, arms, and now his hands are going. I try to be here 100% for him but taking care of him, the house, appointments, meds, shopping, THE DOG, etc. I cannot remember everything he needs or wants.…[Read more]

Profile Photo Katherine

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages
Search in posts
Search in pages

Who’s Online

Profile picture of Kevin Schaefer

Recent Replies

  • Relyvrio
  • Relyvrio
  • Relyvrio
  • Relyvrio
  • Relyvrio

Members

Newest | Active | Popular
  • Profile picture of Kevin Schaefer
    Kevin Schaefer
    Active 11 minutes ago
  • Profile picture of Dick Fitzpatrick
    Dick Fitzpatrick
    Active 1 hour, 27 minutes ago
  • Profile picture of Amanda
    Amanda
    Active 1 hour, 31 minutes ago
  • Profile picture of Isabelle
    Isabelle
    Active 4 hours, 29 minutes ago
  • Profile picture of Doug Frazier
    Doug Frazier
    Active 17 hours, 52 minutes ago

Forums

  • Coronavirus (COVID-19) and ALS
  • In Loving Memory
  • Living With ALS
  • ALS Awareness Month
  • Flash Briefings
  • A​ ​Forum​ ​for​ ​ALS ​Caregivers​
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Mobility Aides, Assistive Technology and Medical Equipment
  • ALS ​and​ ​Relationships
  • Research Topics
  • ALS Awareness and Advocacy
  • ALS News
  • ALS In The Media
  • Using our Forums
  • Most popular topics
  • Topics with no replies

ALS News Today Forums

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Recent Posts

  • A new perspective and strategy to help my ALS speech
  • Molecular ALS subtypes linked to age of disease onset, survival
  • Enrollment complete in new trial of approved ALS therapy Relyvrio

ALS News Today Forums is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©2023 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?

Forgot your details?

I remember my details

Create Account