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Russell

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@mrjukebox61

Just came back from neuro office. We spoke about my lower emg. He said the abnormality was with one small muscle .no sign of als. I was relieved. But as he did his clinical evaluation he asked me to touch my thumb to my pinky on my right hand. I could just barely do it. Barely. The left hand I had no problem. The right hand is the hand my ortho […] View
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    Russell replied to the topic Very very nervous … dont know what to do in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    John, I have an appt with another neurologist Wednesday morning to see if I can get some more answers as to whats going on with me.  I will bring my existing emg reports and mris . Also I was thinking of bookng a session with a neuromuscular massage therapist  to maybe reduce the stress upon me . Which has been mighty.

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    Russell replied to the topic Very very nervous … dont know what to do in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    Hi all,

    Don’t know why I I’m still getting stiffness and aches in my shoulders arms hands and legs. Been going on for awhile.seems to be a little more.  I’ve tried muscle relaxes and zanax. Can’t de-stress my self . When I try to relax my body u feel a little twitching go on and some internal vibrating in shoulders and arms.  Not alot. Its b…[Read more]

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    Amanda and Profile picture of RussellRussell are now friends 1 year, 11 months ago

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    Russell replied to the topic MLB finally to honor Lou Gehrig. in the forum ALS Awareness Month 1 year, 11 months ago

    Richard,  June 2nd is the day Lou Gehrig passed away . I understand soccer has much more fans but they have to start somewhere.  So let it be Baseball. Hope the awareness hits home. We shall see.

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    Russell replied to the topic Confused about progression of symptoms in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 12 months ago

    1. Lisa , hope your doing well. I’ve been going tru the same as you. Atrophy of my left leg ( quit severe ) and my right gluteus.  My hands and shoulders ache and my emg showed chronic denervation also and a muscle in myvleft leg that the nerve died to. Feeling some twitching and shoulder tremors also.Still can walk and talk well. Was told no…

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    Russell replied to the topic MLB finally to honor Lou Gehrig. in the forum ALS Awareness Month 1 year, 12 months ago

    1. Gehrig was an true Ironman.  His physical built alone was impressive. Gehrig last full season was 1938 while experiencing the symptoms of ALS he played in 157 games , 576 at bats , 115 runs, 170 hits and 114 RBIs . That was incredible!! He passed in 1941. Hes  an icon of strength. Its just sad 80 years gone by and no real change in this d…

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    Russell replied to the topic ALS Awareness Month – Needs to Reach the non-ALS Community! in the forum ALS Awareness Month 1 year, 12 months ago

    I really believe its coming. I think this will kick start everything. Sports has always made this country tick and hopefully the other sports  venues will follow. This could be the start of something big but MLB has to do this right.This has to grab the attention of the people right off the bat.

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    Russell replied to the topic ALS Awareness Month – NOT Reaching Major News Oranizations in the forum ALS Awareness Month 1 year, 12 months ago

    I do believe MLB can make a big splash here. They have the resources. June 2nd Lou Gehrig day will be celebrated across every stadium in America. The ALS committee worked hard to get MLB to agree and jump on board. ALS will take front stage Wednesday and just maybe get another Jolt…

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    Russell started the topic MLB finally to honor Lou Gehrig. in the forum ALS Awareness Month 1 year, 12 months ago

    June 2nd 1941 Yankee star Lou Gehrig passed away from ALS. Major league baseball has set aside June 2nd of every year , starting this Wednesday June 2nd to be Lou Gehrig day around the country at every stadium in America and to bring forth the awareness of this disease and to raise more money . Every Baseball team in the country will be involved.…[Read more]

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    Russell replied to the topic Very very nervous … dont know what to do in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years ago

    Well John , I took your advice and becoming more pro active ( squeaky wheel) to find out my health.  I went to the orthopedic surgeon who did all my mris and he referred me to the neuro..

    Well today he read the EMG of the neuro and said to me that there’s no stenosis or pinched nerve in my back that would be causing my problems.  I gotta bad f…[Read more]

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    Russell replied to the topic Very very nervous … dont know what to do in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years ago

    • Dagmar. Seeing my physical problems  arising. And the Diagnosis they give me is nerve damage from mild stenosis in my back. I know that DX has been proven wrong in many cases. And 2 neuros confirmed no ALS off of the same emg.. im just hoping there right..  but I understand totally what your saying. I just keep trying to get a hold on what i…

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    Russell replied to the topic Very very nervous … dont know what to do in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years ago

    Carolyn. I did go to the Dr . Another neuro who is director of the ALS clinic in stoney brooke long island.  He didn’t give me much of an exam. A brief clinical evaluation inehuch he had a student doing most of it. I showed him my previous emgs . Which had the abnormalities on it. I showed him my severely atrophy leg . He said No als. His exact…[Read more]

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    Russell posted a new activity comment 2 years ago

    Ty Georgi, I have to get up my courage if I go. I’m scared of what they might say. Idkn , I keep hoping my neurologist is right but yet I don’t feel right. Is it my nerves ??

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      Georgi replied 2 years ago

      Russell, do not let them label you psycho unstable. If you have physical sufferings they should be explained. I do not believe nervousness can be a cause of muscle atrophy. It is not necessary to be ALS, but there should be a sound explanation.

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    Russell replied to the topic Very very nervous … dont know what to do in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years ago

    Omg Carolyn,  I’m sorry. I didn’t feel any weakness just looking at my legs brought me fear. My ortho noticed it and told me to see neuro. Neuro said its not that bad. Just that right leg had more fat around the upper ankle. I wish I could send u a pic. It looks much worse to me. Now after emg of my legs .tech tells me I’m still strong down…[Read more]

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    Russell replied to the topic Very very nervous … dont know what to do in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years ago

    Carolyn. I prayer for you. Thank you for your help. I hope i can stay calm . I had booked an appt with the als center in stony brook long island as a backup for May 24th. Im kinda scared to go. My family and friends are saying you got a dx of No als from your gp and the neurologist and you have a followup in 3 months. Just stay with that.  But…[Read more]

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    Russell replied to the topic Very very nervous … dont know what to do in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years ago

    Carolyn  , what symptoms did u have and did u have emgs done ?

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    Russell replied to the topic Very very nervous … dont know what to do in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years ago

    Thank you Carolyn. Yes I’m going crazy. I’m trying hard to stay upbeat. Looking at my physical problems such as a thinner left leg and the emg coming back with a small muscle not responding. The neuro telling me no als . Just nerve problem from mild stenosis.  Im having a hard time buying it. I do hope he’s right. Also he did an upper emg to…[Read more]

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    Russell replied to the topic Very very nervous … dont know what to do in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years ago

    • Once again, ty John . I don’t know how I would be handling this with out you and Dagmar. I know my stress is out of hand. Even stared fumbling words out of my mouth which has me thinking every time I want to talk. I have never in my life been so consumed that I have this. I grew up in Brooklyn and queens ny. My wife reminds me a was a pretty…

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    Russell replied to the topic Very very nervous … dont know what to do in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years ago

    Dagmar,  ty for your wisdom. If I told you the stiffness and aches and rigidnees of my body right now , the movement disorders i feel when I reach for something now I even watch how I speak cause I fumbled some words over the phone yesterday. My wife also trying to calm me down by telling me I can’t have every sympton know to als on one period of…[Read more]

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    Russell replied to the topic Very very nervous … dont know what to do in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years ago

    Dagmar,  my left leg feels more sore and a little weaker. I can still stand on toes but.

    Very frustrated and don’t know what to do about it. Do I accept neuro ” no als ” and continue to think its going to get more sore and worse. I’ve been walking about 30 min a day every other day but I’m scared to continue that’s its going to get worse. Family…[Read more]

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