@gilesclay1me-com
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Giles Clay posted a new activity comment 1 year, 6 months ago
Lori, three months into my suspected familial ALS self-diagnosis — made official last month — muscle weakness has yet to REALLY hit me … Regular whole-body fasciculations remain my MAJOR symptom though, which is why I connect with you. This symptom is hardly typical amongst the ALS masses. I only hope it remains my MAJOR symptom like it has in…[Read more]
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Giles Clay became a registered member 1 year, 6 months ago
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Hello Giles,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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Hello Giles, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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Hi Giles. Sorry to hear of your diagnosis. It is my husband who has ALS. He had fasciculations For 2 years and just now started to have some hand weakness. Neurologist said this is a good sign that he is a slow progressive. Best wishes for you!