Russell

John, I have an appt with another neurologist Wednesday morning to see if I can get some more answers as to whats going on with me.  I will bring my existing emg reports and mris . Also I was thinking of bookng a session with a neuromuscular massage therapist  to maybe reduce the stress upon me . Which has been mighty.

Hi all,

Don’t know why I I’m still getting stiffness and aches in my shoulders arms hands and legs. Been going on for awhile.seems to be a little more.  I’ve tried muscle relaxes and zanax. Can’t de-stress my self . When I try to relax my body u feel a little twitching go on and some internal vibrating in shoulders and arms.  Not alot. Its b…[Read more]

Richard,  June 2nd is the day Lou Gehrig passed away . I understand soccer has much more fans but they have to start somewhere.  So let it be Baseball. Hope the awareness hits home. We shall see.

1. Lisa , hope your doing well. I’ve been going tru the same as you. Atrophy of my left leg ( quit severe ) and my right gluteus.  My hands and shoulders ache and my emg showed chronic denervation also and a muscle in myvleft leg that the nerve died to. Feeling some twitching and shoulder tremors also.Still can walk and talk well. Was told no…

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1. Gehrig was an true Ironman.  His physical built alone was impressive. Gehrig last full season was 1938 while experiencing the symptoms of ALS he played in 157 games , 576 at bats , 115 runs, 170 hits and 114 RBIs . That was incredible!! He passed in 1941. Hes  an icon of strength. Its just sad 80 years gone by and no real change in this d…

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I really believe its coming. I think this will kick start everything. Sports has always made this country tick and hopefully the other sports  venues will follow. This could be the start of something big but MLB has to do this right.This has to grab the attention of the people right off the bat.

I do believe MLB can make a big splash here. They have the resources. June 2nd Lou Gehrig day will be celebrated across every stadium in America. The ALS committee worked hard to get MLB to agree and jump on board. ALS will take front stage Wednesday and just maybe get another Jolt…

Well John , I took your advice and becoming more pro active ( squeaky wheel) to find out my health.  I went to the orthopedic surgeon who did all my mris and he referred me to the neuro..

Well today he read the EMG of the neuro and said to me that there’s no stenosis or pinched nerve in my back that would be causing my problems.  I gotta bad f…[Read more]

• Dagmar. Seeing my physical problems  arising. And the Diagnosis they give me is nerve damage from mild stenosis in my back. I know that DX has been proven wrong in many cases. And 2 neuros confirmed no ALS off of the same emg.. im just hoping there right..  but I understand totally what your saying. I just keep trying to get a hold on what i…

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Carolyn. I did go to the Dr . Another neuro who is director of the ALS clinic in stoney brooke long island.  He didn’t give me much of an exam. A brief clinical evaluation inehuch he had a student doing most of it. I showed him my previous emgs . Which had the abnormalities on it. I showed him my severely atrophy leg . He said No als. His exact…[Read more]

Omg Carolyn,  I’m sorry. I didn’t feel any weakness just looking at my legs brought me fear. My ortho noticed it and told me to see neuro. Neuro said its not that bad. Just that right leg had more fat around the upper ankle. I wish I could send u a pic. It looks much worse to me. Now after emg of my legs .tech tells me I’m still strong down…[Read more]

Carolyn. I prayer for you. Thank you for your help. I hope i can stay calm . I had booked an appt with the als center in stony brook long island as a backup for May 24th. Im kinda scared to go. My family and friends are saying you got a dx of No als from your gp and the neurologist and you have a followup in 3 months. Just stay with that.  But…[Read more]

Carolyn  , what symptoms did u have and did u have emgs done ?

Thank you Carolyn. Yes I’m going crazy. I’m trying hard to stay upbeat. Looking at my physical problems such as a thinner left leg and the emg coming back with a small muscle not responding. The neuro telling me no als . Just nerve problem from mild stenosis.  Im having a hard time buying it. I do hope he’s right. Also he did an upper emg to…[Read more]

• Once again, ty John . I don’t know how I would be handling this with out you and Dagmar. I know my stress is out of hand. Even stared fumbling words out of my mouth which has me thinking every time I want to talk. I have never in my life been so consumed that I have this. I grew up in Brooklyn and queens ny. My wife reminds me a was a pretty…

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Dagmar,  ty for your wisdom. If I told you the stiffness and aches and rigidnees of my body right now , the movement disorders i feel when I reach for something now I even watch how I speak cause I fumbled some words over the phone yesterday. My wife also trying to calm me down by telling me I can’t have every sympton know to als on one period of…[Read more]

Dagmar,  my left leg feels more sore and a little weaker. I can still stand on toes but.

Very frustrated and don’t know what to do about it. Do I accept neuro ” no als ” and continue to think its going to get more sore and worse. I’ve been walking about 30 min a day every other day but I’m scared to continue that’s its going to get worse. Family…[Read more]