ALS News Today Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Giles Clay

Home Members Giles Clay
show less show more
Profile picture of Giles Clay

@gilesclay1me-com

  • Activity
  • Profile
  • Friends 0
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Giles Clay

    Giles Clay posted a new activity comment 1 year, 6 months ago

    Lori, three months into my suspected familial ALS self-diagnosis — made official last month — muscle weakness has yet to REALLY hit me … Regular whole-body fasciculations remain my MAJOR symptom though, which is why I connect with you. This symptom is hardly typical amongst the ALS masses. I only hope it remains my MAJOR symptom like it has in…[Read more]

    View Conversation
    • Profile picture of Lori
      Lori replied 1 year, 6 months ago

      Hi Giles. Sorry to hear of your diagnosis. It is my husband who has ALS. He had fasciculations For 2 years and just now started to have some hand weakness. Neurologist said this is a good sign that he is a slow progressive. Best wishes for you!

  • Profile picture of Giles Clay

    Giles Clay became a registered member 1 year, 6 months ago

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 1 year, 6 months ago

      Hello Giles,

      Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]

    • Profile picture of Amanda
      Amanda replied 1 year, 6 months ago

      Hello Giles, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]

Profile Photo ALS Action Canada Profile Photo Cindy

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Search in posts
Search in pages
Search in posts
Search in pages

Who’s Online

Profile picture of Leslie
Profile picture of Susana Rave

Recent Replies

  • Long Journey
  • What Research Do You Think Should Be Targeted?
  • Did You Have to Change Careers, or Even Retire, After Being Diagnosed with ALS
  • Did You Have to Change Careers, or Even Retire, After Being Diagnosed with ALS
  • What Research Do You Think Should Be Targeted?

Members

Newest | Active | Popular
  • Profile picture of Leslie
    Leslie
    Active 40 seconds ago
  • Profile picture of Susana Rave
    Susana Rave
    Active 8 minutes ago
  • Profile picture of Gregory M Hickson
    Gregory M Hickson
    Active 1 hour, 11 minutes ago
  • Profile picture of Judy Weger
    Judy Weger
    Active 1 hour, 20 minutes ago
  • Profile picture of Lisa
    Lisa
    Active 2 hours, 24 minutes ago

Forums

  • Coronavirus (COVID-19) and ALS
  • In Loving Memory
  • Living With ALS
  • ALS Awareness Month
  • Flash Briefings
  • A​ ​Forum​ ​for​ ​ALS ​Caregivers​
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Mobility Aides, Assistive Technology and Medical Equipment
  • ALS ​and​ ​Relationships
  • Research Topics
  • ALS Awareness and Advocacy
  • ALS News
  • ALS In The Media
  • Using our Forums
  • Most popular topics
  • Topics with no replies

ALS News Today Forums

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Recent Posts

  • AMX0035 Prolonged Time to Ventilation, Tracheostomy in CENTAUR Trial
  • With ALS, I Take Time for Minicelebrations Every Week
  • Team Gleason, Synchron Unite to Advance Stentrode Device for ALS

ALS News Today Forums is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2022 All rights reserved.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?

Forgot your details?

I remember my details

Create Account