@geoflan
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George replied to the topic How Do You “Take a Break” From Caregiving? in the forum A Forum for ALS Caregivers 1 month, 2 weeks ago
As an update to my earlier post, in only one week Jon’s caregiver has become a member of the family and they are good buddies. I believe God sent her and it was meant to be. She cleans him, bathes him and is so, so comforting. Both of them have decided that I am not needed for the early day care and that is fine by me. For the first time in o…[Read more]
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George replied to the topic How Do You “Take a Break” From Caregiving? in the forum A Forum for ALS Caregivers 1 month, 3 weeks ago
I have been caring for my partner for one and a half years now, 24 hours a day, 7 days a week. early on it was easy since he maintained most of his functions and I was basically support. This elephant in the room has taken more space than we are comfortable with and now the care has become overwhelming. His legs, arms and hands are bas…[Read more]
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George posted a new activity comment 1 month, 4 weeks ago
Thanks Amanda for the email. I do have one question regarding Jon. Fortunately he is not in any pain but has basically lost the use of his legs, arms, and now his hands are going. I try to be here 100% for him but taking care of him, the house, appointments, meds, shopping, THE DOG, etc. I cannot remember everything he needs or wants.…[Read more]
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George posted a new activity comment 2 months ago
Thank you Dagmar. This journey is always challenging and overwhelming. We have a wonderful support team at the Philadelphia VA. The doctor, nurses and all support staff really really care. If it was not for them I cannot imagine where Jon and I would be. I am mainly interested in new treatments and what others experience. Jon is a real…[Read more]
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George became a registered member 2 months ago
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Hello George,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Thank you Dagmar. This journey is always challenging and overwhelming. We have a wonderful support team at the Philadelphia VA. The doctor, nurses and all support staff really really care. If it was not for them I cannot imagine where Jon and I would be. I am mainly interested in new treatments and what others experience. Jon is a real…[Read more]
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I’m sure you’ll find our forum members to be supportive and open about sharing their tips and experiences. We are happy you have joined this forum!
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Hello George,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]
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Thanks Amanda for the email. I do have one question regarding Jon. Fortunately he is not in any pain but has basically lost the use of his legs, arms, and now his hands are going. I try to be here 100% for him but taking care of him, the house, appointments, meds, shopping, THE DOG, etc. I cannot remember everything he needs or wants.…[Read more]
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I’m sure you’ll find our forum members to be supportive and open about sharing their tips and experiences. We are happy you have joined this forum!