ALS News Today Forums | Georgi | Activity https://alsnewstoday.com/forums/members/georgi/activity/ Activity feed for Georgi. Wed, 08 Apr 2026 02:25:23 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 74273e4f1dd7d8a5035d99c423c1e79e Georgi replied to the discussion Should I get genetic testing? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/should-i-get-genetic-testing/#post-19746 Thu, 01 Jul 2021 21:55:51 -0500 Reply to Should I get genetic testing?

Hi Kiki, I sent mail to both Charite and the Hospital in Ulm to request NFL/tau test or at least information, none of them responded. Do they work with international patients?

]]> 232c14270b8806711248ba7135f3304b Georgi replied to the discussion Should I get genetic testing? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/should-i-get-genetic-testing/#post-19705 Mon, 28 Jun 2021 16:38:39 -0500 Reply to Should I get genetic testing?

Today my genetic professor told me in her practice sporadic always becomes transmitted to children and that chance is much higher than 50-50 like the faulty gene is more “sticky”. She also told me it hits earlier. Let me hope she is wrong. Let us hope they will find cure for the next generation.

]]> 9cf8c39c6bd39ada438ddd62f1cd0bb8 Georgi replied to the discussion Should I get genetic testing? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/should-i-get-genetic-testing/#post-19686 Sun, 27 Jun 2021 07:59:52 -0500 Reply to Should I get genetic testing?

@David “So, is there really sporadic genetic non-familial ALS?”

Yesterday I stated something similar and my post was removed.

@Kikki Could you provide more info on how to send blood to Berlin for NFL tau. I still have a diagnose only by a single neurologist (EMG) and every mimics incl. MG was excluded. As I can still climb stairs I have no dx… Read more

]]> 9358a24bef7167dbb4bbd1e3d5e3f170 Georgi replied to the discussion When getting a second opinion comes with risk in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/when-getting-a-second-opinion-comes-with-risk/#post-19549 Wed, 16 Jun 2021 11:56:53 -0500 Reply to When getting a second opinion comes with risk

I think the wait time between symptoms and diagnose makes people desperate. This is the only disease that physicians wait until full blown symptoms appear. Their inactiveness is not accountable based on their belief that there is no cure anyway. If only they make 2 careful EMGs in 2 months period and compare the neurogenic changes in same… Read more

]]> 21842dafabb581098453eee031ee825c Georgi replied to the discussion How do you define an ALS cure? in the forum Research Topics https://alsnewstoday.com/forums/forums/topic/how-do-you-define-an-als-cure/#post-19545 Tue, 15 Jun 2021 22:50:48 -0500 Reply to How do you define an ALS cure?

Early genetic testing to everyone and establishment of database will enhance understanding of ALS. Biomarkers as neurofilaments and MRI for positive ALS testing should replace the current diagnostics by exclusion. These kind of measures will lead to better treatment and possible prevention for those at risk.

The Italian trial using MRI to… Read more

]]> ca831996727efc28fc3cf57330dd9781 Georgi posted a new activity comment https://alsnewstoday.com/forums/activity/p/11761/#acomment-12058 Tue, 08 Jun 2021 16:48:44 -0500 Hi Marcy, I was diagnosed by one neurologist on 15 March 2021 in Bulgaria. He works on private practice and he was the one who made my first completely clean EMG on 30 Dec 2021. So 2.5 months later he saw significant changes esp. in my calves. This doctor is a neurologist who makes a lot of EMGs by himself and he also worked in Germany. He told… Read more

In reply to - Georgi posted an update @richaz Richard, before getting first ALS symptoms I was playing soccer twice a week, swimming and being physically active. I am 52, first symptoms 9end of 2020) were […] ]]> b99641c8d219955f01df285553a22370 Georgi posted a new activity comment https://alsnewstoday.com/forums/activity/p/11761/#acomment-11981 Thu, 03 Jun 2021 17:21:15 -0500 In my case I had all the blood tests and 2xMRIs to rule out other conditions. The neurologist was personally doing my two EMGs and he noticed the progress. My first EMG was done on 30 Dec 2020 (5 days after my twitching on both caves started). This EMG was completely clean. The second one with the same doctor showed fasciculations,… Read more

In reply to - Georgi posted an update @richaz Richard, before getting first ALS symptoms I was playing soccer twice a week, swimming and being physically active. I am 52, first symptoms 9end of 2020) were […] ]]> 0564ed5cb4d36230477fd9bcdd6c0036 Georgi posted an update: @richaz Richard, before getting first ALS symptoms I […] https://alsnewstoday.com/forums/activity/p/11761/ Thu, 20 May 2021 04:51:01 -0500 @richaz Richard, before getting first ALS symptoms I was playing soccer twice a week, swimming and being physically active. I am 52, first symptoms 9end of 2020) were constant fasciculations in both calves, now spread to the whole body including face, At that time I had no many other symptoms. Currently I feel tired and week. I have also… Read more

]]> 4 2516f78a59252cde8a100126d5f10d10 Georgi posted an update: @richardhasals Hi Richard: Getting the word out: […] https://alsnewstoday.com/forums/activity/p/11749/ Wed, 19 May 2021 19:41:34 -0500 @richardhasals Hi Richard: Getting the word out: The awareness should be raised by the ALS/MND doctors, however my personal observation is that the ALS niche is taken by strange kind of doctors. Wait and see approach is well established – I can see that most of the pALS are members of this forum 6 months and more prior diagnosis. I even saw… Read more

]]> 0 36949969db0373c57bbd60306c84c1bc Georgi replied to the discussion Should I get genetic testing? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/should-i-get-genetic-testing/#post-18939 Wed, 19 May 2021 07:39:49 -0500 Reply to Should I get genetic testing?

Hi Kiki, I am 52yo Bulgarian with strong and fast advancing symptoms started approx. on 1 Jan 2021. I am pretty sure that the developed EU countries offer gene testing payed by the healthcare system. I was working in Belgium (currently on sick leave) and still have active med insurance there. I was offered a gene testing in AZ Brussel,… Read more

]]> 6d282e0f9f1101183365c74790d3fb22 Georgi posted a new activity comment https://alsnewstoday.com/forums/activity/p/11683/#acomment-11705 Mon, 17 May 2021 11:01:48 -0500 Russell, do not let them label you psycho unstable. If you have physical sufferings they should be explained. I do not believe nervousness can be a cause of muscle atrophy. It is not necessary to be ALS, but there should be a sound explanation.

In reply to - Georgi posted an update @mrjukebox61 Russell, waiting for full blown ALS is the common strategy of neurologists. This strategy works for them, but not for you. I would suggest that you take the chance and go […] ]]> f840f7471341812bcf90ba29d3d75d11 Georgi posted an update: @mrjukebox61 Russell, waiting for full blown ALS is […] https://alsnewstoday.com/forums/activity/p/11683/ Sat, 15 May 2021 17:52:45 -0500 @mrjukebox61 Russell, waiting for full blown ALS is the common strategy of neurologists. This strategy works for them, but not for you. I would suggest that you take the chance and go to the ALS center on the earlier date. Ruling out ALS at this center would have more credibility.

]]> 2 ccdd694d2ce7ca52de930de2b25ee621 Georgi posted a new activity comment https://alsnewstoday.com/forums/activity/p/11444/#acomment-11450 Tue, 04 May 2021 16:55:14 -0500 Russell, If you are able to walk 2 miles and you have no cramps and you can walk on heel-toe it is very very unlikely that you will be diagnosed with ALS. I know the neuromuscular doctors mindset. They look more on the clinical evidence than the EMG. In my case EMG was indicative in all four ALS readings – fasciculations, fibrilations,… Read more

In reply to - Georgi posted an update @mrjukebox61 Good day Russell, hope you will be diagnosed with no ALS. I was diagnosed with ALS on 15 March 2021. My diagnose was based on classical ALS EMG findings: […] ]]> ee2b479d656dc549f21d6e0092ec49e0 Georgi posted an update: @mrjukebox61 Good day Russell, hope you will be […] https://alsnewstoday.com/forums/activity/p/11444/ Tue, 04 May 2021 15:59:47 -0500 @mrjukebox61 Good day Russell, hope you will be diagnosed with no ALS. I was diagnosed with ALS on 15 March 2021. My diagnose was based on classical ALS EMG findings: fasciculations, fibrilations, PSW and polyphasic MUAPs (plus clean blood and MRI head and full spine to rule out any other conditions). Then I was sent to… Read more

]]> 4 691fea1929143f3ce56a73360183ec3f Georgi became a registered member https://alsnewstoday.com/forums/activity/p/11417/ Sat, 01 May 2021 20:49:10 -0500 2